[016]护理人员对sononomat作为唐氏综合症儿童多导睡眠仪替代方法的看法

K Sclip, A Collaro, J Chawla
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摘要

摘要:唐氏综合征(DS)患儿经常需要重复多导睡眠图(PSG)来诊断和监测睡眠呼吸障碍(SDB)。PSG的设置对于这些人群来说可能是痛苦的,他们可能会与传感器和引线的应用作斗争。Sonomat是一种非侵入性床垫覆盖物,现已被证明可以准确地检测和分析这一人群的SDB。本研究的目的是评估与传统实验室PSG相比,对患有DS的儿童进行家庭索诺玛监测的护理经验。方法对在昆士兰儿童医院接受诊断性PSG检查的2-17岁DS患儿填写一份关于其对该测试体验的PSG问卷。那些也进行家庭索诺玛监测的人完成了一份关于他们在家中使用索诺玛的体验的问卷调查。结果51例退行性痴呆患儿(中位年龄7岁,男性占52%)完成了PSG问卷,25例完成了Sonomat问卷。45% (n=51)的护理人员报告说,实验室内的PSG对他们的孩子来说“困难”或“非常困难”。100% (n=25)的护理人员将他们在家中使用sononomat的体验评为良好、非常好或优秀。88% (n=25)的护理人员认为,与传统的实验室PSG相比,sononomat是他们监测DS儿童的首选选择。结论:在本研究中,索诺玛被退行性痴呆儿童的照顾者看好,在大多数情况下,索诺玛比住院PSG更受欢迎。
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O016 Caregivers’ Perspectives on the Sonomat as a Polysomnography Alternative in Children with Down syndrome
Abstract Introduction Children with Down syndrome (DS) frequently require repeated polysomnography (PSG) to diagnose and monitor sleep disordered breathing (SDB). PSG set-up can be distressing for this population, who may struggle with sensor and lead application. The Sonomat, a non-invasive mattress overlay, has now been shown to accurately detect and profile SDB in this population. The aim of this study was to evaluate caregiver experiences of undertaking home Sonomat monitoring in their child with DS, compared to conventional lab PSG. Method Children with DS aged 2-17yrs undergoing a diagnostic PSG at the Queensland Children’s Hospital completed a PSG questionnaire about their child’s experience of this test. Those that also undertook home Sonomat monitoring completed a questionnaire about their experience of using the Sonomat in the home. Results Caregivers of fifty-one children with DS (median age 7yrs, 52% male) completed the PSG questionnaire and twenty-five completed the Sonomat questionnaire. 45% (n=51) of caregivers reported that in-lab PSG was ‘hard’ or ‘very hard’ for their child. 100% (n=25) of the caregivers rated their experience of using the Sonomat at home as good, very good or excellent. 88% (n=25) of caregivers felt that the Sonomat was their preferred option for monitoring in children with DS, as opposed to a traditional in-lab PSG. Conclusion In this study, the Sonomat was viewed favourably by caregivers of children with DS, and in the majority of instances was preferred to in-hospital PSG.
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