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Denial of Desire for Death in Dementia: Why Is Dementia Excluded from Australian Voluntary Assisted Dying Legislation? 拒绝痴呆症患者对死亡的渴望:为什么痴呆症被排除在澳大利亚自愿协助死亡立法之外?
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Amee Baird

Euthanasia in the form of Voluntary Assisted Dying (VAD) is legal in all Australian States, but current eligibility criteria preclude access to people with dementia. This article discusses Australian VAD eligibility criteria that are problematic for people with dementia: (1) time until death within 12 months, (2) decision-making capacity for VAD, and (3) determination of intolerable suffering. Legislation in the Netherlands allows VAD for people with dementia. The challenges and philosophical issues raised by such cases are explored. It is proposed that the unique nature of dementia in its various forms warrants the formulation of dementia-specific VAD eligibility criteria. A case could be brought to challenge the denial of access to VAD of people with dementia on the basis that their exclusion is discriminatory and an abuse of human rights. If such a challenge was successful, it could form a common law precedent to allow people with dementia access to VAD.

以自愿协助死亡(VAD)形式进行的安乐死在澳大利亚各州都是合法的,但目前的资格标准却不允许痴呆症患者使用。本文讨论了澳大利亚对痴呆症患者而言存在问题的 VAD 资格标准:(1)12 个月内的死亡时间,(2)VAD 的决策能力,以及(3)无法忍受的痛苦的判定。荷兰的立法允许对痴呆症患者进行 VAD。本文探讨了此类案例带来的挑战和哲学问题。建议根据痴呆症各种形式的独特性质,制定痴呆症专用的 VAD 资格标准。对于拒绝向痴呆症患者提供自愿性评估的做法,可以提出质疑,理由是将他们排除在外是一种歧视和对人权的践踏。如果这种质疑成功,就可以形成普通法先例,允许痴呆症患者获得自愿性评估。
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引用次数: 0
Insight and the Capacity to Refuse Treatment with Electroconvulsive Therapy. 洞察力和拒绝电休克疗法治疗的能力。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Russ Scott, Steve Prowacki

All Australian jurisdictions have statutory provisions governing the use of electroconvulsive therapy. Cases in which the patient lacks insight into their psychotic illness and need for treatment and refuses to have ECT are particularly poignant. In Re ICO [2023] QMHC 1, the Queensland Mental Health Court considered whether a patient with a treatment-resistant psychotic illness had decision-making capacity to refuse ECT. The Court also considered whether the patient had been provided with an adequate explanation of the proposed treatment including the expected benefits, risks and adverse effects of ECT. As well as deciding whether ECT was appropriate in the circumstances, the Court considered whether there were alternative treatments including another trial of the oral antipsychotic clozapine. This article reviews issues relating to lack of insight in persons with psychotic illness and relevant considerations for determining capacity to decline ECT.

澳大利亚所有司法管辖区都有关于使用电休克疗法的法律规定。病人对自己的精神病和治疗需求缺乏洞察力,拒绝接受电休克疗法的案例尤其令人痛心。在 Re ICO [2023] QMHC 1 一案中,昆士兰州精神卫生法院考虑了一名患有难治性精神病的患者是否具有拒绝电痉挛疗法的决策能力。法院还考虑了是否向患者充分解释了拟议的治疗,包括电痉挛疗法的预期益处、风险和不良反应。在决定电痉挛疗法在当时的情况下是否合适的同时,法院还考虑了是否有替代治疗方法,包括再次试用口服抗精神病药物氯氮平。本文回顾了与精神病患者缺乏洞察力有关的问题,以及在确定是否有能力拒绝电痉挛疗法时的相关考虑因素。
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引用次数: 0
Moving Genomics into the Clinic: Platforms for Implementing Clinical Genomic Data-Sharing in Ways That Address Ethical, Legal and Social Implications. 将基因组学引入临床:以解决伦理、法律和社会影响的方式实施临床基因组数据共享的平台。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Dianne Nicol, Margaret Otlowski, Keeley Reade, Natalie Thorne, Clara Gaff

This section explores the challenges involved in translating genomic research into genomic medicine. A number of priorities have been identified in the Australian National Health Genomics Framework for addressing these challenges. Responsible collection, storage, use and management of genomic data is one of these priorities, and is the primary theme of this section. The recent release of Genomical, an Australian data-sharing platform, is used as a case study to illustrate the type of assistance that can be provided to the health care sector in addressing this priority. The section first describes the National Framework and other drivers involved in the move towards genomic medicine. The section then examines key ethical, legal and social factors at play in genomics, with particular focus on privacy and consent. Finally, the section examines how Genomical is being used to help ensure that the move towards genomic medicine is ethically, legally and socially sound and that it optimises advances in both genomic and information technology.

