帕金森病患者使用移动应用程序改善自我管理

Annette Hand, Jill Wales, Glenda Cook, Alexandra Kirton
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摘要

帕金森病是一种复杂的神经退行性疾病。由于帕金森病的症状多种多样,因此必须制定个性化的治疗方案。Hear Me Now (HMN) 是一款专为有学习障碍的人开发的应用程序。轶事证据表明,帕金森病等慢性病患者也可能从使用 HMN 管理其复杂的健康状况中受益。这项可行性研究旨在探讨 HMN 是否适合帕金森病患者使用。研究人员有目的性地招募了 4 名帕金森病患者。经过培训后,参与者在家使用 HMN 应用程序 3 个月。通过访谈了解了他们对应用程序功能的使用情况、使用的难易程度、对日常生活的影响、使用应用程序的障碍或促进因素。大多数参与者认为 HMN 有利于管理他们的健康状况。HMN 应用程序在患者自我管理方面的应用值得进一步研究。
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Use of a mobile app by people with Parkinson's disease to improve self-management
Parkinson's disease is a complex neurodegenerative condition. Due to the heterogeneity of symptoms that may be experienced, individualised treatment plans are essential. Hear Me Now (HMN) is an app developed for individuals with learning disabilities. Anecdotal evidence suggested people with chronic conditions, such as Parkinson's disease, might also benefit from using HMN in managing their complex health condition. This feasibility study sought to explore whether HMN was suitable for use in people with Parkinson's disease. A purposive sample of 4 people with Parkinson's were recruited. Following training, participants used the HMN app at home over 3 months. Interviews were used to explore their use of functions within the app; ease of use; any impact it had on their daily life; any barriers or facilitators to using the app. Most participants found HMN beneficial in managing their health condition. The HMN app merits further research for use in patient self-management.
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