"失踪人员":澳大利亚皇家老年护理委员会中失智症患者缺席的声音。

IF 0.6 Q2 LAW Journal of Law and Medicine Pub Date : 2023-12-01
Kristina Chelberg, Kate Swaffer
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引用次数: 0

摘要

本文认为,《澳大利亚皇家老年护理质量与安全委员会(RCAC)最终报告》中缺少痴呆症患者的声音。尽管皇家老年护理质量与安全委员会的明确任务是调查痴呆症护理问题,但报告中却没有提及痴呆症患者的声音。事实表明,皇家委员会的《最终报告》将老年护理系统中痴呆症患者的观点和经历边缘化,同时优先考虑专家、倡导者、家人和护理合作伙伴的替代声音。这种声音的缺失重复并重新将痴呆症患者定格为 "失踪者"。当痴呆症患者在参与公民和法律程序时面临实际和法律障碍时,RCAC 未能调整其方法以确保他们的声音被 "听到"。RCAC 将痴呆症患者边缘化的做法令人担忧其提出的痴呆症老年护理改革建议的合法性和成功性。
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"Missing Persons": Absent Voices of People with Dementia in the Australian Royal Commission into Aged Care.

This article argues the voice of people with dementia was missing from the Australian Royal Commission into Aged Care Quality and Safety (RCAC) Final Report. This absence was notwithstanding that the RCAC was explicitly tasked to inquire into dementia care. The RCAC Final Report is shown to marginalise the perspective and experience of people with dementia in the aged care system at the same time as prioritising substitute voices of experts, advocates, family and care partners. This absence of voice repeats and re-inscribes framing of people with dementia as "missing persons". Where people with dementia face practical and legal barriers to participate in civic and legal processes, the RCAC failed to adjust its methodologies to ensure their voices were "heard". The RCAC's re-inscription of marginalisation of people with dementia raises concerns for the legitimacy and success of its recommendations for dementia aged care reform.

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0.70
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