在区块链系统中整合个人和电子健康记录的隐私冲突解决方案

Aleksandr Kormiltsyn, V. Dwivedi, Chibuzor Udokwu, Alex Norta
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引用次数: 0

摘要

尽管个人健康记录(PHR)和电子健康记录(EHR)系统中的医疗保健信息对医疗保健专业人员、个人和研究人员来说具有巨大的潜力,但由于结构和语义的异质性以及隐私问题,将这些信息整合在一起非常复杂。由于担心隐私受到侵犯,医疗保健数据是一个情感问题。区块链技术可在跨组织流程中实现患者数据的隐私性、透明性和不变性,患者可控制对其数据的访问并了解其使用情况。同时,区块链技术也为电子医疗系统带来了新的挑战,如数据隐私、可观察性和在线可执行性。在本文中,我们提出了一个基于区块链、以患者为中心的安全系统的设计和形式化方案,其中包括个人健康记录需求定义、隐私冲突解决本体论以及管理机制,并考虑到了与共享敏感医疗记录相关的情感因素。在本文中,我们将通过一个关于预防性和个性化医疗保健的运行案例来说明我们的想法。
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Privacy-Conflict Resolution for Integrating Personal- and Electronic Health Records in Blockchain-Based Systems
Despite the great potential for healthcare professionals, individuals, and researchers, integrating healthcare information from personal health records (PHR) and electronic health records (EHR) systems is complicated because of structural- and semantic heterogeneity and -privacy. Healthcare data is an emotional issue because of fear of privacy violations. Blockchain technology enables a patient's data privacy, transparency, and immutability in cross-organizational processes where a patient regulates access to his data and is aware of its usage. At the same time, blockchain technology creates new challenges for e-healthcare systems, such as data privacy, observability, and online enforceability. In this paper, we propose a design and formalization of a secure blockchain-based, and patient-centric system with a definition of PHR requirements, an ontology for privacy-conflict resolution- and management mechanisms that takes into account the emotional aspects related to sharing sensitive healthcare records. Throughout this paper, we illustrate our ideas with a running case about preventive- and personalized healthcare.
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