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Managing Expectations: Understanding Parents' Perceptions of Their Child's Serious Illness.
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2025-01-15 DOI: 10.1177/10748407241290305
Katherine Patterson Kelly, Kim Mooney-Doyle, Mia Waldron, Kathleen A Knafl

Parenting a seriously ill child is complex and emotionally intense. To further develop Hinds and colleagues' Good Parent themes: "Keeping a Positive Outlook" and "Keeping a Realistic Outlook," we reviewed grounded theories published in English language journals from January 2006 to April 2021 identifying 18 studies with relevant results. Parents' efforts to keep a positive outlook included cognitive (e.g., remain hopeful, avoid negative thinking) and behavioral (e.g., monitoring child for signs of improvement, information seeking) actions. To keep a realistic outlook, parents acknowledged the serious nature of the condition, negative treatment effects, and limitations to treating the child normally. Parents holding both positive and realistic outlooks recognized the seriousness of their child's illness and remained hopeful while preparing for their child's death. Our analysis extends the understanding of how parents' expectations regarding the course and outcome of their child's illness shape cognitive and behavioral aspects of their parenting.

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引用次数: 0
Ushering a Witness: A Psychosocial Theory of Maternal Intrafamily Trauma Communication in the Refugee Family System.
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-12-21 DOI: 10.1177/10748407241301369
Sarah J Hoffman, Windy M Fredkove, Maria M Vukovich, Elaine Hsieh, Hsa Moo, Kaziah Josiah, Zamzam Dini

The ways that families communicate about traumatic experiences is a critical social process. Intrafamily trauma communication encompasses approaches through which family members share and respond to difficult past experiences. We examined the embedded communication processes and actions of war-affected Karen maternal caregivers living post-resettlement in the United States, as they described disclosures of torture and war trauma experiences to their children. Using a modified approach to a constructivist-oriented grounded theory, we analyzed 33 in-depth qualitative interviews. Narrative experiences of mothers and synthesized storylines shaped a psychosocial theory of maternal intrafamily trauma communication, Ushering a Witness. The core category was depicted by the coalescence of three distinct conceptual, temporal phases and corresponding properties: (a) Appraising: Communication decision-making, (b) (Co-)Constructing: Act of communicating, and (c) Amending: Developing awareness and reevaluating purpose, response, and approach to communication. Findings will facilitate further exploration of the relationships between the intergenerational effects of trauma and intergenerational communication.

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引用次数: 0
Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence. 家庭护理者与护士沟通对长期依赖呼吸机儿童护理的家庭管理和家庭护理者不确定性的影响。
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-11-03 DOI: 10.1177/10748407241290300
Barbara K Giambra, Kathleen Knafl, Stephen Haas, Yin Zhang, Nanhua Zhang, Rita H Pickler, Maria T Britto

Nurses caring for hospitalized children with long-term ventilator dependence (LTVD) assess family management capability and teach new skills through communication with family caregivers. This theoretically-based quantitative, descriptive study aimed to determine the communication behaviors associated with family caregiver uncertainty and management of the child with LTVD's care after discharge. One hundred families and 48 nurses enrolled. Family caregiver-nurse conversations were recorded and transcripts coded for communication behaviors. Family management and uncertainty data were gathered during hospitalization and after discharge. Data analysis included correlations and linear mixed models. Family caregivers and nurses used advocating and negotiating roles communication behaviors least frequently; however, these communication behaviors were associated with the most aspects in terms of uncertainty about the child's condition and ease of management of the child's care after discharge to home. Nurses should assess family caregiver ease in managing care, provide support, and engage in collaborative problem-solving through respectful communication.

