神经肿瘤学中以家庭为中心的护理模式转变:纵向准实验混合方法可行性研究》。

IF 2.6 3区 医学 Q1 FAMILY STUDIES Journal of Family Nursing Pub Date : 2024-05-01 Epub Date: 2024-03-26 DOI:10.1177/10748407241236678
Karin Piil, Giulia Locatelli, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden
{"title":"神经肿瘤学中以家庭为中心的护理模式转变:纵向准实验混合方法可行性研究》。","authors":"Karin Piil, Giulia Locatelli, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden","doi":"10.1177/10748407241236678","DOIUrl":null,"url":null,"abstract":"<p><p>Family-centered intervention can help families facing illness-related issues. We investigated the feasibility of Family and Network Conversations (FNCs) in high-grade glioma patients and their families. Quasi-experimental feasibility study with longitudinal mixed-methods design. Patients and families were invited to three FNCs over 1 year. They completed questionnaires at four time points and expressed their perspectives on the intervention through telephone interviews. Nurses' perspectives were collected in a focus group. Twenty-one patients and 47 family members were included. On average, patients were 66 years old, mainly male, married, living with caregivers, with unifocal cancer. On average, caregivers were 47 years old, mainly female, being spouses or children of the patient. Quantitative and qualitative data did not always match and expanded each other. Nurse-delivered FNCs holistically addressed families' needs while strengthening family's dialogue and union. Nurses felt empowered, underling that advanced competencies were required. Nurse-delivered FNCs are feasible to provide family-centered care, but they should be tailored to each family's needs.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":null,"pages":null},"PeriodicalIF":2.6000,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A Shifting Paradigm Toward Family-Centered Care in Neuro-Oncology: A Longitudinal Quasi-Experimental Mixed-Methods Feasibility Study.\",\"authors\":\"Karin Piil, Giulia Locatelli, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden\",\"doi\":\"10.1177/10748407241236678\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Family-centered intervention can help families facing illness-related issues. We investigated the feasibility of Family and Network Conversations (FNCs) in high-grade glioma patients and their families. Quasi-experimental feasibility study with longitudinal mixed-methods design. Patients and families were invited to three FNCs over 1 year. They completed questionnaires at four time points and expressed their perspectives on the intervention through telephone interviews. Nurses' perspectives were collected in a focus group. Twenty-one patients and 47 family members were included. On average, patients were 66 years old, mainly male, married, living with caregivers, with unifocal cancer. On average, caregivers were 47 years old, mainly female, being spouses or children of the patient. Quantitative and qualitative data did not always match and expanded each other. Nurse-delivered FNCs holistically addressed families' needs while strengthening family's dialogue and union. Nurses felt empowered, underling that advanced competencies were required. Nurse-delivered FNCs are feasible to provide family-centered care, but they should be tailored to each family's needs.</p>\",\"PeriodicalId\":50193,\"journal\":{\"name\":\"Journal of Family Nursing\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.6000,\"publicationDate\":\"2024-05-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Family Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/10748407241236678\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/3/26 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"FAMILY STUDIES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Family Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/10748407241236678","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/3/26 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"FAMILY STUDIES","Score":null,"Total":0}
引用次数: 0

摘要

以家庭为中心的干预可以帮助面临疾病相关问题的家庭。我们调查了家庭与网络对话(FNCs)在高级别胶质瘤患者及其家庭中的可行性。采用纵向混合方法设计的准实验可行性研究。患者和家属应邀参加了为期一年的三次 FNC。他们在四个时间点填写了调查问卷,并通过电话访谈表达了对干预措施的看法。焦点小组收集了护士的观点。共有 21 名患者和 47 名家属参与其中。患者平均年龄为 66 岁,主要为男性,已婚,与护理人员同住,患有单灶癌症。护理人员平均 47 岁,主要为女性,是患者的配偶或子女。定量和定性数据并不总是相互匹配和扩展。护士提供的 FNC 全面解决了家庭的需求,同时加强了家庭的对话和联合。护士感到自己有了权力,并强调需要具备高级能力。护士提供的 FNCs 可以提供以家庭为中心的护理,但应根据每个家庭的需求量身定制。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
A Shifting Paradigm Toward Family-Centered Care in Neuro-Oncology: A Longitudinal Quasi-Experimental Mixed-Methods Feasibility Study.

Family-centered intervention can help families facing illness-related issues. We investigated the feasibility of Family and Network Conversations (FNCs) in high-grade glioma patients and their families. Quasi-experimental feasibility study with longitudinal mixed-methods design. Patients and families were invited to three FNCs over 1 year. They completed questionnaires at four time points and expressed their perspectives on the intervention through telephone interviews. Nurses' perspectives were collected in a focus group. Twenty-one patients and 47 family members were included. On average, patients were 66 years old, mainly male, married, living with caregivers, with unifocal cancer. On average, caregivers were 47 years old, mainly female, being spouses or children of the patient. Quantitative and qualitative data did not always match and expanded each other. Nurse-delivered FNCs holistically addressed families' needs while strengthening family's dialogue and union. Nurses felt empowered, underling that advanced competencies were required. Nurse-delivered FNCs are feasible to provide family-centered care, but they should be tailored to each family's needs.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
4.00
自引率
9.70%
发文量
40
审稿时长
>12 weeks
期刊介绍: Journal of Family Nursing (JFN) is a peer-reviewed, quarterly journal of nursing research, practice, education, and policy issues, as well as empirical and theoretical analyses on the subject of family health. Its interdisciplinary, international, and collaborative perspectives examine cultural diversity and families across the life cycle. This journal is a member of the Committee on Publication Ethics (COPE).
期刊最新文献
Family Nursing Network Caring for Families of Patients With Acquired Brain Injury Early During Hospitalization: A Feasibility Study of the SAFIR© Intervention What Is the Most Compelling Global Family Nursing Clinical Skill? Curious Compassion. Barriers and Facilitators to Youth Decision-Making Involvement in Families Referred for Stem Cell Transplant. The Impact of the COVID-19 Pandemic on the Paternal Parenting Experience: A Scoping Review.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1