"停止强加给我们":对加拿大安宁疗护缓和医疗志愿服务中的民族文化因素进行批判性审视。

IF 1.6 Q2 SOCIAL WORK Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-02-28 DOI:10.1080/15524256.2024.2321522
Cheryl-Anne Cait, Ginette Lafreniere
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引用次数: 0

摘要

志愿者是安宁疗护项目的基础。本研究的目的是探讨安大略省西南部的社会、种族和人口变化,并了解这可能会如何影响志愿者的招募和代表性。研究人员与安宁疗护志愿者、来自民族文化社区领袖的关键信息提供者以及安宁疗护工作人员进行了访谈和焦点小组讨论。访谈中的定性数据分五个阶段进行了主题分析。研究结果表明,民族文化对临终关怀的理解可能与西方化的、以欧洲为中心的临终关怀理念大相径庭。研究发现,系统性和结构性障碍、信息共享、志愿者动机和代表性会影响安宁疗护姑息关怀中的民族文化志愿者招募。通过批判性分析,我们发现了以欧洲民族为中心的安宁疗护姑息关怀模式的 "强加",这种模式阻碍了安宁疗护姑息关怀对民族文化群体的招募,也阻碍了他们参与安宁疗护姑息关怀。要在以白人/西方人为主的关怀模式与民族文化种族化社区之间架起桥梁,需要不断沟通、建立关系,以及代表主流模式相互学习的决心。这项研究对加拿大不同地区提供安宁疗护姑息关怀以及希望提高民族文化可及性和招募安宁疗护姑息关怀志愿者具有重要意义。
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"Stop Imposing on Us": A Critical Examination of Ethnocultural Considerations in the Canadian Volunteer Hospice Palliative Care Landscape.

Volunteers are foundational in hospice programs. The purpose of this research was to address social, ethnic and demographic changes in Southwestern Ontario and understand how this may affect volunteer recruitment, and representation. Interviews and focus groups were conducted with hospice volunteers, key informants from leaders in ethnocultural communities, and hospice staff. Qualitative data from the interviews was analyzed using thematic analysis in five phases. Findings suggest ethnocultural interpretations of hospice can be very different than Westernized, Eurocentric ideas around end-of-life care. Systemic and structural barriers, information sharing, volunteer motivation and representation were found to influence and impact ethnocultural volunteer recruitment in hospice palliative care. Using a critical analysis allows us to identify the "imposition" of a Euro-ethnocentric hospice palliative care model that prevents recruitment of and impedes access of ethnocultural groups to hospice palliative care. To build bridges across predominantly White/Western models of care to ethnocultural racialized communities requires constant communication, relationship building, and determination in mutuality of learning on behalf of the dominant model. This research has implications for different regions of Canada providing hospice palliative care and hoping to increase ethnocultural accessibility and volunteer recruitment for hospice palliative care.

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来源期刊
CiteScore
2.60
自引率
12.50%
发文量
28
期刊介绍: The Journal of Social Work in End-of-Life & Palliative Care, now affiliated with the Social Work in Hospice and Palliative Care Network, explores issues crucial to caring for terminally ill patients and their families. Academics and social work practitioners present current research, articles, and continuing features on the "state of the art" of social work practice, including interdisciplinary interventions, practice innovations, practice evaluations, end-of-life decision-making, grief and bereavement, and ethical and moral issues. The Journal of Social Work in End-of-Life & Palliative Care combines theory and practice to facilitate an understanding of the multi-level issues surrounding care for those in pain and suffering from painful, debilitating, and/or terminal illness.
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