Pub Date : 2025-01-15DOI: 10.1177/10748407241290305
Katherine Patterson Kelly, Kim Mooney-Doyle, Mia Waldron, Kathleen A Knafl
Parenting a seriously ill child is complex and emotionally intense. To further develop Hinds and colleagues' Good Parent themes: "Keeping a Positive Outlook" and "Keeping a Realistic Outlook," we reviewed grounded theories published in English language journals from January 2006 to April 2021 identifying 18 studies with relevant results. Parents' efforts to keep a positive outlook included cognitive (e.g., remain hopeful, avoid negative thinking) and behavioral (e.g., monitoring child for signs of improvement, information seeking) actions. To keep a realistic outlook, parents acknowledged the serious nature of the condition, negative treatment effects, and limitations to treating the child normally. Parents holding both positive and realistic outlooks recognized the seriousness of their child's illness and remained hopeful while preparing for their child's death. Our analysis extends the understanding of how parents' expectations regarding the course and outcome of their child's illness shape cognitive and behavioral aspects of their parenting.
{"title":"Managing Expectations: Understanding Parents' Perceptions of Their Child's Serious Illness.","authors":"Katherine Patterson Kelly, Kim Mooney-Doyle, Mia Waldron, Kathleen A Knafl","doi":"10.1177/10748407241290305","DOIUrl":"https://doi.org/10.1177/10748407241290305","url":null,"abstract":"<p><p>Parenting a seriously ill child is complex and emotionally intense. To further develop Hinds and colleagues' Good Parent themes: \"Keeping a Positive Outlook\" and \"Keeping a Realistic Outlook,\" we reviewed grounded theories published in English language journals from January 2006 to April 2021 identifying 18 studies with relevant results. Parents' efforts to keep a positive outlook included cognitive (e.g., remain hopeful, avoid negative thinking) and behavioral (e.g., monitoring child for signs of improvement, information seeking) actions. To keep a realistic outlook, parents acknowledged the serious nature of the condition, negative treatment effects, and limitations to treating the child normally. Parents holding both positive and realistic outlooks recognized the seriousness of their child's illness and remained hopeful while preparing for their child's death. Our analysis extends the understanding of how parents' expectations regarding the course and outcome of their child's illness shape cognitive and behavioral aspects of their parenting.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407241290305"},"PeriodicalIF":2.6,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142984112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-21DOI: 10.1177/10748407241301369
Sarah J Hoffman, Windy M Fredkove, Maria M Vukovich, Elaine Hsieh, Hsa Moo, Kaziah Josiah, Zamzam Dini
The ways that families communicate about traumatic experiences is a critical social process. Intrafamily trauma communication encompasses approaches through which family members share and respond to difficult past experiences. We examined the embedded communication processes and actions of war-affected Karen maternal caregivers living post-resettlement in the United States, as they described disclosures of torture and war trauma experiences to their children. Using a modified approach to a constructivist-oriented grounded theory, we analyzed 33 in-depth qualitative interviews. Narrative experiences of mothers and synthesized storylines shaped a psychosocial theory of maternal intrafamily trauma communication, Ushering a Witness. The core category was depicted by the coalescence of three distinct conceptual, temporal phases and corresponding properties: (a) Appraising: Communication decision-making, (b) (Co-)Constructing: Act of communicating, and (c) Amending: Developing awareness and reevaluating purpose, response, and approach to communication. Findings will facilitate further exploration of the relationships between the intergenerational effects of trauma and intergenerational communication.