本节探讨了将基因组研究转化为基因组医学所面临的挑战。澳大利亚国家健康基因组学框架》(Australian National Health Genomics Framework)确定了应对这些挑战的若干优先事项。负责任地收集、存储、使用和管理基因组数据是这些优先事项之一,也是本节的主要主题。本节以最近发布的澳大利亚数据共享平台 Genomical 为案例,说明可为医疗保健部门提供哪些类型的援助,以解决这一优先事项。本节首先介绍了《国家框架》和其他推动基因组医学发展的因素。然后,本节探讨了基因组学中的关键伦理、法律和社会因素,尤其关注隐私和同意问题。最后,本节探讨了如何利用 Genomical 来帮助确保基因组医学的发展在伦理、法律和社会方面都是合理的,并能优化基因组和信息技术的进步。
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引用次数: 0
Neurocognitive Disorders: Medical Illness or Mental Disorder: Examining the Mental Health and Wellbeing Act 2022 (Vic) Using Neurocognitive Disorders. 神经认知障碍:医学疾病还是精神障碍:审查《2022 年精神健康和福祉法》(维多利亚州)使用神经认知障碍。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Rohan Wee

Victoria has new legislation, the Mental Health and Wellbeing Act 2022 (Vic) (MHWA) to govern the care and treatment of people with mental illness that came into effect on 1 September 2023. It takes a human rights approach with a focus on person-centred care. The definition of mental illness encompasses conditions such as dementia even though it is rarely used to manage such conditions. How would the management of dementia and associated conditions change if these conditions were managed under the MHWA? This article uses dementia to examine the differences between the new MHWA, the Medical Treatment Planning and Decisions Act 2016 (Vic) and the Guardianship and Administration Act 2019 (Vic) and how the human rights approach taken by the MHWA might inform future directions in managing dementia.

维多利亚州制定了新的立法,即《2022 年精神健康与福利法》(MHWA),以规范精神疾病患者的护理 和治疗,该法于 2023 年 9 月 1 日生效。该法从人权角度出发,注重以人为本的护理。精神疾病的定义包括痴呆症等病症,尽管它很少用于管理这类病症。如果痴呆症及相关病症按照《精神健康和福利法》进行管理,那么对这些病症的管理将会发生怎样的变化?本文以痴呆症为切入点,探讨新的《医疗福利法》、《2016年医疗治疗规划与决定法》(维州)和《2019年监护与管理法》(维州)之间的差异,以及《医疗福利法》所采取的人权方法如何为痴呆症的未来管理方向提供参考。
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引用次数: 0
The Commonwealth Criminal Code: Will It Restrict Access to Voluntary Assisted Dying in South Australia And Is There a Way Forward? 联邦刑法典》:它是否会限制南澳大利亚州的自愿协助死亡服务?
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Julia Matteo, Michaela Okninski

South Australia's Voluntary Assisted Dying Act 2021 commenced operation on 31 January 2023. However, ss 474.29A and 474.29B of the Criminal Code Act 1995 (Cth) prohibit the use of "carriage services" to promote or provide instructions about suicide and may impede access to voluntary assisted dying (VAD). Attempts to clarify whether VAD is suicide have been unsuccessful and doctors risk prosecution if they use telehealth to participate in VAD. This article examines specific steps in the VAD pathway that are likely to breach the federal law. Although there have been attempts to clarify what information can permissibly be discussed using a carriage service, doctors risk breaching the federal law at multiple stages of the VAD process. This article concludes arguing that this conflict of laws must be resolved and calls upon the Commonwealth Government to amend the Criminal Code to exclude VAD from the definition of suicide.

