评估家长对重组人生长激素治疗垂体前叶功能减退症患儿的满意度

Lech Grzelak, Państwowa Uczelnia Zawodowa we Włocławku, A. Wiśniewska, Robert Ślusarz, Szpital Dziecięcy w Toruniu
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摘要

介绍。身材矮小是指儿童的身高低于性别和年龄所采用的标准的两个标准差。在波兰,使用促生长激素重组生长激素治疗垂体功能减退症的费用由国家卫生基金药物方案报销。以每日注射的形式给药生长激素是麻烦的,需要整个家庭参与治疗过程。生长激素的多向作用提高了小患者的生活质量。的目标。本研究的目的是分析家长对生长激素治疗儿童生长激素低下的满意度。材料和方法。该研究涉及69名在托伦儿童医院儿科、内分泌学、糖尿病学和儿科神经内科接受生长激素治疗的促生长素垂体功能低下儿童的父母。本研究采用了家长自行问卷和儿童筛查问卷。结果。促生长素垂体功能减退症患儿家长对重组生长激素治疗满意,并给予积极评价。在生长激素治疗期间,他们高度评价孩子的生活质量。父母对生长激素治疗的评价与孩子生活质量的变化之间存在相关性。结论。对重组生长激素治疗的满意度取决于治疗时间、获得的生长效果和儿童的年龄。
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Ocena satysfakcji rodziców z leczenia ludzkim rekombinowanym hormonem wzrostu dzieci z somatotropinową niedoczynnością przysadki
Introduction. Short stature is a term for a child's height below two standard deviations from the norms adopted for sex and age. In Poland, treatment with recombinant growth hormone of somatotropin hypopituitarism is reimbursed under the National Health Fund drug programs. Administration of growth hormone in the form of daily injections is cumbersome and requires the in-volvement of the whole family in the treatment process. The multidirectional action of GH improves the quality of life of small patients. Aim. The aim of the study is to analyze parents' satisfaction with growth hor-mone treatment in children with somatotropin hypopituitarism. Materiał and methods. The study involved 69 parents of children with so-matotropin hypopituitarism treated with growth hormone at the Department of Pediatrics, Endocrinology, Diabetology and Pediatric Neurology at the Chil-dren"s Hospital in Torun. The research used the own questionnaire and KID-SCREEN questionnaire for parents. Results. Parents of children with somatotropin hypopituitarism are satisfied with the treatment with recombinant growth hormone and evaluate the treat-ment positively. During growth hormone therapy, they highly estimate the quality of their children’s lives. There is a correlation between parents' as-sessment of growth hormone therapy and the change in their children's quality of life. Conclusions. Satisfaction with treatment recombinant growth hormone de-pends on the duration of treatment, achieved growth results and the child's age.
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