输血发生率和社会人口统计学与地中海贫血症父母焦虑水平的关系

Thalassemia Major, Parents Safyudin, Dita Tri Ramadianti, Liniyanti D. Oswari, Eka Handayani Oktharina
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引用次数: 0

摘要

简介地中海贫血是一种常染色体隐性遗传性贫血,血红蛋白合成障碍导致血红蛋白量减少和贫血。患者的常规输血和父母的社会人口因素会加重患者父母的心理负担。本研究调查了巴伦邦皇家医学院附属医院(RSMH Palembang)小儿重型地中海贫血症患者输血发生率和家长社会人口学因素与家长焦虑程度之间的关系。本研究采用横断面研究设计的观察分析方法。研究方法本研究采用观察分析法和横断面研究设计。本研究由 42 名受访者组成。本研究使用了通过访谈和填写 Z-SAS 问卷获得的第一手数据,以及通过医疗记录获得的第二手数据。研究结果在地中海贫血重症患儿中,每月输血 1 英镑的比例为 40.5%。从社会人口统计学来看,81%的受访者为女性,26.2%的受访者受教育程度较低,28.6%的受访者处于成年早期,61.9%的受访者收入较低,81%的受访者有一个孩子,14.3%的受访者有1英镑的重型地中海贫血患儿。结果显示,焦虑程度以正常/不焦虑(72.8%)和轻度焦虑(26.2%)为主。(P值= 0.305; 0.174; 1.00; 0.095; 0.158; 0.657; 0.644)。结论地中海贫血患儿的输血发生率与巴伦邦皇家医疗中心地中海贫血患儿家长的社会人口学和焦虑水平之间没有关系。
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Blood Transfusion Incidence and Sociodemographics Relationship with Anxiety Levels of Thalassemia Major Parents
Introduction. Thalassemia is inherited anemia in an autosomal recessive manner with a disruption in hemoglobin synthesis that causes a decreased amount of hemoglobin and anemia. Routine blood transfusions carried out by sufferers and parents' sociodemographic factors can cause an increased psychological burden on the patient's parents. This study investigated the relationship between the incidence of blood transfusions in pediatric patients and parents' sociodemographics with the anxiety level of parents in pediatric thalassemia major patients at RSMH Palembang. This study used an observational analytical method with a cross-sectional study design. Methods. This study used an observational analytical method with a cross-sectional study design. This study consisted of 42 respondents. This study used primary data from interviews and filling out the Z-SAS questionnaire and secondary data from medical records. Results. The distribution of blood transfusion found in thalassemia major children who had transfusions £1 time/month was 40.5%. Based on sociodemographics, 81% of respondents were women, 26.2% had a low level of education, 28.6% were in early adulthood, 61.9% had less income, 81% had 1 child, and 14.3% had thalassemia Major children diagnosed £1 year. The level of anxiety that dominated the results was normal/not anxious (72.8%) and mild anxiety (26.2%). (P Value= 0.305; 0.174; 1.00; 0.095; 0.158; 0.657; 0.644). Conclusion. There was no relation between blood transfusion incidence in children with thalassemia major and sociodemographic of parents with anxiety levels of children with thalassemia major parents in RSMH Palembang.
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