南澳大利亚州的《2021 年自愿协助死亡法》于 2023 年 1 月 31 日开始实施。然而,《1995 年刑法法案》(澳大利亚联邦)第 474.29A 和 474.29B 条禁止使用 "运输服务 "宣传或提供自杀指导,这可能会阻碍自愿协助死亡(VAD)的获得。试图澄清自愿协助死亡是否属于自杀的努力一直未获成功,医生如果使用远程医疗参与自愿协助死亡,将面临被起诉的风险。本文探讨了 VAD 过程中可能违反联邦法律的具体步骤。尽管已经试图澄清哪些信息可以允许使用车载服务进行讨论,但医生在自愿去死(VAD)过程的多个阶段都有可能违反联邦法律。本文最后指出,这种法律冲突必须得到解决,并呼吁联邦政府修订《刑法典》,将 VAD 排除在自杀定义之外。
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引用次数: 0
Cystic Fibrosis and the Law: The Ramifications of New Treatments. 囊性纤维化与法律:新疗法的影响。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Ian Freckelton

Until the discovery of the gene for cystic fibrosis (CF) in 1989, diagnostic developments were limited, and treatment focused on symptom alleviation. However, following the genetic breakthrough, some 2,000 mutations of the gene have been identified. More recently CF transmembrane conductance regulator modulator triple therapy (CFTRm) has been introduced in the form of triple therapy with ivacaftor, lumacaftor and tezacaftor (ETI), in the United States from 2019, Europe from 2020 and then Australia from 2021. The new treatment option has revolutionised both the quality of life and life expectancy of many persons diagnosed with CF. This editorial reviews major developments in the clinical care that can now be provided to patients, and reflects on the legal and ethical ramifications of the improved situation for many patients in the contexts of medical negligence, damages assessment, family law and criminal law. It also considers the difficult issues of access and equity caused by the limited availability of the triple therapy in low- and middle-income countries.

在囊性纤维化(CF)基因于 1989 年被发现之前,诊断方面的发展十分有限,治疗主要集中在减轻症状上。然而,在基因突破之后,已经发现了大约 2000 种基因突变。最近,CF跨膜传导调节器三联疗法(CFTRm)以伊伐卡夫托(ivacaftor)、鲁马卡夫托(lumacaftor)和特扎卡夫托(tezacaftor)(ETI)三联疗法的形式,从2019年起在美国、2020年起在欧洲、2021年起在澳大利亚上市。新的治疗方案彻底改变了许多确诊为 CF 患者的生活质量和预期寿命。这篇社论回顾了现在可以为患者提供的临床治疗的主要发展,并从医疗过失、损害评估、家庭法和刑法的角度反思了对许多患者而言情况改善所带来的法律和伦理影响。报告还考虑了由于中低收入国家三联疗法的供应有限而造成的难以获得和公平的问题。
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引用次数: 0
Informed Consent and the Duty to Warn: More than the Mere Provision of Information. 知情同意与警告义务:不仅仅是提供信息。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Rajesh Gounder

Before providing any form of medical treatment, medical practitioners are generally required to discharge their duty to warn. It is argued in this article that the duty to warn, at least as it relates to frail and elderly patients, requires the principles of shared decision-making to be adopted. Doing so will ensure a comprehensive biopsychosocial understanding of the patient and assist in identifying material risks that may not be readily apparent. Such risks include risks that threaten the patient's values, preferences, treatment aims and long-term outcomes. Once such risks are identified, in discharging the duty to warn, they should be contextualised in a manner that makes clear how that risk will manifest in that particular patient. These risks should then also be synthesised within the context of their other medical issues and longer-term interests. Finally, it is suggested that the traditional consent process may need restructuring.

在提供任何形式的医疗之前,医生一般都必须履行警告义务。本文认为,至少在涉及年老体弱的病人时,警告义务要求采用共同决策的原则。这样做可以确保对患者的生物-心理-社会有一个全面的了解,并有助于识别可能不容易察觉的重大风险。这些风险包括威胁患者价值观、偏好、治疗目标和长期疗效的风险。一旦识别出这些风险,在履行警告义务时,就应将其与具体情况结合起来,明确说明该风险在特定患者身上的表现形式。然后,还应将这些风险与患者的其他医疗问题和长期利益结合起来。最后,建议对传统的同意程序进行调整。
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引用次数: 0
Recent Australian Legislative Developments in the Regulation of Assisted Reproductive Technology. 澳大利亚在辅助生殖技术监管方面的最新立法发展。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Malcolm Smith

This section considers the recent resurgence of regulatory interest in the field of assisted reproductive technology (ART) practices focusing on the new legislative framework in the Australian Capital Territory (ACT). It provides an overview of the Australian regulatory framework in this field and considers how the new legislation in the ACT sits alongside this framework. A detailed overview of the key provisions of the ACT legislation is provided, before considering whether the legislation goes far enough in addressing some of the more controversial issues in the field of ART.

