Nada Ahmed Al Sayigh, Marwa Mahmoud Shafey, Amal Ali Alghamdi, Ghada Fouad Alyousif, Fatma Amer Hamza, Zaenb Husain Alsalman
{"title":"沙特阿拉伯镰状细胞病患者中与健康相关的生活质量和服务障碍","authors":"Nada Ahmed Al Sayigh, Marwa Mahmoud Shafey, Amal Ali Alghamdi, Ghada Fouad Alyousif, Fatma Amer Hamza, Zaenb Husain Alsalman","doi":"10.4314/ejhs.v33i5.13","DOIUrl":null,"url":null,"abstract":"Background: The burden of sickle cell disease (SCD) is highin Saudi Arabia, with a significant impact on patients’ quality of life (QoL). This study aimed to assess the health-related quality of life (HRQoL) among adults with SCD. 
 Methods: A cross-sectional study was conducted among adults with SCD attending hematology clinics at Qatif Central Hospital in the Eastern Province of Saudi Arabia. The questionnaire included subsections to collect information from participants, including sociodemographic attributes, SCD characteristics, HRQoL based on SF-36, and opinions regarding barriers to service. 
 Results: Among 272 SCD patients, the highest mean score of HRQoL was observed in the social functioning (SF) domain (65.0±23.4), whereas the lowest score was observed in the role limitations due to physical health (RP) domain (47.2±40.4). The mean score for participants’ opinions regarding service provision was 19.27±4.68 (min-max:10–30), and only 24.6% had a positive opinion regarding the accessibility of service provision. A total of 38.6% of the respondents acknowledged shortcomings in the services offered by healthcare staff, and 43% identified weaknesses in communication with healthcare staff. Moreover, 40.1% agreed about feeling stigmatized about their condition. SCD patients who were <40 years old, males, had a university degree, had health insurance, waited <15 minutes before receiving health care, and had positive opinions regarding service provision were more likely to have better HRQoL scores. 
 Conclusion: Adults with SCD exhibited low HRQoL in general, and different factors were related to low HRQoL scores. Counselling, empowerment, and improvement of doctor-patient communication are important strategies to improve healthcare provision, and consequently, HRQoL among adults with SCD.","PeriodicalId":12003,"journal":{"name":"Ethiopian Journal of Health Sciences","volume":null,"pages":null},"PeriodicalIF":1.5000,"publicationDate":"2023-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Health-Related Quality of Life and Service Barriers among Adults with Sickle Cell Disease in Saudi Arabia\",\"authors\":\"Nada Ahmed Al Sayigh, Marwa Mahmoud Shafey, Amal Ali Alghamdi, Ghada Fouad Alyousif, Fatma Amer Hamza, Zaenb Husain Alsalman\",\"doi\":\"10.4314/ejhs.v33i5.13\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Background: The burden of sickle cell disease (SCD) is highin Saudi Arabia, with a significant impact on patients’ quality of life (QoL). This study aimed to assess the health-related quality of life (HRQoL) among adults with SCD. 
 Methods: A cross-sectional study was conducted among adults with SCD attending hematology clinics at Qatif Central Hospital in the Eastern Province of Saudi Arabia. The questionnaire included subsections to collect information from participants, including sociodemographic attributes, SCD characteristics, HRQoL based on SF-36, and opinions regarding barriers to service. 
 Results: Among 272 SCD patients, the highest mean score of HRQoL was observed in the social functioning (SF) domain (65.0±23.4), whereas the lowest score was observed in the role limitations due to physical health (RP) domain (47.2±40.4). The mean score for participants’ opinions regarding service provision was 19.27±4.68 (min-max:10–30), and only 24.6% had a positive opinion regarding the accessibility of service provision. A total of 38.6% of the respondents acknowledged shortcomings in the services offered by healthcare staff, and 43% identified weaknesses in communication with healthcare staff. Moreover, 40.1% agreed about feeling stigmatized about their condition. SCD patients who were <40 years old, males, had a university degree, had health insurance, waited <15 minutes before receiving health care, and had positive opinions regarding service provision were more likely to have better HRQoL scores. 
 Conclusion: Adults with SCD exhibited low HRQoL in general, and different factors were related to low HRQoL scores. Counselling, empowerment, and improvement of doctor-patient communication are important strategies to improve healthcare provision, and consequently, HRQoL among adults with SCD.\",\"PeriodicalId\":12003,\"journal\":{\"name\":\"Ethiopian Journal of Health Sciences\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2023-09-21\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Ethiopian Journal of Health Sciences\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.4314/ejhs.v33i5.13\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Ethiopian Journal of Health Sciences","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4314/ejhs.v33i5.13","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
Health-Related Quality of Life and Service Barriers among Adults with Sickle Cell Disease in Saudi Arabia
Background: The burden of sickle cell disease (SCD) is highin Saudi Arabia, with a significant impact on patients’ quality of life (QoL). This study aimed to assess the health-related quality of life (HRQoL) among adults with SCD.
Methods: A cross-sectional study was conducted among adults with SCD attending hematology clinics at Qatif Central Hospital in the Eastern Province of Saudi Arabia. The questionnaire included subsections to collect information from participants, including sociodemographic attributes, SCD characteristics, HRQoL based on SF-36, and opinions regarding barriers to service.
Results: Among 272 SCD patients, the highest mean score of HRQoL was observed in the social functioning (SF) domain (65.0±23.4), whereas the lowest score was observed in the role limitations due to physical health (RP) domain (47.2±40.4). The mean score for participants’ opinions regarding service provision was 19.27±4.68 (min-max:10–30), and only 24.6% had a positive opinion regarding the accessibility of service provision. A total of 38.6% of the respondents acknowledged shortcomings in the services offered by healthcare staff, and 43% identified weaknesses in communication with healthcare staff. Moreover, 40.1% agreed about feeling stigmatized about their condition. SCD patients who were <40 years old, males, had a university degree, had health insurance, waited <15 minutes before receiving health care, and had positive opinions regarding service provision were more likely to have better HRQoL scores.
Conclusion: Adults with SCD exhibited low HRQoL in general, and different factors were related to low HRQoL scores. Counselling, empowerment, and improvement of doctor-patient communication are important strategies to improve healthcare provision, and consequently, HRQoL among adults with SCD.
期刊介绍:
Ethiopian Journal of Health Sciences is a general health science journal addressing clinical medicine, public health and biomedical sciences. Rarely, it covers veterinary medicine