网络话语中的叙述对医疗决策的影响

Zayd Almaya, Tom Mould
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引用次数: 0

摘要

本研究首先探讨了什么类型的证据在网上讨论中对患者的健康决策最有影响力,其次探讨了人们在这些网上讨论中如何部署、解释和应对故事,从而更好地理解叙事在医疗领域的作用和重要性。数据是在Reddit平台的r/melanoma子论坛上收集的,为期两周。共收集并分析了 242 个帖子。结合社会学家和叙事学者弗朗西斯卡-波莱塔(Francesca Polletta)的基础理论和编码标准,我们开发了一个代码集,并应用于所有 242 个帖子,以评估叙事的影响和参与度。结果表明,基于过去经验的证据和事实信息最有说服力。此外,与其他形式的证据相比,故事引起了更多的讨论,产生了更多的共鸣,在线讨论者也做出了更积极的回应。此外,这些积极反应表明,寻求医疗建议的患者更有可能表示同意附有故事的建议。鉴于这些结果,我们应该更加关注网络社区中分享的叙事,尤其是考虑到网络上的错误信息和虚假信息的程度,以及医生和患者之间不断发展的关系,在这种关系中,权威不再那么容易被假定。关键词: 叙事;个人经历;事实;证据;说服;医疗决策;社交媒体
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The Impact of Narratives on Healthcare Decision-Making in Online Discourse
This study examines first what type of evidence is most influential in online discussions for patients when making decisions about their health and second how people deploy, interpret, and react to stories in these online discussions to better understand the role and importance of narrative in the medical field. Data was gathered on the platform Reddit using the subreddit r/melanoma for a duration of two weeks. 242 posts were collected and analyzed. Using a combination of grounded theory and coding criteria from sociologist and narrative scholar Francesca Polletta, a code book was developed and applied to all 242 posts to assess narrative impact and engagement. Results demonstrate that evidence based on past experiences and factual information were the most persuasive. Additionally, stories yielded greater discussion, greater empathetic connections, and greater positive responses from online discussants than other forms of evidence. Further, those positive responses indicate that patients seeking medical advice were more likely to express agreement with the advice when it was offered with a story. Given these results, greater attention should be paid to narratives shared in online communities, particularly considering the levels of misinformation and disinformation found online and the evolving relationships between doctors and patients where authority is no longer so easily assumed. KEYWORDS: Narrative; Personal Experience; Fact; Evidence; Persuasion; Medical Decision-Making; Social Media
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