Jonathan Koffman, Clarissa Penfold, Laura Cottrell, Bobbie Farsides, Catherine J Evans, Rachel Burman, Richard Nicholas, Stephen Ashford, Eli Silber
{"title":"\"我想活下去，不去想未来\"重症多发性硬化症患者及其家人的预先护理计划在哪里?定性研究","authors":"Jonathan Koffman, Clarissa Penfold, Laura Cottrell, Bobbie Farsides, Catherine J Evans, Rachel Burman, Richard Nicholas, Stephen Ashford, Eli Silber","doi":"10.1101/2022.03.10.22272188","DOIUrl":null,"url":null,"abstract":"<strong>Background</strong> Little is known about how people with multiple sclerosis and their families comprehend advance care planning (ACP) and its relevance in their lives.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"214 ","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2022-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"“I wanna live and not think about the future” What place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study\",\"authors\":\"Jonathan Koffman, Clarissa Penfold, Laura Cottrell, Bobbie Farsides, Catherine J Evans, Rachel Burman, Richard Nicholas, Stephen Ashford, Eli Silber\",\"doi\":\"10.1101/2022.03.10.22272188\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<strong>Background</strong> Little is known about how people with multiple sclerosis and their families comprehend advance care planning (ACP) and its relevance in their lives.\",\"PeriodicalId\":501412,\"journal\":{\"name\":\"medRxiv - Palliative Medicine\",\"volume\":\"214 \",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2022-03-16\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"medRxiv - Palliative Medicine\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1101/2022.03.10.22272188\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"medRxiv - Palliative Medicine","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1101/2022.03.10.22272188","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
“I wanna live and not think about the future” What place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study
Background Little is known about how people with multiple sclerosis and their families comprehend advance care planning (ACP) and its relevance in their lives.
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