Pub Date : 2024-02-02DOI: 10.12968/bjnn.2024.20.1.5
K. Dening
{"title":"How and when would you like to die?","authors":"K. Dening","doi":"10.12968/bjnn.2024.20.1.5","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.5","url":null,"abstract":"","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"44 10","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-02DOI: 10.12968/bjnn.2024.20.1.20
Francesca Ramadan
A craniotomy is an intensive and invasive procedure, and many patients will be initially alarmed at the prospect of remaining fully or partially awake during such a major operation. Yet, the literature seems to suggest that awake craniotomies may be of greater benefit, with sustained consciousness throughout the procedure associated with improved cortical mapping and postoperative outcomes. However, as with all healthcare interventions, careful consideration of patient-related factors is key in maintaining an individual's functioning and quality of life. Francesc Ramadan elaborates.
{"title":"Ensuring quality of life after a craniotomy: a comparison of awake and ‘asleep’ cortical mapping","authors":"Francesca Ramadan","doi":"10.12968/bjnn.2024.20.1.20","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.20","url":null,"abstract":"A craniotomy is an intensive and invasive procedure, and many patients will be initially alarmed at the prospect of remaining fully or partially awake during such a major operation. Yet, the literature seems to suggest that awake craniotomies may be of greater benefit, with sustained consciousness throughout the procedure associated with improved cortical mapping and postoperative outcomes. However, as with all healthcare interventions, careful consideration of patient-related factors is key in maintaining an individual's functioning and quality of life. Francesc Ramadan elaborates.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"105 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462114","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-02DOI: 10.12968/bjnn.2024.20.1.29
Scott Wilson
Scott Wilson, one of the winners of BANN 2023's ‘Best clinical presentation’ award, introduces readers to perioperative neuroscience nursing through his own experience.
{"title":"Introduction to perioperative neuroscience nursing","authors":"Scott Wilson","doi":"10.12968/bjnn.2024.20.1.29","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.29","url":null,"abstract":"Scott Wilson, one of the winners of BANN 2023's ‘Best clinical presentation’ award, introduces readers to perioperative neuroscience nursing through his own experience.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"147 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-02DOI: 10.12968/bjnn.2024.20.1.13
Jules Knight, Amy Pepper
In the UK, it is estimated that people living with young-onset dementia (YOD) accounts for a small, but significant, number of the total population living with dementia. The diagnosis happens at an unexpected time in one's life, and as a life-limiting condition, there are implications for the whole family, including managing employment, finances and debt, supporting dependent children and accessing age-appropriate support services. YOD causes a disproportionate burden on family members and appropriate care services can be challenging to find. The case study discussed follows a family's journey from pre-diagnosis, to subsequently engaging with the Admiral Nurse Helpline and then an Admiral Nurse in the family's locality, and considers the issues and challenges faced by them.
{"title":"Supporting a family living with young-onset dementia: a case study","authors":"Jules Knight, Amy Pepper","doi":"10.12968/bjnn.2024.20.1.13","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.13","url":null,"abstract":"In the UK, it is estimated that people living with young-onset dementia (YOD) accounts for a small, but significant, number of the total population living with dementia. The diagnosis happens at an unexpected time in one's life, and as a life-limiting condition, there are implications for the whole family, including managing employment, finances and debt, supporting dependent children and accessing age-appropriate support services. YOD causes a disproportionate burden on family members and appropriate care services can be challenging to find. The case study discussed follows a family's journey from pre-diagnosis, to subsequently engaging with the Admiral Nurse Helpline and then an Admiral Nurse in the family's locality, and considers the issues and challenges faced by them.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"87 17","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-02DOI: 10.12968/bjnn.2024.20.1.7
Annette Hand, Jill Wales, Glenda Cook, Alexandra Kirton
Parkinson's disease is a complex neurodegenerative condition. Due to the heterogeneity of symptoms that may be experienced, individualised treatment plans are essential. Hear Me Now (HMN) is an app developed for individuals with learning disabilities. Anecdotal evidence suggested people with chronic conditions, such as Parkinson's disease, might also benefit from using HMN in managing their complex health condition. This feasibility study sought to explore whether HMN was suitable for use in people with Parkinson's disease. A purposive sample of 4 people with Parkinson's were recruited. Following training, participants used the HMN app at home over 3 months. Interviews were used to explore their use of functions within the app; ease of use; any impact it had on their daily life; any barriers or facilitators to using the app. Most participants found HMN beneficial in managing their health condition. The HMN app merits further research for use in patient self-management.
