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引用次数: 0

摘要

考虑到当今医学面临的挑战以及为弱势群体提供社会保护的问题,发展儿科姑息关怀具有现实意义且至关重要。本研究旨在分析乌克兰和欧洲国家儿科姑息关怀的发展水平。材料和方法:分析和归纳来自科学方法论和具体文献、文献资料、互联网信息资源以及乌克兰、波兰共和国和意大利共和国的监管和法律框架的数据。研究成果。儿科姑息关怀的目标是,一旦诊断出危及生命的疾病,立即为患儿及其家庭提供支持。这种关怀贯穿于儿童疾病的整个过程。儿科姑息关怀的目的是在已确诊的不治之症(通常是进展性疾病)的范围内,提高患儿及其家人的身体、心理和精神健康水平。要完成多学科任务,需要跨学科团队在姑息治疗住院部、流动医疗队和家庭中开展工作。以家庭为中心的儿科姑息治疗模式是支持家庭坚持一系列社会医疗干预措施、保持家庭内部沟通、避免家庭的社会剥夺、促进和协调对患有不治之症的儿童的护理的独特模式之一。结论儿科姑息治疗有助于提高患儿及其家庭的生活质量。在乌克兰和世界范围内,儿科姑息治疗需要解决一系列与资金、专家和患儿家长的专业教育有关的问题。住院和流动儿科姑息治疗团队的运作应当协调和持续。以家庭为中心的模式是为儿童和家庭提供儿科姑息治疗的有效方法。
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APPROACHES TO THE DEVELOPMENT OF PEDIATRIC PALLIATIVE CARE
Considering today’s challenges to medicine and provision of social protection to vulnerable population groups, the issue of developing pediatric palliative care is relevant and crucial. The aim of the study is to analyze the development level of pediatric palliative care in Ukraine and European countries. Material and methods: analysis and generalization of data from scientific-methodological and specific literature, documentary materials, information resources on the Internet, and regulatory and legal frameworks of Ukraine, the Republic of Poland and the Republic of Italy. Research results. The goal of pediatric palliative care is to support the child and their family as soon as a life-threatening disease is diagnosed. Such care is provided throughout the entire trajectory of the child’s disease. Pediatric palliative care is aimed at improving the level of physical, mental, and spiritual well-being of the child and their family within the limits of the diagnosed incurable, often progressive, disease. The solution of multidisciplinary tasks requires the work of an interdisciplinary team in a palliative inpatient department, a mobile crew, and assistance at home. The family-centered model of pediatric palliative care is one of the unique models of supporting the family to adhere to a series of socio-medical interventions and maintenance of intra-family communication, avoid social deprivation of the family, and promote and coordinate the care of a child with an incurable disease. Conclusions. Palliative pediatric care contributes to the improvement of the quality of life of the child and their family. Pediatric palliative care in Ukraine and the world needs solving a range of problems related to financing and specialized education of specialists and parents of the child. The functioning of the inpatient and mobile pediatric palliative care team should be coordinated and continuous. The family-centered model is an effective approach to pediatric palliative care for the child and family.
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