个人健康数据及其行政保护的意义

Emir Mehmedović, Amila Mehmedović
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摘要

近几十年来,个人数据保护问题一直是人们关注的焦点之一。这是因为保护个人数据是实现作为基本人权的隐私权的一种形式。个人数据是指有关特定个人特征的信息,是识别个人身份的一种手段。波斯尼亚和黑塞哥维那的个人数据保护由《个人数据保护法》规范。该法规定了个人数据处理原则、数据控制者和处理者的义务、数据主体的权利以及对违法行为的制裁。自 2016 年起,欧盟的个人数据保护受到《通用数据保护条例》(GDPR)的监管,该条例极大地改进了个人数据保护系统。个人健康数据是一类特别重要的个人数据,其中包括有关个人健康和医疗状况、医疗诊断、预后和治疗的识别和身份信息,以及可以识别个人身份的物质信息。与个人健康有关的数据是个人生活中至关重要且可能易受攻击的方面。这些都是个人最私密的数据,未经授权和不合理的披露会使他们蒙受耻辱、嘲弄和污名,对他们造成重大伤害,主要是非物质伤害。滥用患者信息不仅会侵犯他们的隐私,还会损害他们的尊严。因此,个人健康数据的处理只能出于与健康相关的目的,即为了个人和整个社会的利益。波斯尼亚和黑塞哥维那联邦规范患者权利的法律(《医疗保健法》和《患者权利、义务和责任法》)保障患者的信息保密权和隐私权、数据保密权以及查阅病历的权利。这些法律条款在很大程度上达到了保护个人健康数据的标准。然而,为了改善这一领域的状况,有必要将辅助适用于保护个人健康数据的一般数据保护法的规定与《一般数据保护条例》的规定统一起来。
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Personal Health Data and the Significance of Its Administrative Protection
The issue of personal data protection has been one of the focal points of attention in recent decades. This is because the protection of personal data is a form of realizing the right to privacy as a fundamental human right. Personal data refers to information about a specific individual’s characteristics that serves as a means of their identification. Personal data protection in Bosnia and Herzegovina is regulated by the Law on Personal Data Protection. This law governs the principles of personal data processing, the obligations of data controllers and processors, the rights of data subjects, as well as sanctions for violations of the law. Since 2016, the protection of personal data in the European Union has been regulated by the General Data Protection Regulation (GDPR), which has significantly improved the system for protecting personal data. A particularly significant category of personal data is personal health data, which includes identification and identifying information about an individual’s health and medical condition, their medical diagnosis, prognosis, and treatment, as well as information about substances that can identify that individual. Data related to an individual’s health is a crucial and potentially vulnerable aspect of their life. These are the most intimate data about an individual, the unauthorized and unjustified disclosure of which can subject them to shame, ridicule, and stigmatization, causing them significant, primarily non-material, harm. Misuse of patient information not only violates their privacy but also undermines their dignity. Therefore, personal health data can only be processed for health-related purposes, i.e., for the benefit of the individual and society as a whole. Laws regulating patients’ rights in the Federation of Bosnia and Herzegovina (the Law on Healthcare and the Law on the Rights, Obligations, and Responsibilities of Patients) guarantee patients the right to confidentiality of information and privacy, the right to data secrecy, and the right to access their medical records. The provisions of these laws significantly meet the standards for the protection of personal health data. However, in order to improve the situation in this area, there is a need to harmonize the provisions of the general data protection law, which is subsidiarily applied in the protection of personal health data, with the provisions of the General Data Protection Regulation.
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