沙特阿拉伯镰状细胞病患者中与健康相关的生活质量和服务障碍

IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Ethiopian Journal of Health Sciences Pub Date : 2023-09-21 DOI:10.4314/ejhs.v33i5.13
Nada Ahmed Al Sayigh, Marwa Mahmoud Shafey, Amal Ali Alghamdi, Ghada Fouad Alyousif, Fatma Amer Hamza, Zaenb Husain Alsalman
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引用次数: 1

摘要

背景:沙特阿拉伯镰状细胞病(SCD)的负担很高,对患者的生活质量(QoL)有显著影响。本研究旨在评估成人SCD患者的健康相关生活质量(HRQoL)。& # x0D;方法:在沙特阿拉伯东部省卡提夫中心医院血清学诊所就诊的成年SCD患者中进行了横断面研究。问卷包括收集参与者信息的小节,包括社会人口学属性、SCD特征、基于SF-36的HRQoL以及关于服务障碍的意见。& # x0D;结果:272例SCD患者HRQoL平均得分最高的是社会功能(SF)域(65.0±23.4),最低的是身体健康角色限制(RP)域(47.2±40.4)。参与者对服务提供的意见平均得分为19.27±4.68分(最小-最大:10-30分),对服务提供的可及性持肯定态度的仅占24.6%。总共38.6%的受访者承认卫生保健人员提供的服务存在缺陷,43%的受访者认为与卫生保健人员的沟通存在缺陷。此外,40.1%的人同意对自己的病情感到耻辱。40岁男性、大学学历、有医疗保险、就医前等待15分钟、对服务提供持积极态度的SCD患者更有可能获得更好的HRQoL评分。& # x0D;结论:成人SCD患者HRQoL总体较低,与HRQoL评分相关的因素较多。咨询、授权和改善医患沟通是改善医疗保健提供的重要策略,从而改善SCD成人的HRQoL。
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Health-Related Quality of Life and Service Barriers among Adults with Sickle Cell Disease in Saudi Arabia
Background: The burden of sickle cell disease (SCD) is highin Saudi Arabia, with a significant impact on patients’ quality of life (QoL). This study aimed to assess the health-related quality of life (HRQoL) among adults with SCD. Methods: A cross-sectional study was conducted among adults with SCD attending hematology clinics at Qatif Central Hospital in the Eastern Province of Saudi Arabia. The questionnaire included subsections to collect information from participants, including sociodemographic attributes, SCD characteristics, HRQoL based on SF-36, and opinions regarding barriers to service. Results: Among 272 SCD patients, the highest mean score of HRQoL was observed in the social functioning (SF) domain (65.0±23.4), whereas the lowest score was observed in the role limitations due to physical health (RP) domain (47.2±40.4). The mean score for participants’ opinions regarding service provision was 19.27±4.68 (min-max:10–30), and only 24.6% had a positive opinion regarding the accessibility of service provision. A total of 38.6% of the respondents acknowledged shortcomings in the services offered by healthcare staff, and 43% identified weaknesses in communication with healthcare staff. Moreover, 40.1% agreed about feeling stigmatized about their condition. SCD patients who were <40 years old, males, had a university degree, had health insurance, waited <15 minutes before receiving health care, and had positive opinions regarding service provision were more likely to have better HRQoL scores. Conclusion: Adults with SCD exhibited low HRQoL in general, and different factors were related to low HRQoL scores. Counselling, empowerment, and improvement of doctor-patient communication are important strategies to improve healthcare provision, and consequently, HRQoL among adults with SCD.
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来源期刊
Ethiopian Journal of Health Sciences
Ethiopian Journal of Health Sciences HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
8.30%
发文量
137
审稿时长
12 weeks
期刊介绍: Ethiopian Journal of Health Sciences is a general health science journal addressing clinical medicine, public health and biomedical sciences. Rarely, it covers veterinary medicine
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