帕金森病是一种复杂的神经退行性疾病。由于帕金森病的症状多种多样，因此必须制定个性化的治疗方案。Hear Me Now (HMN) 是一款专为有学习障碍的人开发的应用程序。轶事证据表明，帕金森病等慢性病患者也可能从使用 HMN 管理其复杂的健康状况中受益。这项可行性研究旨在探讨 HMN 是否适合帕金森病患者使用。研究人员有目的性地招募了 4 名帕金森病患者。经过培训后，参与者在家使用 HMN 应用程序 3 个月。通过访谈了解了他们对应用程序功能的使用情况、使用的难易程度、对日常生活的影响、使用应用程序的障碍或促进因素。大多数参与者认为 HMN 有利于管理他们的健康状况。HMN 应用程序在患者自我管理方面的应用值得进一步研究。
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Pub Date : 2024-02-02DOI: 10.12968/bjnn.2024.20.1.24
Claire Winchester, Alison Whittam
It is estimated that around 40000 people in the UK live with advanced multiple sclerosis (MS). These individuals experience a range of symptoms, and can often have moderate to severe impairment, with extensive care needs. In this article, the MS Trust provides relevant information on how to care for people with advanced MS, provides advice on future planning, and signposts individuals with the advanced MS, as well as their family and carers, to accessible online resources.
{"title":"Addressing the care and information needs of people living with advanced multiple sclerosis","authors":"Claire Winchester, Alison Whittam","doi":"10.12968/bjnn.2024.20.1.24","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.24","url":null,"abstract":"It is estimated that around 40000 people in the UK live with advanced multiple sclerosis (MS). These individuals experience a range of symptoms, and can often have moderate to severe impairment, with extensive care needs. In this article, the MS Trust provides relevant information on how to care for people with advanced MS, provides advice on future planning, and signposts individuals with the advanced MS, as well as their family and carers, to accessible online resources.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"261 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-02DOI: 10.12968/bjnn.2024.20.1.28
Julie Derbyshire
In this month's British Association of Neuroscience Nurses (BANN) Pages, Julie Derbyshire provides further information on the upcoming BANN conference and introduces readers to Scott Wilson, one of the winners of BANN 2023's ‘Best clinical presentation’ award.
{"title":"BANN conference: October 2024","authors":"Julie Derbyshire","doi":"10.12968/bjnn.2024.20.1.28","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.28","url":null,"abstract":"In this month's British Association of Neuroscience Nurses (BANN) Pages, Julie Derbyshire provides further information on the upcoming BANN conference and introduces readers to Scott Wilson, one of the winners of BANN 2023's ‘Best clinical presentation’ award.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"83 14","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.12968/bjnn.2024.20.sup1.s6
Ruth Stross, Charlie Peel, Megan Roberts, Claire Winchester, Sue Thomas
The coronavirus pandemic prompted one of the authors to develop a simple yet innovative solution to detecting urinary tract infections in people with multiple sclerosis, in order to improve their wellbeing and reduce hospital admissions. The initiative has been longer lasting, wider reaching and has had better outcomes than expected. The authors discuss the initiative, how and why it was developed, patient outcomes and limitations.