{"title":"Ushering a Witness: A Psychosocial Theory of Maternal Intrafamily Trauma Communication in the Refugee Family System.","authors":"Sarah J Hoffman, Windy M Fredkove, Maria M Vukovich, Elaine Hsieh, Hsa Moo, Kaziah Josiah, Zamzam Dini","doi":"10.1177/10748407241301369","DOIUrl":"https://doi.org/10.1177/10748407241301369","url":null,"abstract":"<p><p>The ways that families communicate about traumatic experiences is a critical social process. Intrafamily trauma communication encompasses approaches through which family members share and respond to difficult past experiences. We examined the embedded communication processes and actions of war-affected Karen maternal caregivers living post-resettlement in the United States, as they described disclosures of torture and war trauma experiences to their children. Using a modified approach to a constructivist-oriented grounded theory, we analyzed 33 in-depth qualitative interviews. <i>Narrative experiences of mothers and synthesized storylines shaped a psychosocial theory of maternal intrafamily trauma communication, Ushering a Witness</i>. The core category was depicted by the coalescence of three distinct conceptual, temporal phases and corresponding properties: (a) Appraising: Communication decision-making, (b) (Co-)Constructing: Act of communicating, and (c) Amending: Developing awareness and reevaluating purpose, response, and approach to communication. Findings will facilitate further exploration of the relationships between the intergenerational effects of trauma and intergenerational communication.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407241301369"},"PeriodicalIF":2.6,"publicationDate":"2024-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142873420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-03DOI: 10.1177/10748407241290300
Barbara K Giambra, Kathleen Knafl, Stephen Haas, Yin Zhang, Nanhua Zhang, Rita H Pickler, Maria T Britto
Nurses caring for hospitalized children with long-term ventilator dependence (LTVD) assess family management capability and teach new skills through communication with family caregivers. This theoretically-based quantitative, descriptive study aimed to determine the communication behaviors associated with family caregiver uncertainty and management of the child with LTVD's care after discharge. One hundred families and 48 nurses enrolled. Family caregiver-nurse conversations were recorded and transcripts coded for communication behaviors. Family management and uncertainty data were gathered during hospitalization and after discharge. Data analysis included correlations and linear mixed models. Family caregivers and nurses used advocating and negotiating roles communication behaviors least frequently; however, these communication behaviors were associated with the most aspects in terms of uncertainty about the child's condition and ease of management of the child's care after discharge to home. Nurses should assess family caregiver ease in managing care, provide support, and engage in collaborative problem-solving through respectful communication.
{"title":"Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence.","authors":"Barbara K Giambra, Kathleen Knafl, Stephen Haas, Yin Zhang, Nanhua Zhang, Rita H Pickler, Maria T Britto","doi":"10.1177/10748407241290300","DOIUrl":"https://doi.org/10.1177/10748407241290300","url":null,"abstract":"<p><p>Nurses caring for hospitalized children with long-term ventilator dependence (LTVD) assess family management capability and teach new skills through communication with family caregivers. This theoretically-based quantitative, descriptive study aimed to determine the communication behaviors associated with family caregiver uncertainty and management of the child with LTVD's care after discharge. One hundred families and 48 nurses enrolled. Family caregiver-nurse conversations were recorded and transcripts coded for communication behaviors. Family management and uncertainty data were gathered during hospitalization and after discharge. Data analysis included correlations and linear mixed models. Family caregivers and nurses used advocating and negotiating roles communication behaviors least frequently; however, these communication behaviors were associated with the most aspects in terms of uncertainty about the child's condition and ease of management of the child's care after discharge to home. Nurses should assess family caregiver ease in managing care, provide support, and engage in collaborative problem-solving through respectful communication.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407241290300"},"PeriodicalIF":2.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142570051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-11-25DOI: 10.1177/10748407241297234
C S Rothausen, A M Clausen, H Agerskov, D Bekker-Jensen, L Birkelund, M L Kidholm, L Kvorning, J Marcussen, H S Poulsen, A D Sorknaes, S S Voetmann, B Voltelen, K B Dieperink
{"title":"Report of the sixth Nordic Family Health and Care Conference 2024: Sharing Interdisciplinary Work to Improve the Health and Well-Being of Families.","authors":"C S Rothausen, A M Clausen, H Agerskov, D Bekker-Jensen, L Birkelund, M L Kidholm, L Kvorning, J Marcussen, H S Poulsen, A D Sorknaes, S S Voetmann, B Voltelen, K B Dieperink","doi":"10.1177/10748407241297234","DOIUrl":"10.1177/10748407241297234","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"329-334"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142711743","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-11-25DOI: 10.1177/10748407241290308
Cynthia A Danford, Karyn J Roberts, Mandie J Foster, Barbara Giambra, Shelley Spurr, Naiara Barros Polita, Debbie Sheppard-LeMoine, Willyane de Andrade Alvarenga, Patricia Beierwaltes, Francine de Montigny, Stacee M Lerret, Lucila Castanheira Nascimento, Michele Polfuss, Caroline Renée, Susan Sullivan-Bolyai, Suja Somanadhan, Lindsay Smith
This qualitative meta-synthesis was conducted with the aim to understand fathers' experiences and involvement when their child has a chronic condition within family context. Family nurse researchers from five countries identified 19 studies through a systematic search. Inclusion criteria were: (a) fathers as primary informant; (b) children (<19 years) with a chronic condition; (c) written in English, Spanish, French, or Portuguese. Data were synthesized using thematic analysis. Four themes reflected fathers' journey: "Juggling multiple roles" included protector, provider, and supporter; "Managing control" included relinquishing and regaining control; "Creating a new normal" addressed recovery; "Maintaining wellbeing" reflected multiple emotional responses and support found through partners, family, spirituality, and health care communities. Fathers desire to be involved in caring for their child with a chronic condition, yet involvement and experience are continually evolving due to various family needs. Health care providers should consider unconscious assumptions regarding fathers' role in child care and encourage fathers' involvement to facilitate family wellbeing.
