患者对精准医疗诊所的体验。

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES Journal of Patient Experience Pub Date : 2024-02-01 eCollection Date: 2024-01-01 DOI:10.1177/23743735241229384
David Barrett, Jovana Sibalija, Richard B Kim
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引用次数: 0

摘要

本研究旨在概述患者使用精准医疗(PM)诊所的经历,该诊所开展基于药物基因组学的药物不良反应(PGx)检测。研究旨在确定患者最看重的诊所特点以及需要改进的地方。研究采用纸质调查的方式收集数据。调查问题主要涉及患者对 PM 检测的看法以及诊所的整体体验。67 名患者完成了调查。使用 SPSS 对定量数据进行了分析,并报告了频率。对开放式回答进行了编码,并按主题进行了整理。患者表示,门诊服务增强了他们用药的信心。患者对工作人员的尊重感、接受教育和快速预约给予了高度评价。建议改进的方面包括加强诊所与患者之间的沟通、扩大诊所服务范围以及对其他医疗服务提供者进行教育。研究结果表明,患者体验不仅仅局限于所提供的临床护理。目前和未来潜在的 PM 提供者应投入时间和精力来配置其医疗服务系统,以提升患者体验。
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Patients' Experiences of a Precision Medicine Clinic.

The purpose of this study is to provide an overview of patients' experiences using a precision medicine (PM) clinic that conducts pharmacogenomics-based (PGx) testing for adverse drug reactions. The study aimed to identify the features of the clinic valued most by patients and areas for improvement. A paper survey was used to collect data. Survey questions focused on patients' perceptions of the PM testing and the overall clinic experience. Sixty-seven patients completed the survey. Quantitative data were analyzed using SPSS and frequencies were reported. Open-ended responses were coded and organized thematically. Patients reported that the clinic services increased confidence in their medication usage. Feeling respected by staff, receiving education, and quick appointments were highly valued by patients. Suggested areas for improvement included better communication from the clinic to patients, expansion of clinic services, and education for other healthcare providers. The findings demonstrate that patient experience goes beyond the clinical care provided. Current and potential future providers of PM should invest the time and energy to configure their care delivery system to enhance the patient experience.

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来源期刊
Journal of Patient Experience
Journal of Patient Experience HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.00
自引率
6.70%
发文量
178
审稿时长
15 weeks
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