Journal of Family Nursing最新文献

Although family-centered care (FCC) has been widely studied in pediatric settings, research focusing on families of children with medical complexity is limited, especially regarding parental perspectives in the Canadian context. This study explored how mothers of children with medical complexity conceptualize FCC. A qualitative approach was employed, using semi-structured interviews for data collection. Purposive sampling was used to recruit 19 mothers of children with medical complexity (aged 0-18 years) residing in British Columbia, Canada. Five key themes emerged: (a) Meeting families where they are; (b) Understanding family roles, responsibilities, and preferences; (c) Recognizing that family needs are dynamic and require ongoing reassessment; (d) Encouraging open communication and feedback; and (e) Acknowledging that the health of the child and parents is inextricably linked. Findings provide insights to guide policy and best practices for this population, who represent some of the highest users of pediatric health care services in Canada.

The Family Systems Care Unit (FSCU) is a real-life laboratory including a counseling service for family-systems-centered therapeutic conversations with families with burdening health issues. Health care students and professionals observe these conversations for vicarious learning. Video-recorded conversations are used for research and educational purposes. Since 2020, the FSCU has been developed using project management and action learning strategies. As of June 2025, 34 families had used therapeutic conversations. Fifty health care students and professionals observed conversations and participated in the clinical team's pre- and post-sessions. Thirteen students completed their master's theses. A case vignette illustrates a family confronted with one family member's decision to obtain medical aid in dying, demonstrating the interconnectedness of the FSCU's clinical work, education, and research. The FSCU is a care model that addresses today's health care and higher education needs. The objectives of this article are to present how this FSCU was realized over a 5-year project period.

Supportive interactions that facilitate the labeling of emotions and problem-solving abilities are linked to family well-being and youth resilience. The purpose of this study was to explore youth perceptions of a narrative sharing intervention, and to identify differences in perceptions based on measures of youth resilience. We used an integrated mixed methods, action research approach with 294 youth. Participants completed a timelining activity, interview, and measures of peer and family relationships and well-being. We used latent class analysis and thematic analysis followed by integration of quantitative and qualitative data. Latent class analysis revealed subgroup patterns based on measures of resilience and family and peer relationships. Participants perceived the timelining activity as a tool to help others understand and appreciate the extent of their struggles and resilience. Timelining may be a useful activity to support parent-peer and peer-peer conversations about coping and resilience. These findings can inform family nursing intervention development.

Parents of pediatric intensive care unit (PICU) children experience significant stress and miscommunication with health care providers. This sequential mixed methods study aimed to (a) describe miscommunication, stress, and trust; (b) describe parent experiences related to miscommunication; and (c) compare stress levels between parents who perceived miscommunication and those who did not. A total of 200 parents completed the survey, with 14 participating in interviews. Key findings indicated that higher miscommunication led to increased distress and decreased trust in health care providers. Parents attributed miscommunication causes to clinician workload, provider availability, and involvement of multiple medical teams. Interestingly, greater distress occurred when miscommunication stemmed from conflicting information rather than clinical acuity concerns. The study highlights the urgent need for psychosocial support in PICU settings, as parental insights offer potential clinical relevance for future research. Parents' experiences underscore the importance of addressing miscommunication to enhance patient care outcomes and improve parental well-being.

Feeding children is part of family caregiving. Children with Down syndrome have increased risks for feeding problems, but there is limited literature on caregiving specific to feeding children with Down syndrome. The purpose of this study is to understand mothers' experiences related to feeding their 3- to 10-year-old children with Down syndrome within family and sociocultural contexts. This was a qualitative study using interviews and photo-elicitation. Twenty-nine mothers of children with Down syndrome in the United States participated. Three themes were identified: (a) Feeding Challenges and Foodwork Related to the Child's Feeding Attributes, (b) Family Dynamics and Routines that Impact Foodwork, and (c) Influence of Family and Sociocultural Norms on Feeding Experiences. Mothers engage in complex family caregiving work to feed their children with Down syndrome. Feeding can be influenced by child and family characteristics and by sociocultural contexts. Findings have implications for clinical practice and research.

To evaluate the family members' psychosocial support during specialist palliative inpatient care. Cross-sectional study. The "Family Involvement Scale-Psychosocial Support in Palliative Inpatient Care" (FIS-PS-InPal) questionnaire was used to collect data from family members from specialized palliative care wards across Finland. Data were analyzed using descriptive statistics. In total, 171 family members from 16 wards across Finland participated in the study. Family members evaluated the support they received as close to ideal, with 19.9% of participants reporting that the support was less than desired. They rated psycho-emotional support and support practices as the strongest and informational support as the weakest. The psychosocial support that family members receive in specialist palliative care is generally adequate. However, efforts should be made to improve how information is communicated. The study underscores the importance of evaluating and addressing the unique support implementation for families in palliative care.

Having an infant requiring care in a neonatal intensive care unit (NICU) is challenging for parents. The aim was to investigate the effects of the Family Health Conversation (FamHC) model on self-reported mental health, family wellbeing, and family functioning in parents of infants requiring mechanical respiratory support during NICU care. This interventional study included 147 parents (72, intervention group; 75, control group). All participants received a study-specific questionnaire at three time points. The intervention trended toward positive effects on mental health, family wellbeing, and family functioning. However, all measurements showed considerable variation, and the estimated effects were not statistically significant at the 0.05 level. Regardless of the intervention, mental health symptoms decreased over time, whereas family wellbeing and functioning remained stable. To conclude, although the intervention trended favorable for all outcomes, no significant differences were observed between groups. Potential effects might be better identified using qualitative methodology or self-reporting measures in a larger sample.

This qualitative review aims to synthesize the evidence on nurses' experience of intervening with fathers when providing care to their young children. Five databases were searched. Inclusion criteria were (a) nurses' experience, (b) intervention with fathers, (c) written in English or French. Data were extracted by two independent reviewers. Qualitative thematic synthesis of 17 peer-reviewed studies was performed by 12 family nurse researchers from six countries. Three analytical themes were identified: "Conceiving of the father's role in terms of his involvement within the family"; "Working with fathers based on the nurse's individual conception of the paternal role"; and "Developing a sense of efficacy in working with fathers." The results highlight the importance of raising family nurses' awareness of fathers' individual realities. Training in this regard makes it possible to modify nurses' perceptions of the paternal role and to promote the adoption of father inclusive practices within the family.