{"title":"Fathers' Ongoing Journey When a Child in the Family Has a Chronic Condition: A Meta-Synthesis.","authors":"Cynthia A Danford, Karyn J Roberts, Mandie J Foster, Barbara Giambra, Shelley Spurr, Naiara Barros Polita, Debbie Sheppard-LeMoine, Willyane de Andrade Alvarenga, Patricia Beierwaltes, Francine de Montigny, Stacee M Lerret, Lucila Castanheira Nascimento, Michele Polfuss, Caroline Renée, Susan Sullivan-Bolyai, Suja Somanadhan, Lindsay Smith","doi":"10.1177/10748407241290308","DOIUrl":"10.1177/10748407241290308","url":null,"abstract":"<p><p>This qualitative meta-synthesis was conducted with the aim to understand fathers' experiences and involvement when their child has a chronic condition within family context. Family nurse researchers from five countries identified 19 studies through a systematic search. Inclusion criteria were: (a) fathers as primary informant; (b) children (<19 years) with a chronic condition; (c) written in English, Spanish, French, or Portuguese. Data were synthesized using thematic analysis. Four themes reflected fathers' journey: \"Juggling multiple roles\" included protector, provider, and supporter; \"Managing control\" included relinquishing and regaining control; \"Creating a new normal\" addressed recovery; \"Maintaining wellbeing\" reflected multiple emotional responses and support found through partners, family, spirituality, and health care communities. Fathers desire to be involved in caring for their child with a chronic condition, yet involvement and experience are continually evolving due to various family needs. Health care providers should consider unconscious assumptions regarding fathers' role in child care and encourage fathers' involvement to facilitate family wellbeing.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"283-303"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142711741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-10-20DOI: 10.1177/10748407241290304
Beth Cosgrove, Lisa Woodley, Maiara Rodrigues Dos Santos, Lucas Thiago Pereira da Silva, Gabrielle Grant, Ana Carolina Reis di Gregório, Regina Szylit
A Collaborative Online International Learning (COIL) experience was designed for prelicensure nursing students taking a pediatric course in the United States and in Brazil, to teach family-centered care to develop inclusive, global nursing practices. The purpose of this study is to describe prelicensure nursing student learning of family-centered care concepts facilitated by COIL. For data collection, six focus groups with 37 students were conducted across both universities. Data were analyzed using inductive qualitative analysis by each country separately and as a global team. Major themes included understanding the needs of families of children with chronic conditions as impacted by health systems, assigning meanings to family care of children with chronic conditions, applying concepts of family-centered care and self-reflection. Results suggest COIL is a feasible way for prelicensure nursing students to learn family-centered nursing care by operationalizing concepts, from real experiences and increasing cultural awareness.