护理长期呼吸机依赖(LTVD)住院患儿的护士会评估家庭管理能力,并通过与家庭护理人员的沟通传授新技能。这项以理论为基础的定量描述性研究旨在确定与长期呼吸机依赖患儿出院后家庭护理不确定性和管理相关的沟通行为。100 个家庭和 48 名护士参加了研究。研究人员记录了家庭护理者与护士的对话,并对对话记录进行了沟通行为编码。在住院期间和出院后收集家庭管理和不确定性数据。数据分析包括相关性和线性混合模型。家庭照顾者和护士使用倡导和协商角色沟通行为的频率最低;然而,这些沟通行为与患儿病情的不确定性和出院回家后患儿护理管理的难易程度相关联。护士应评估家庭护理者在管理护理方面的难易程度,提供支持,并通过相互尊重的沟通方式共同解决问题。
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引用次数: 0
Report of the sixth Nordic Family Health and Care Conference 2024: Sharing Interdisciplinary Work to Improve the Health and Well-Being of Families. 2024 年第六届北欧家庭健康与护理会议报告:分享跨学科工作,改善家庭健康和福祉。
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-11-01 Epub Date: 2024-11-25 DOI: 10.1177/10748407241297234
C S Rothausen, A M Clausen, H Agerskov, D Bekker-Jensen, L Birkelund, M L Kidholm, L Kvorning, J Marcussen, H S Poulsen, A D Sorknaes, S S Voetmann, B Voltelen, K B Dieperink
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引用次数: 0
Fathers' Ongoing Journey When a Child in the Family Has a Chronic Condition: A Meta-Synthesis. 当家中儿童患有慢性疾病时,父亲的持续旅程:元综合。
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-11-01 Epub Date: 2024-11-25 DOI: 10.1177/10748407241290308
Cynthia A Danford, Karyn J Roberts, Mandie J Foster, Barbara Giambra, Shelley Spurr, Naiara Barros Polita, Debbie Sheppard-LeMoine, Willyane de Andrade Alvarenga, Patricia Beierwaltes, Francine de Montigny, Stacee M Lerret, Lucila Castanheira Nascimento, Michele Polfuss, Caroline Renée, Susan Sullivan-Bolyai, Suja Somanadhan, Lindsay Smith

This qualitative meta-synthesis was conducted with the aim to understand fathers' experiences and involvement when their child has a chronic condition within family context. Family nurse researchers from five countries identified 19 studies through a systematic search. Inclusion criteria were: (a) fathers as primary informant; (b) children (<19 years) with a chronic condition; (c) written in English, Spanish, French, or Portuguese. Data were synthesized using thematic analysis. Four themes reflected fathers' journey: "Juggling multiple roles" included protector, provider, and supporter; "Managing control" included relinquishing and regaining control; "Creating a new normal" addressed recovery; "Maintaining wellbeing" reflected multiple emotional responses and support found through partners, family, spirituality, and health care communities. Fathers desire to be involved in caring for their child with a chronic condition, yet involvement and experience are continually evolving due to various family needs. Health care providers should consider unconscious assumptions regarding fathers' role in child care and encourage fathers' involvement to facilitate family wellbeing.

这项定性荟萃研究旨在了解父亲在子女患有慢性疾病时在家庭环境中的经历和参与情况。来自五个国家的家庭护士研究人员通过系统搜索确定了 19 项研究。纳入标准为(a) 以父亲为主要信息提供者;(b) 子女(不包括父亲);(c) 子女(不包括父亲)。
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引用次数: 0
Collaborative Online International Learning With Prelicensure Nursing Students: Teaching Family-Centered Care Through a Global Perspective. 与执照前护理专业学生合作开展在线国际学习:通过全球视角教授以家庭为中心的护理。
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-11-01 Epub Date: 2024-10-20 DOI: 10.1177/10748407241290304
Beth Cosgrove, Lisa Woodley, Maiara Rodrigues Dos Santos, Lucas Thiago Pereira da Silva, Gabrielle Grant, Ana Carolina Reis di Gregório, Regina Szylit

A Collaborative Online International Learning (COIL) experience was designed for prelicensure nursing students taking a pediatric course in the United States and in Brazil, to teach family-centered care to develop inclusive, global nursing practices. The purpose of this study is to describe prelicensure nursing student learning of family-centered care concepts facilitated by COIL. For data collection, six focus groups with 37 students were conducted across both universities. Data were analyzed using inductive qualitative analysis by each country separately and as a global team. Major themes included understanding the needs of families of children with chronic conditions as impacted by health systems, assigning meanings to family care of children with chronic conditions, applying concepts of family-centered care and self-reflection. Results suggest COIL is a feasible way for prelicensure nursing students to learn family-centered nursing care by operationalizing concepts, from real experiences and increasing cultural awareness.