{"title":"A simple and successful solution to issues relating to urinary tract infections in people with MS","authors":"Ruth Stross, Charlie Peel, Megan Roberts, Claire Winchester, Sue Thomas","doi":"10.12968/bjnn.2024.20.sup1.s6","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s6","url":null,"abstract":"The coronavirus pandemic prompted one of the authors to develop a simple yet innovative solution to detecting urinary tract infections in people with multiple sclerosis, in order to improve their wellbeing and reduce hospital admissions. The initiative has been longer lasting, wider reaching and has had better outcomes than expected. The authors discuss the initiative, how and why it was developed, patient outcomes and limitations.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"72 16","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.12968/bjnn.2024.20.sup1.s12
Fiona Magill, Stephen Ramsay, Gavin McDonnell, Stella Hughes
Providing care to multiple sclerosis (MS) patients posed a challenge during the COVID-19 pandemic. Surge plans necessitated an abrupt change of facility for the infusion service, from an acute to a non-acute site. To assess patient satisfaction with the MS infusion service at a new location supervised by MS specialist nurses, in comparison with previous arrangements. Collection of anonymous patient surveys to assess patient demographics and levels of satisfaction across various service domains. Overall, 97% recorded a satisfaction score of ≥8/10. Key areas of improvement included difficulty parking, difficulty accessing the unit, appointment punctuality and comfort. Thematic analysis revealed several key improvement areas such as access to MS nursing knowledge, cannulation and punctuality. The urgently relocated service, with better access and specialist nursing input, was associated with improvements in patient experience. Despite unprecedented pressures, unique opportunities resulted in an overall improvement to the MS infusion service.
在 COVID-19 大流行期间，为多发性硬化症（MS）患者提供护理是一项挑战。由于大流行计划的需要，输液服务的设施突然从急诊地点转到了非急诊地点。与之前的安排相比，评估患者对新地点由多发性硬化症专科护士监督的多发性硬化症输液服务的满意度。收集匿名患者调查问卷，以评估患者的人口统计学特征和对各服务领域的满意度。总体而言，97% 的患者满意度≥8/10 分。需要改进的关键领域包括停车困难、进入病房困难、预约准时和舒适度。专题分析显示了几个关键的改进领域，如获取 MS 护理知识、插管和准时性。紧急搬迁后的服务提供了更好的通道和专科护理投入，改善了患者的就医体验。尽管面临前所未有的压力，但独特的机遇使多发性硬化症输液服务得到了全面改善。
{"title":"Multiple sclerosis infusion service during the pandemic: service improvement","authors":"Fiona Magill, Stephen Ramsay, Gavin McDonnell, Stella Hughes","doi":"10.12968/bjnn.2024.20.sup1.s12","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s12","url":null,"abstract":"Providing care to multiple sclerosis (MS) patients posed a challenge during the COVID-19 pandemic. Surge plans necessitated an abrupt change of facility for the infusion service, from an acute to a non-acute site. To assess patient satisfaction with the MS infusion service at a new location supervised by MS specialist nurses, in comparison with previous arrangements. Collection of anonymous patient surveys to assess patient demographics and levels of satisfaction across various service domains. Overall, 97% recorded a satisfaction score of ≥8/10. Key areas of improvement included difficulty parking, difficulty accessing the unit, appointment punctuality and comfort. Thematic analysis revealed several key improvement areas such as access to MS nursing knowledge, cannulation and punctuality. The urgently relocated service, with better access and specialist nursing input, was associated with improvements in patient experience. Despite unprecedented pressures, unique opportunities resulted in an overall improvement to the MS infusion service.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"1402 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140466970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.12968/bjnn.2024.20.sup1.s27
Sue Thomas
Multiple sclerosis (MS) can result in uro-neurological dysfunction, leading to a range of different urological problems that are distressing to the patient and costly for the NHS. Sue Thomas outlines why bladder management in MS needs greater focus to alleviate both negative patient experience and the financial burden of urinary dysfunction on the NHS.
{"title":"Making bladder management a priority for multiple sclerosis","authors":"Sue Thomas","doi":"10.12968/bjnn.2024.20.sup1.s27","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s27","url":null,"abstract":"Multiple sclerosis (MS) can result in uro-neurological dysfunction, leading to a range of different urological problems that are distressing to the patient and costly for the NHS. Sue Thomas outlines why bladder management in MS needs greater focus to alleviate both negative patient experience and the financial burden of urinary dysfunction on the NHS.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"98 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140465466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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