患有过敏性鼻炎和/或哮喘的儿童及其照顾者的生活质量评估

Neeraj Gupta, Pallavi Wadhawan, Prakriti Srivastava, Anil Sachdev
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摘要

简介:哮喘和过敏性鼻炎(AR)是世界上最常见的疾病之一,它们经常持续一生。这些对患者和护理人员的身体、财务和心理健康都有重大影响。以前很少尝试评估患有这些疾病的受影响家庭的生活质量。然而,来自发展中国家的数据很少。儿童和患者照护者的生活质量评估有助于症状管理,并为更好地利用资源以实现最佳治疗提供投入。材料与方法:在本研究中,分别使用《儿童哮喘生活质量问卷》和《儿童哮喘护理者生活质量问卷》确定患者和护理者的生活质量,并使用参数和非参数统计工具与疾病严重程度和慢性程度进行相关性分析。结果:246对被诊断为哮喘和/或AR的儿童及其护理人员参加了儿科过敏和哮喘诊所。不同级别AR/哮喘/AR合并哮喘患者的生活质量(P = 0.632) (P = 0.772) (P = 0.496) (P = 0.918) (P = 0.384)和(P = 0.561)的症状评分、情绪域和活动限制均未证实差异有统计学意义。此外,哮喘严重程度与照顾者情绪障碍(P = 0.594)或照顾者活动限制(P = 0.446)无显著相关。结论:患有AR或哮喘的儿童及其照顾者的生活质量在各领域的疾病严重程度或慢性性方面没有显着差异。生活质量随年龄、患者性别、护理人员教育程度的变化无显著差异。
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Quality of life assessment in children and their caregivers suffering from allergic rhinitis and/or asthma
INTRODUCTION: Asthma and allergic rhinitis (AR) are among the most prevalent diseases worldwide and they frequently persist throughout the life. These have significant effect on physical, financial, and mental wellbeing of patients and caregivers. There have been few attempts previously, assessing the quality of life (QOL) in affected families suffering from these diseases. However, the data from developing countries are scarce. QOL assessment in children and caregivers of patients suffering can help in symptomatic management and provide inputs for the better utilization of resources to achieve optimal treatment. MATERIALS AND METHODS: Patient and caregiver QOLs were ascertained using Mini Pediatric Asthma QOL Questionnaire and Pediatric Asthma Caregiver's QOL Questionnaire, respectively, in the study and correlated with disease severity and chronicity using the parametric and nonparametric statistical tools. RESULTS: There were 246 pairs of children diagnosed with asthma and/or AR and their caregivers attending the pediatric allergy and asthma clinic. Symptom score, emotional domain, and activity limitation in children did not validate a statistically significant difference in QOL in the various grades of AR/asthma/AR with asthma (P = 0.632) (P = 0.772) (P = 0.496) (P = 0.918) (P = 0.384) and (P = 0.561), respectively. In addition, there was no significant correlation between the severity of asthma and caregiver emotional disturbance (P = 0.594) or caregiver activity limitation (P = 0.446). CONCLUSIONS: QOL in children and caregivers where children are suffering from either AR or asthma, or both has not shown any significant difference as per the disease severity or chronicity in various domains. There was no significant difference in QOL noted as per the change in age group, gender of patients, or education status of caregivers.
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