本节探讨了近期辅助生殖技术(ART)实践领域再度兴起的监管兴趣,重点是澳大利亚首都地区(ACT)的新立法框架。本节概述了澳大利亚在这一领域的监管框架,并探讨了澳大利亚首都直辖区的新立法如何与这一框架并行不悖。报告详细概述了澳大利亚首都直辖区立法的主要条款,然后审议了该立法在解决 ART 领域一些更具争议性的问题方面是否走得足够远。
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引用次数: 0
Safe Access Zone Legislation and Its Compliance with the Human Rights of Anti-Abortion Protesters in Australia. 安全进入区立法及其与澳大利亚反堕胎抗议者人权的一致性。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Kerstin Braun, Sarah Butcher

Terminating a pregnancy is now lawful in all Australian jurisdictions, although on diverse bases. While abortions have not been subject to the same degree of heated debate in Australia as elsewhere, protests aimed at persuading women not to have a termination of their pregnancy have occurred outside abortion service providers in the past. Over the last decade, this has led to the introduction of laws setting out so-called safe access zones around provider premises. Anti-abortion protests are prohibited within a specific distance from abortion services and infringements attract criminal liability. As safe access zone laws prevent protesters from expressing their views in certain spaces, the question arises as to the laws' compliance with protesters' human rights. This article analyses this by considering the human rights compliance of the Queensland ban in light of Queensland human rights legislation. It concludes that the imposed prohibition of anti-abortion protests near abortion clinics is compatible with human rights.

终止妊娠目前在澳大利亚所有司法管辖区都是合法的,尽管依据各不相同。虽然堕胎在澳大利亚没有像在其他地方那样引起激烈的争论,但过去在堕胎服务机构外也曾发生过旨在劝说妇女不要终止妊娠的抗议活动。在过去的十年中,这促使澳大利亚出台了相关法律,在堕胎服务机构周围设立了所谓的 "安全准入区"。禁止在距离堕胎服务机构一定距离内举行反堕胎抗议活动,违者将承担刑事责任。由于安全准入区法律禁止抗议者在特定空间表达自己的观点,因此出现了这些法律是否符合抗议者人权的问题。本文根据昆士兰州的人权立法,对昆士兰州禁令的人权合规性进行了分析。文章的结论是,禁止在堕胎诊所附近举行反堕胎抗议活动符合人权。
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引用次数: 0
Media, Advertising and Inventing (Anna)rexia. 媒体、广告和发明(安娜)雷夏。
IF 0.6 Q2 LAW Pub Date : 2024-06-01
Rojina Parchizadeh, Marilyn Bromberg

Too many Australians suffer from poor body image and eating disorders. The Israeli, French and Norwegian Governments have created body image legislation to try to address this: it responds to concerns that the countless images of thin women people see can contribute to poor body image. By contrast, Australia does not have a Body Image Law: it has a voluntary code that the advertising industry generally does not follow. This article argues that Australia should enact a Body Image Law that reflects health evidence that body image needs to be improved. The Body Image Law would require disclaimers on images that were not retouched, create a specialised government body to evaluate images and attract civil penalties for breaching it. The authors believe that this is the first Australian article to suggest an Australian Body Image Law of this kind.

有太多的澳大利亚人受到不良身体形象和饮食失调的困扰。以色列、法国和挪威政府制定了身体形象法,试图解决这一问题:这是为了回应人们的担忧,即人们看到的无数瘦弱女性形象可能会导致不良的身体形象。相比之下,澳大利亚却没有制定《身体形象法》:它有一个广告业通常不遵守的自愿守则。本文认为,澳大利亚应该制定一部《身体形象法》,以反映身体形象需要改善的健康证据。身体形象法》将要求在未经修饰的图片上注明免责声明,建立一个专门的政府机构来评估图片,并对违反该法的行为进行民事处罚。作者认为,这是澳大利亚第一篇建议制定此类《澳大利亚身体形象法》的文章。
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引用次数: 0
期刊
Journal of Law and Medicine
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