探究个人对英国国家医疗服务系统(NHS)检验和追踪系统的公众信任--实用反思性专题分析

C.M. Babbage , H. Wagner , L. Dowthwaite , V. Portillo , E. Perez , J. Fischer
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引用次数: 0

摘要

背景数字接触追踪利用智能手机软件中嵌入的自动化系统和定位技术,有效识别接触 COVID-19 的个人。此类系统只有在高度合规的情况下才会有效,但合规性取决于公众对系统的信任度。这项研究以英国国家卫生服务系统(NHS)即将发布的 COVID-19 应用程序为例,探讨了英国个人对更广泛的检测和追踪系统的信任和期望。方法在 COVID-19 应用程序公开发布之前,12 名成年人于 2020 年 8 月接受了在线半结构式访谈。实事求是的反思性主题分析采用有机和递归的过程,以归纳的方式探索参与者之间的共同主题(Braun & Clarke, 2019)。结果主题强调了人们认为值得信赖的技术特征(主题 1),以及与 i) 用户是否会遵守 T&T 系统(主题 2)和 ii) T&T 系统将如何处理用户的个人数据(主题 3)有关的担忧。另外两个主题分别是 T&T 系统中的自动化及其对信任的影响(主题 4)以及媒体如何改变人们对 T&T 系统的看法(主题 5)。同时,参与者还提出了有关个人数据和数据隐私,以及自动化与人工任务水平的问题,这影响了对应用程序和更广泛系统的信任感。此外,这些主题还强调,T&T 系统并不是在真空中发生的,而是在受媒体和对其他人遵守 T&T 的看法等变量影响的原有环境中发生的。考虑到目前的工作在公众使用 COVID-19 应用程序之前就已经预见到了类似的问题,与公众接触可能是改善对该应用程序的看法和遵守情况的重要一步。患者与公众参与(PPI)和负责任的研究与创新(RRI)的基本原则,如让公众参与研究的早期开发,使研究与创新的成果与更广泛的社会价值观和期望相一致等,本应很好地应用于该系统,并应应用于未来需要大量公众使用的自主系统。
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Exploring individual's public trust in the NHS Test and Trace System – A pragmatic reflexive thematic analysis

Context

Digital contact tracing uses automated systems and location technology embedded on smartphone software for efficient identification of individuals exposed to COVID-19. Such systems are only effective with high compliance, yet compliance is mediated by public trust in the system. This work explored the perception of individual's trust and expectation of the broader Test and Trace system in the United Kingdom (UK) with the upcoming release of the National Health Service's (NHS) COVID-19 app as a case example.

Methods

Twelve adults underwent online semi-structured interviews in August 2020, prior to public availability of the COVID-19 app. Pragmatic reflexive thematic analysis was applied inductively to explore common themes between participants, using an organic and recursive process (Braun & Clarke, 2019).

Results

Themes highlighted features of the technology that would be perceived to be trustworthy (Theme 1), and concerns relating to i) whether users would comply with a T&T system (Theme 2) and ii) how a T&T system would handle user's personal data (Theme 3). Two further themes built on aspects of automation within a T&T system and its impact on trust (Theme 4) and how the media altered perceptions of the T&T system (Theme 5).

Conclusions

Participants outlined the need for different user requirements that could be built into the NHS COVID-19 app that would support increased adherence. Concurrently, participants raised questions surrounding personal data and privacy of their data, plus the level of automated versus manual tasks, which impacted perception of trust in the app and wider system. Additionally, themes highlighted that T&T systems do not happen within a vacuum, but within a pre-existing environment influenced by variables such as the media and perception of other's compliance to T&T.

Implications

Since it's roll-out, controversies surrounding the UK T&T system include concerns about privacy, stigma and uptake. Considering the current piece of work, which anticipated similar concerns prior to public access to COVID-19 app, engaging with the public may have been an important step in improving the perception and compliance with the app. Principles fundamental to patient and public involvement (PPI) and Responsible Research and Innovation (RRI) such as the inclusion of the public in the early development of research and aligning the outcomes of research and innovation with broader societal values and expectations would have been well-applied to this system and should be applied to future autonomous systems requiring high public uptake.

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来源期刊
CiteScore
6.50
自引率
9.30%
发文量
94
审稿时长
6 weeks
期刊介绍: Official Journal of the European Society for Research on Internet Interventions (ESRII) and the International Society for Research on Internet Interventions (ISRII). The aim of Internet Interventions is to publish scientific, peer-reviewed, high-impact research on Internet interventions and related areas. Internet Interventions welcomes papers on the following subjects: • Intervention studies targeting the promotion of mental health and featuring the Internet and/or technologies using the Internet as an underlying technology, e.g. computers, smartphone devices, tablets, sensors • Implementation and dissemination of Internet interventions • Integration of Internet interventions into existing systems of care • Descriptions of development and deployment infrastructures • Internet intervention methodology and theory papers • Internet-based epidemiology • Descriptions of new Internet-based technologies and experiments with clinical applications • Economics of internet interventions (cost-effectiveness) • Health care policy and Internet interventions • The role of culture in Internet intervention • Internet psychometrics • Ethical issues pertaining to Internet interventions and measurements • Human-computer interaction and usability research with clinical implications • Systematic reviews and meta-analysis on Internet interventions
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