{"title":"Collaborative Online International Learning With Prelicensure Nursing Students: Teaching Family-Centered Care Through a Global Perspective.","authors":"Beth Cosgrove, Lisa Woodley, Maiara Rodrigues Dos Santos, Lucas Thiago Pereira da Silva, Gabrielle Grant, Ana Carolina Reis di Gregório, Regina Szylit","doi":"10.1177/10748407241290304","DOIUrl":"10.1177/10748407241290304","url":null,"abstract":"<p><p>A Collaborative Online International Learning (COIL) experience was designed for prelicensure nursing students taking a pediatric course in the United States and in Brazil, to teach family-centered care to develop inclusive, global nursing practices. The purpose of this study is to describe prelicensure nursing student learning of family-centered care concepts facilitated by COIL. For data collection, six focus groups with 37 students were conducted across both universities. Data were analyzed using inductive qualitative analysis by each country separately and as a global team. Major themes included understanding the needs of families of children with chronic conditions as impacted by health systems, assigning meanings to family care of children with chronic conditions, applying concepts of family-centered care and self-reflection. Results suggest COIL is a feasible way for prelicensure nursing students to learn family-centered nursing care by operationalizing concepts, from real experiences and increasing cultural awareness.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"317-325"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11624616/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-10-20DOI: 10.1177/10748407241288606
Sheria G Robinson-Lane, Florence U Johnson, Marie Jeanne Tuyisenge, Jada Jackson, Tasneem Qurashi, Priya Tripathi, Bruno Giordani
Black family caregivers of persons with dementia experience high levels of stress that can negatively affect caregiver health outcomes and reduce caregiving capacity. However, Black caregivers tend to report low levels depressive symptoms or other negative health effects. This qualitative descriptive study aimed to identify factors that contribute to resilience among Black family caregivers. Using the rigorous and accelerated data reduction (RADaR) technique to complete thematic analysis, a team of five coders examined transcript data from three focus groups of Black current and former family caregivers (n = 17) of persons with dementia. We identified three primary factors that contributed to caregiver resilience including access to supportive environments, adaptability, and planning skills. Caregiver resistance to reporting depressive symptoms may be attributed to the strong Black woman schema. Findings from this study may be used to develop future culturally responsive interventions that support caregivers and promote family health.
{"title":"\"It Isn't What I Had to Do, It's What I Get to Do\": The Experiences of Black Family Caregivers Managing Dementia.","authors":"Sheria G Robinson-Lane, Florence U Johnson, Marie Jeanne Tuyisenge, Jada Jackson, Tasneem Qurashi, Priya Tripathi, Bruno Giordani","doi":"10.1177/10748407241288606","DOIUrl":"10.1177/10748407241288606","url":null,"abstract":"<p><p>Black family caregivers of persons with dementia experience high levels of stress that can negatively affect caregiver health outcomes and reduce caregiving capacity. However, Black caregivers tend to report low levels depressive symptoms or other negative health effects. This qualitative descriptive study aimed to identify factors that contribute to resilience among Black family caregivers. Using the rigorous and accelerated data reduction (RADaR) technique to complete thematic analysis, a team of five coders examined transcript data from three focus groups of Black current and former family caregivers (<i>n</i> = 17) of persons with dementia. We identified three primary factors that contributed to caregiver resilience including access to supportive environments, adaptability, and planning skills. Caregiver resistance to reporting depressive symptoms may be attributed to the strong Black woman schema. Findings from this study may be used to develop future culturally responsive interventions that support caregivers and promote family health.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"304-316"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11624617/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01DOI: 10.1177/10748407241299021
{"title":"Acknowledgment of Reviewers.","authors":"","doi":"10.1177/10748407241299021","DOIUrl":"https://doi.org/10.1177/10748407241299021","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"30 4","pages":"336"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142787550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-11-13DOI: 10.1177/10748407241299020
{"title":"Family Nursing Network.","authors":"","doi":"10.1177/10748407241299020","DOIUrl":"10.1177/10748407241299020","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"326-328"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-14DOI: 10.1177/10748407241280495
{"title":"Family Nursing Network","authors":"","doi":"10.1177/10748407241280495","DOIUrl":"https://doi.org/10.1177/10748407241280495","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"23 1","pages":""},"PeriodicalIF":3.1,"publicationDate":"2024-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142261534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}