接受血液透析的终末期肾病患者的爪哇文化信仰和习俗。

IF 1.2 4区 医学 Q3 NURSING Journal of Transcultural Nursing Pub Date : 2024-07-01 Epub Date: 2024-03-25 DOI:10.1177/10436596241239304
Ira Suarilah, Ika Yuni Widyawati, Khotibul Umam, Chiu-Chu Lin, Rini Purwanti, Supriyono Supriyono, Klaus Mundt
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引用次数: 0

摘要

导言:慢性肾脏病预后不良和死亡率较高与文化信仰和习俗有关。本研究探讨了接受血液透析≥5 年的爪哇终末期肾病患者的文化信仰和习俗。研究方法本研究采用定性叙事调查法。通过深度叙事访谈收集数据,然后通过短信、电话和视听通话收集数据,为期 6 周。结果14 名参与者的平均年龄为 51.15 岁,血液透析时间为 5 年 2 个月至 10 年 9 个月。出现了四个主题:接受生死、期待临终关怀、考虑退出血液透析以及希望有一个美好的死亡。讨论:生命价值观指导着个人的生存能力。在一些场合,如社交聚会,坚持肾病治疗方案与文化价值观发生冲突。因此,应采用跨文化方法来改变个人健康行为,满足患者未得到满足的需求。
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The Javanese Cultural Beliefs and Practices Among Patients With End-Stage Renal Disease Undergoing Hemodialysis.

Introduction: Poor prognosis and higher mortality of chronic kidney disease are linked with cultural beliefs and practices. This study explored cultural beliefs and practices of Javanese people with end-stage renal disease undergoing hemodialysis for ≥5 years. Methods: A qualitative narrative inquiry was applied in this study. Data were collected through in-depth narrative interviews, followed by text messages, calls, and audio-visual calls for 6 weeks. Results: There were 14 participants; their mean age was 51.15 years and hemodialysis duration was 5 years and 2 months up to 10 years and 9 months. Four themes emerged: life-and-death acceptance, expectation of end-of-life care, contemplation of withdrawal from hemodialysis, and wishing for a good death. Discussion: Life values guided the ability to survive for the individual. Adherence to renal disease management regimen clashed with cultural values on occasions, such as social gatherings. Therefore, the unmet needs of patients should be addressed with a transcultural approach to modify personal health behaviors.

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来源期刊
CiteScore
4.60
自引率
4.80%
发文量
80
审稿时长
>12 weeks
期刊介绍: Journal of Transcultural Nursing (TCN) is a peer-reviewed journal that offers nurses, educators, researchers, and practitioners theoretical approaches and current research findings that have direct implications for the delivery of culturally congruent health care and for the preparation of health care professionals who will provide that care. This journal is a member of the Committee on Publication Ethics (COPE).
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