学生竞赛(知识生成) ID 1985014

IF 2.4 Q1 REHABILITATION Topics in Spinal Cord Injury Rehabilitation Pub Date : 2023-09-01 DOI:10.46292/sci23-1985014s
Lauren Cadel, S. L. Hitzig, Lisa M McCarthy, Shoshana Hahn-Goldberg, Tanya L Packer, Chester H Ho, Aisha K Lofters, Tejal Patel, Stephanie R. Cimino, S. Guilcher
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引用次数: 0

摘要

患有脊髓损伤/功能障碍(SCI/D)的成年人通常需要服用多种药物来控制继发性并发症。药物管理方面的巨大挑战已经凸显出来,需要在药物自我管理方面提供更多支持。 本研究旨在共同开发一个工具包,以协助 SCI/D 患者进行药物自我管理。 患有 SCI/D的成年人、护理人员和医疗保健提供者将参与概念绘图的三个步骤--头脑风暴、分类和评级以及绘图,以确定工具包的关键组成部分。参与者将就工具包中应包含哪些内容以帮助 SCI/D 患者管理药物生成陈述。参与者将根据重要性和可行性对最终的陈述清单进行评分,并将陈述按主题分类。一部分参与者将绘制一张可视化地图,代表各组主题。 迄今为止,参与者已经提出了 500 多条陈述。围绕工具包内容产生的想法主要涉及以下方面的信息:控制继发性并发症的药物和非药物选择、副作用、与医疗服务提供者沟通以及药物获取。关于工具包提供方式的具体想法主要集中在:确保个性化方法、可及性和视觉效果的使用。将对陈述进行综合,以便分类、评级和制图。 本研究的后续阶段将通过访谈和工作组的意见来完善工具包。然后将进行混合方法试点评估,以评估工具包的可行性、可接受性和适宜性,以及药物知识、自我效能和生活质量。
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Student Competition (Knowledge Generation) ID 1985014
Adults with spinal cord injury/dysfunction (SCI/D) are commonly prescribed multiple medications to manage secondary complications. Significant challenges managing medications have been highlighted, with the need for more support with medication self-management. The objective of this study is to co-develop a toolkit to assist with medication self-management for persons with SCI/D. Adults with SCI/D, caregivers, and healthcare providers will participate in the three steps of concept mapping – brainstorming, sorting and rating, and mapping to identify key components of the toolkit. Participants will generate statements about what should be incorporated into a toolkit to help persons with SCI/D manage their medications. Participants will rate the final list of statements on importance and feasibility and sort the statements into thematic piles. A visual map will be developed by a subset of participants, representing the thematic piles. To date, participants have generated over 500 statements. Ideas generated around the content of the toolkit focus on information about: pharmacological and non-pharmacological options for managing secondary complications, side effects, communicating with providers, and medication access. Ideas specific to the delivery of the toolkit focus on: ensuring an individualized approach, accessibility, and the use of visuals. Statements will be synthesized for sorting and rating and mapping. Subsequent phases of this research will refine the toolkit through interviews and input from our working group. A mixed methods pilot evaluation will then be conducted to assess the feasibility, acceptability, and appropriateness of the toolkit, as well medication knowledge, self-efficacy, and quality of life.
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来源期刊
CiteScore
3.20
自引率
3.40%
发文量
33
期刊介绍: Now in our 22nd year as the leading interdisciplinary journal of SCI rehabilitation techniques and care. TSCIR is peer-reviewed, practical, and features one key topic per issue. Published topics include: mobility, sexuality, genitourinary, functional assessment, skin care, psychosocial, high tetraplegia, physical activity, pediatric, FES, sci/tbi, electronic medicine, orthotics, secondary conditions, research, aging, legal issues, women & sci, pain, environmental effects, life care planning
期刊最新文献
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