临床实践中的联合生产:参与痴呆症和亨廷顿氏病患者开展有意义的认知活动的案例研究

IF 1.7 Q2 REHABILITATION Journal of Enabling Technologies Pub Date : 2023-09-14 DOI:10.1108/jet-04-2022-0031
Alessandra Girardi, Elanor Webb, Inga Stewart, Simon Stokes, Kieran Breen
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引用次数: 0

摘要

由于难以满足具有很大异质性和进行性症状的患者群体的需求,因此开发和临床应用数字设备来支持痴呆症患者可能具有挑战性。Memjo有限公司开发了一种数字互动原型平板电脑,以促进认知刺激和回忆。这项概念验证案例研究旨在了解在早期阶段参与痴呆症和亨廷顿舞蹈病(HD)患者是否是一种有用的方法,可以为有意义的数字活动的初始发展提供信息,并最终将其引入临床实践。设计/方法/方法从一家有保障的住院精神病医院招募了5名处于不同进展阶段的痴呆和HD患者。通过观察、开放式问题和主观评分,使用混合方法评估参与度、可用性和初步效益。工具的内容引发了回忆、讨论和积极的行为和情绪反应。参与者对使用平板电脑很有信心,但需要支持与触摸屏互动,有时还需要鼓励交流。“音乐”和“视频”,尤其成功地吸引了大多数参与者,尽管他们有认知和身体上的困难。独创性/价值本案例研究表明,临床实践中的合作生产可以成功实施,以开发满足痴呆症和亨廷顿病患者兴趣和需求的活动。多样化和灵活的评估提供了丰富的反馈,将用于改进设备。这突出了发展未来活动池的重点途径。
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Co-production in clinical practice: a case-study of engagement with patients with dementia and Huntington's disease to develop meaningful cognitive activities
Purpose The development and clinical application of digital devices to support individuals with dementia can be challenging due to difficulties meeting the needs of a patient population with largely heterogeneous and progressive symptoms. Memjo Ltd has developed a digital interactive prototype tablet to promote cognitive stimulation and reminiscence. This proof-of-concept case-study aims to understand whether the engagement of individuals with dementia and Huntington's disease (HD) at an early stage is a useful approach to inform the initial development of meaningful digital activities and ultimately its potential introduction into clinical practice. Design/methodology/approach Five patients with dementia and HD at different stages of progression were recruited from an inpatient secure psychiatric hospital. Engagement, usability and preliminary benefits were assessed using a mixed-methods approach through observations, open-ended questions and subjective ratings. Findings The content of the tool triggered reminiscence, discussion and positive behavioural and emotional responses. The participants were confident using the tablet but needed support interacting with the touchscreen and, at times, to encourage communication. “Music” and “Videos”, were particularly successful in engaging most participants despite their cognitive and physical difficulties. Originality/value This case-study shows that co-production in clinical practice can be successfully implemented to develop activities that meet the interests and needs of patients with dementia and Huntington's disease. The varied and flexible assessment provided rich feedback that will be used to improve the device. This highlights avenues of focus for the development of future pools of activities.
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来源期刊
CiteScore
4.10
自引率
9.10%
发文量
21
期刊介绍: The Journal of Enabling Technologies (JET) seeks to provide a strong, insightful, international, and multi-disciplinary evidence-base in health, social care, and education. This focus is applied to how technologies can be enabling for children, young people and adults in varied and different aspects of their lives. The focus remains firmly on reporting innovations around how technologies are used and evaluated in practice, and the impact that they have on the people using them. In addition, the journal has a keen focus on drawing out practical implications for users and how/why technology may have a positive impact. This includes messages for users, practitioners, researchers, stakeholders and caregivers (in the broadest sense). The impact of research in this arena is vital and therefore we are committed to publishing work that helps draw this out; thus providing implications for practice. JET aims to raise awareness of available and developing technologies and their uses in health, social care and education for a wide and varied readership. The areas in which technologies can be enabling for the scope of JET include, but are not limited to: Communication and interaction, Learning, Independence and autonomy, Identity and culture, Safety, Health, Care and support, Wellbeing, Quality of life, Access to services.
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