家庭冲突:希腊家庭1型糖尿病青少年依从性低的危险因素

None Alexandra Skodra, None Vasiliki Matziou, None Sofia Zyga, None Ioannis Kasimis, None Varvara Boutopoulou, None Effrosyni Vlachioti, None Koumpagioti Despoina, None Konstantaki Evanthia, None Pantelis Perdikaris
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摘要

1型糖尿病(T1DM)的治疗要求很高,需要每日血糖监测、一定的饮食计划、特定的运动计划、每日多次胰岛素注射以及低血糖或高血糖发作的管理。家庭冲突可能在青少年1型糖尿病患者的依从性中起重要作用。目的:评价希腊家庭冲突与T1DM青少年依从性的关系。方法:于2021年10月至2022年6月进行横断面研究。由于受新冠肺炎疫情限制,所有访谈均采用网络调查方式。向青少年分发了三份问卷。儿童生活质量调查工具、糖尿病自我管理档案及青少年合作父母参与量表问卷。PeDsQL也分发给了他们的父母。结果:59名10 ~ 19岁青少年(N=21)及其父母(N=38)参与调查。所有五个因素的PedsQL平均值从55.7(担忧子类)到77.8(治疗依从性)不等,显示总体生活质量中等。根据平均值,父母对所有五个因素的观点PedsQL从38.6(担忧子类)到77(治疗依从性)不等,显示总体生活质量中等。DSMP平均得分表明糖尿病儿童对治疗的依从性较高,而合作平均得分表明父母与T1DM青少年的合作程度较高,FC水平较低。双变量分析显示,较少的FC与青少年更好的治疗依从性相关。结论:T1DM的管理仍然具有挑战性,特别是随着儿童年龄的增长和进入青春期。家族在T1DM的管理中起着重要的作用。糖尿病多学科团队应评估和了解家庭成员之间的相互作用,以发现家庭间的问题,如高频率的FC。提供家庭支持可以改善青少年和父母之间的沟通,并可能减少FC,从而改善T1DM治疗的依从性和结果。
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Family conflict: Risk factor for low adherence in adolescents with type 1 diabetes in Greek families
Introduction: Type 1 Diabetes Melitus (T1DM) treatment is demanding, due to daily blood glucose monitoring, certain diet plan, specific exercise program, multiple daily insulin injections, and management of episodes of hypo- or hyperglycemia. Family conflict may play a significant role in the adherence of adolescents with type 1 diabetes. Purpose: To evaluate Greek families’ conflicts and determine their relationship with T1DM adolescents’ adherence. Methods: A cross-sectional study was conducted from October 2021 to June 2022. Due to COVID-19 restriction, all the interviews were conducted through online survey. Three questionnaires were distributed to the adolescents. Pediatric Quality of Life Inventory tool, Diabetes Self-Management Profile and Collaborative Parent Involvement Scale for Youths Questionnaire. PeDsQL was distributed to their parents as well. Results: 59 adolescents (N=21) aged 10-19 years and their parents (N=38) participated. The mean values of PedsQL for all five factors ranged from 55.7 (Worry subcategory) to 77.8 (Treatment adherence), showing an overall moderate QoL. According to the mean values, parents’ perspectives PedsQL for all five factors ranged from 38.6 (Worry subcategory) to 77 (Treatment adherence), showing an overall moderate QoL. Mean DSMP score indicated a high level of adherence of children with diabetes mellitus to their treatment, whilst mean cooperation score indicated a high level of cooperation between parents and adolescents with T1DM and low level of FC. Bivariate analysis revealed that less FC was related to better treatment adherence in adolescents. Conclusions: T1DM management remains challenging, particularly as children grow older and move into adolescence. The family can play a significant role in T1DM management. Diabetes multidisciplinary teams should evaluate and understand family members' interactions detecting inter-family problems such as high frequency of FC. Provision of family support can improve communication between adolescents and parents and may reduce FC resulting in better T1DM treatment adherence and outcomes.
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