巴伐利亚州的肿瘤心理自助小组:现状与改进建议。

IF 2 4区 医学 Q3 ONCOLOGY Oncology Research and Treatment Pub Date : 2024-01-01 Epub Date: 2024-03-08 DOI:10.1159/000538248
Marietta Lieb, Martina Madl, Martin Vogelhuber, Matthias W Beckmann, Yesim Erim
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引用次数: 0

摘要

背景:自助小组(SHGs)是德国医疗保健系统的重要基石。特别是自助团体与癌症中心的合作使患者能够积极参与癌症治疗。我们调查了巴伐利亚州自助团体的现状和未满足的需求,以指出可能的行动方案:我们对巴伐利亚肿瘤心理自助团体进行了横向研究。我们通过电子邮件向在巴伐利亚癌症研究中心(BZKF)注册的 150 个自助团体发送了在线调查问卷。我们对自助团体的活动和需求以及与癌症中心合作的性质进行了评估。我们重点关注了在 COVID-19 大流行期间的适应情况以及将移民纳入其中的情况:46个(33.66%)自助团体参加了调查,36个(24%)完成了问卷。在 COVID-19 大流行期间,50% 的自助团体减少了会议。22.7% 的小组改用了在线会议或其他形式(43.2%)。20.9% 的自助团体与癌症中心定期举行会议,23.1% 与肿瘤心理科定期举行会议。由于缺乏信息、可用性和等待时间长,51.2% 的人对肿瘤心理服务的评价为中性或不满意。自助团体表示需要干预措施(应对策略、数字应用程序等)、信息和更好的沟通。为克服不平等所做的努力似乎很少:只有 13.6% 的自助团体和 16.2% 的癌症中心为移民提供服务:本研究概述了巴伐利亚自助团体目前的活动和需求。为提高患者满意度,今后的治疗目标应包括实施患者指南、提供全面的信息资料和低门槛的肿瘤心理服务。此外,还应对移民的服务需求进行更详细的调查。
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Psycho-Oncological Self-Help Groups in Bavaria: The Current Situation and Suggestions for Improvement.

Background: Self-help groups (SHGs) are an important cornerstone of the German health care system. Especially collaborations of SHGs with cancer centers enable active patient involvement in cancer care. We investigated the current situation and unmet needs of Bavarian SHGs in order to point out possible options of action.

Methods: We conducted a cross-sectional study with Bavarian psycho-oncological SHGs. Via e-mail, an online survey was sent to 150 SHGs registered at the BZKF (Bavarian Cancer Research Center). We assessed activities and needs of the SHGs as well as the nature of collaborations with cancer centers. We focused on adaptations during the COVID-19 pandemic and the inclusion of migrants.

Results: 46 (33.66%) SHGs participated, while 39 (84.78%) completed the questionnaire. During the COVID-19 pandemic, 50% of the SHGs reported less meetings. 22.7% changed to online meetings or other formats (43.2%). 20.9% of the SHGs had regular meetings with the cancer center, and 23.1% with the psycho-oncology. 51.2% evaluated the psycho-oncological services as neutral to dissatisfying due to lack of information, availability, and long waiting times. The SHGs indicated needs concerning interventions (coping strategies, digital applications, etc.), information, and better communication. Efforts for overcoming inequalities seemed rare: only 13.6% of the SHGs and 16.2% of the cancer centers had services for migrants.

Conclusions: This study gave an overview of current activities and needs of Bavarian SHGs. The implementation of patient guides, comprehensive information material, and low-threshold psycho-oncological services should be objectives in future care to increase patient satisfaction. The needs for services for migrants should be investigated in more detail.

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来源期刊
CiteScore
3.20
自引率
0.00%
发文量
84
期刊介绍: With the first issue in 2014, the journal ''Onkologie'' has changed its title to ''Oncology Research and Treatment''. By this change, publisher and editor set the scene for the further development of this interdisciplinary journal. The English title makes it clear that the articles are published in English – a logical step for the journal, which is listed in all relevant international databases. For excellent manuscripts, a ''Fast Track'' was introduced: The review is carried out within 2 weeks; after acceptance the papers are published online within 14 days and immediately released as ''Editor’s Choice'' to provide the authors with maximum visibility of their results. Interesting case reports are published in the section ''Novel Insights from Clinical Practice'' which clearly highlights the scientific advances which the report presents.
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