从父母的角度看父母患癌症的经历:一项定性研究

Ana Filipa Domingues Sousa, Diana Gabriela Simões Marques Santos, Maria Margarida da Silva Reis dos Santos Ferreira, Maria de Lurdes Lopes de Freitas Lomba
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引用次数: 0

摘要

引言:父母癌症是指有受抚养子女的人在成年早期遭遇癌症,导致亲子互动、家庭动态、父母角色的履行和社会经济困难等方面发生变化。目的:分析正在接受癌症治疗的父母的观点,以了解这对其父母角色的影响。方法: 定性研究:定性研究。根据贝蒂-纽曼模式的结构化脚本,通过半结构化访谈收集数据。样本包括处于治疗阶段的癌症患者,他们患有不同类型的癌症,在葡萄牙一家癌症医院接受监测,其子女年龄在 14 至 19 岁之间。数据分析根据 Bardin 的内容分析法进行。与研究相关的伦理假设得到了保障。结果:通过对 13 个访谈的分析,得出了 "父母患癌的经历 "这一领域,其中包括 "我们的一切都变了:癌症诊断 "和 "生活仍在继续:父母患癌对亲子互动的影响 "这两个类别以及各自的子类别。结论:本研究展示了癌症诊断的影响以及父母患癌对亲子互动的影响。研究结果将有助于为父母癌症患者设计护理干预计划。
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THE EXPERIENCE OF PARENTAL CANCER FROM THE PARENTS' PERSPECTIVE: A QUALITATIVE STUDY
INTRODUCTION: Parental cancer is the experience of cancer at an early age in adulthood in people with dependent children, leading to changes in parent-child interaction, family dynamics, the performance of the parental role and socio-economic difficulties. OBJECTIVE: To analyze parents’ perspectives who are undergoing cancer treatment to understand the impact this has on their parental role. METHODOLOGY: Qualitative study. Data were collected through semi-structured interviews based on a structured script founded on the Betty Neuman Model. The sample consisted of cancer patients in the treatment phase, with different types of cancer, monitored in a Portuguese cancer hospital, with teenage children aged 14 to 19. Data analysis was carried out using content analysis according to Bardin. The ethical assumptions associated with the study were safeguarded. RESULTS: From the analysis of the 13 interviews carried out, the domain Experience of parental cancer emerged, with two categories “Everything changed in us: the cancer diagnosis” and “Life goes on: repercussions of parental cancer on parent-child interaction” and respective subcategories. CONCLUSION: This study demonstrated the implications of the diagnosis of cancer and the repercussions of parental cancer on parent-child interaction. The results will support the design of a nursing intervention program for the dyad experiencing parental cancer.
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EFECTIVIDAD DE UN PROGRAMA DE AUTOMANEJO PARA CUIDADORES FAMILIARES DISPOSICIÓN DE PROFESIONALES DE LA SALUD CHILENOS HACIA LA CONSEJERÍA BREVE ANTI-TABACO EN PACIENTES HOSPITALIZADOS DE UNA INSTITUCIÓN PRIVADA RELACIÓN ENTRE AUTOCUIDADO Y ESTIGMA ASOCIADO A LA DIABETES TIPO 2 EN ADULTOS MEXICANOS THE EXPERIENCE OF PARENTAL CANCER FROM THE PARENTS' PERSPECTIVE: A QUALITATIVE STUDY SUPERVISIÓN DE SALUD DE NIÑOS/AS CON SINDROME DE DOWN REALIZADO POR ENFERMERA, DESDE LA MIRADA DE SUS CUIDADORES
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