Swallowapp:对肿瘤性吞咽困难患者实施高质量的护理和随访

Domenica Baldari, Marianna Minasi
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摘要

COVID-19大流行极大地改变了常规医疗服务的提供,并给卫生保健系统带来了前所未有的挑战。这种偶然性也不可避免地对头颈部肿瘤导致的吞咽困难患者的管理产生了影响。科技提供了许多有用的工具来遏制这种不适,其中,开发一款应用程序对我们来说似乎是一种有利的方式。这个项目诞生背后的理论概念,首先是通过观察智能手机的移动应用程序为患者提供教育支持的理想平台;第二步,病人需要知道这些信息。在卫生紧急情况下,这种需求肯定会增加,因为在后续行动期间,病人无法方便地前往对他们进行后续行动的医院。需要强调的是,这个工具不能替代与语言治疗师的直接关系,也不能作为替代提供给患者;然而,它可以被认为是对患者及其家属的持续和持续的支持,因为它代表了一种有用的工具,可以最好地结合现有的专业知识和吞咽障碍患者及其护理人员的需求,利用技术的进步。我们试图量化患者获得的益处,以评估在不利于面对面关系的情况下,SwallowAPP(我们给上述应用程序起的名字)对所接受护理的感知有多大影响。以同样的方式,我们评估了系统的易用性,这是用户接受系统的基本要求。通过对所开展工作的仔细分析,SwallowAPP表明,在手术后续随访的早期阶段实施对吞咽障碍患者的优质护理,尤其对患者的生活质量有很大的影响。
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SWALLOWAPP: IMPLEMENTATION OF THE QUALITY OF CARE AND FOLLOW-UP FOR THE ONCOLOGICAL DYSPHAGIA PATIENT
The COVID-19 pandemic has dramatically altered the provision of routine medical services and has imposed unprecedented challenges on the healthcare system. This contingency inevitably also had repercussions on the management of patients with dysphagia resulting from head and neck tumors. Technology has provided many useful tools to stem this discomfort and among them, the creation of an app seemed to us an advantageous way to go. The theoretical conceptualization underlying the birth of this project is represented, on the first step, by the observation that mobile apps for smartphones provide an ideal platform for providing educational support to patients; second step, the patients need to have these informations. A need that has certainly increased during the health emergency, as patients were unable to have easy access to the hospitals where they were followed up during the follow-up. It is important to emphasize that this tool is not a substitute for the direct relationship with the speech therapist, nor is it presented to patients as an alternative to it; however, it can be considered as a constant and continuous support to the patient and his family, as it represents one of the useful tools to best combine the existing professionalism and the needs of patients with swallowing disorders and those who care for them, exploiting the progress of technology. We tried to quantify the benefit received by the patient to assess how much SwallowAPP (the name we gave to the aforementioned App) can impact on the perception of care received at a time unfavorable to face-to-face relationships. In the same way, we evaluated the ease of use of the system, a fundamental requirement for its acceptance by the user. From the careful analysis of the work carried out, SwallowAPP has shown that implementing the quality of care provided to the swallowing disorders during the early stages of subsequent follow-up to surgery, it had a strong impact especially on the patient's quality of life.
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