为在美国和巴西学习儿科课程的执照前护理专业学生设计了在线国际协作学习(COIL)体验,教授以家庭为中心的护理,以发展包容性的全球护理实践。本研究旨在描述执照前护理专业学生在 COIL 促进下对以家庭为中心的护理理念的学习情况。在数据收集方面,两所大学的 37 名学生参加了六个焦点小组。每个国家分别采用归纳式定性分析方法对数据进行分析,并以全球团队的形式进行分析。主要主题包括了解慢性病患儿家庭受医疗系统影响的需求、赋予慢性病患儿家庭护理的意义、应用以家庭为中心的护理概念以及自我反思。研究结果表明,COIL 是一种可行的方法,可让护士执照考前培训学生从实际经验中学习以家庭为中心的护理概念,并增强文化意识。
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引用次数: 0
"It Isn't What I Had to Do, It's What I Get to Do": The Experiences of Black Family Caregivers Managing Dementia. "这不是我不得不做的事,而是我可以做的事":黑人家庭照护者管理痴呆症的经历。
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-11-01 Epub Date: 2024-10-20 DOI: 10.1177/10748407241288606
Sheria G Robinson-Lane, Florence U Johnson, Marie Jeanne Tuyisenge, Jada Jackson, Tasneem Qurashi, Priya Tripathi, Bruno Giordani

Black family caregivers of persons with dementia experience high levels of stress that can negatively affect caregiver health outcomes and reduce caregiving capacity. However, Black caregivers tend to report low levels depressive symptoms or other negative health effects. This qualitative descriptive study aimed to identify factors that contribute to resilience among Black family caregivers. Using the rigorous and accelerated data reduction (RADaR) technique to complete thematic analysis, a team of five coders examined transcript data from three focus groups of Black current and former family caregivers (n = 17) of persons with dementia. We identified three primary factors that contributed to caregiver resilience including access to supportive environments, adaptability, and planning skills. Caregiver resistance to reporting depressive symptoms may be attributed to the strong Black woman schema. Findings from this study may be used to develop future culturally responsive interventions that support caregivers and promote family health.

痴呆症患者的黑人家庭照护者承受着很大的压力,这会对照护者的健康产生负面影响并降低照护能力。然而,黑人照顾者往往报告的抑郁症状或其他负面健康影响较低。这项定性描述性研究旨在确定黑人家庭照护者的抗压能力因素。一个由五名编码员组成的小组使用严格和加速数据还原(RADaR)技术完成了主题分析,并检查了三个焦点小组的记录数据,这些焦点小组的成员是痴呆症患者的黑人现任和前任家庭照顾者(n = 17)。我们确定了有助于提高照护者复原力的三个主要因素,包括获得支持性环境、适应能力和规划技能。照顾者不愿报告抑郁症状的原因可能是强烈的黑人女性模式。本研究的结果可用于制定未来的文化响应干预措施,以支持照顾者并促进家庭健康。
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引用次数: 0
Acknowledgment of Reviewers.
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-11-01 DOI: 10.1177/10748407241299021
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引用次数: 0
Family Nursing Network. 家庭护理网络。
IF 2.6 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-11-01 Epub Date: 2024-11-13 DOI: 10.1177/10748407241299020
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引用次数: 0
Family Nursing Network 家庭护理网络
IF 3.1 3区 医学 Q1 FAMILY STUDIES Pub Date : 2024-09-14 DOI: 10.1177/10748407241280495
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Journal of Family Nursing
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