测量间质性肺病和自身免疫性疾病患者的健康相关生活质量

Q3 Health Professions Revista Colombiana de Reumatologia Pub Date : 2024-04-01 DOI:10.1016/j.rcreu.2023.08.005
Claudia Mora , Alirio Rodrigo Bastidas Goyes , Lina Paola Fajardo Muriel , Cristian Felipe Rodríguez Yasno
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引用次数: 0

摘要

自身免疫性疾病包括多种多样的疾病,每种疾病都有其特定的并发症,也有肺部受累等常见并发症。肺部受累范围很广,其并发症之一是间质性肺病,每种自身免疫性疾病的间质性肺病差异很大。与健康相关的生活质量被定义为反映疾病影响的所有方面,以及患者对残疾和日常功能的感知。尽管这一概念是主观的,但健康研究人员一直在努力对其进行定义,以作为评估针对不同病理类型受试者的干预措施的工具,以至于它已成为项目评估和临床研究的主要结果。迄今为止,我们还不知道有哪些工具是专门为测量与自身免疫性疾病相关的间质性肺病引起的肺部受累的生活质量而设计的。本综述的目的是进一步探讨现有的有关此类患者生活质量测量的信息。
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Measurement of health-related quality of life in patients with interstitial lung disease and autoimmune diseases

Autoimmune diseases comprise a wide and diverse group of diseases, each with its own specific complications, and with common complications such as pulmonary involvement. Lung involvement is extensive and one of its complications is interstitial lung disease, which varies widely within each of the autoimmune diseases. Health-related quality of life is defined as all those aspects that reflect the impact of the disease and the perception of disability and daily functionality of the patient. Even though this concept is subjective, health researchers have sought to define it to serve as a tool in the evaluation of interventions in subjects with different types of pathologies, so much so that it has become a main outcome in program evaluation and clinical research. To date, we are not aware of tools designed with the objective of measuring quality of life specifically in lung involvement due to interstitial lung disease related to autoimmune diseases. The objective of this review will be to further explore the available information on the measurement of quality of life in these patients.

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来源期刊
Revista Colombiana de Reumatologia
Revista Colombiana de Reumatologia Medicine-Rheumatology
CiteScore
0.80
自引率
0.00%
发文量
92
期刊介绍: The Colombian Journal of Rheumatology (Revista Colombiana de Reumatología) is the official organ of the Colombian Association of Rheumatology (Asociación Colombiana de Reumatología) and the Central American, Caribbean and Andean Association of Rheumatology (Asociación Centroamericana Caribe Andina de Reumatología) - ACCA. It was created in December 1993 with the purpose of disseminating scientific information derived from primary and secondary research and presenting cases coming from the practice of Rheumatology in Latin America. Since its foundation, the Journal has been characterized by its plurality with subjects of all rheumatic and osteomuscular pathologies, in the form of original articles, historical articles, economic evaluations, and articles of reflection and education in Medicine. It covers an extensive area of topics ranging from the broad spectrum of the clinical aspects of rheumatology and related areas in autoimmunity (both in pediatric and adult pathologies), to aspects of basic sciences. It is an academic tool for the different members of the academic and scientific community at their different levels of training, from undergraduate to post-doctoral degrees, managing to integrate all actors inter and trans disciplinarily. It is intended for rheumatologists, general internists, specialists in related areas, and general practitioners in the country and abroad. It has become an important space in the work of all rheumatologists from Central and South America.
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