{"title":"聋哑儿童主要照顾者的家庭复原力。","authors":"Halide Cetin Kara, Talha Cogen, Fatma Telci","doi":"10.1044/2024_AJA-23-00173","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to investigate family resilience-defined as the capacity of a family to harness its collective strengths and resources to recover from and adapt to significant adversities or crises effectively-in primary caregivers of children who are deaf and hard of hearing (cDHH) and its association with quality of life, life satisfaction, perceived social support, and loneliness.</p><p><strong>Method: </strong>The study involved 108 primary caregivers of cDHH and 139 primary caregivers of children with normal hearing. Participants underwent psychometric evaluations including the Family Resilience Scale, World Health Organization Quality of Life Assessment-Brief Form, Satisfaction with Life Scale, UCLA Loneliness Scale, and Multidimensional Scale of Perceived Social Support.</p><p><strong>Results: </strong>Significant differences were found in almost every scale and its subdimension between the two groups (<i>p</i> < .05). Correlation analysis revealed significant correlations between all scale total scores for both groups (<i>p</i> < .05, .153 < | <i>r</i> | < .737). Quality of life was found to be a significant predictor of family resilience, <i>F</i>(1, 139) = 41.824, <i>R</i><sup>2</sup> <i>=</i> .279, <i>B</i> = 0.495, <i>t</i> = 6.467, <i>p</i> < .001.</p><p><strong>Conclusions: </strong>Our study highlights the significant impact of having cDHH on caregivers' family resilience, quality of life, life satisfaction, feelings of loneliness, and perceived social support. The results underscore the importance of enhancing caregivers' quality of life as a potential strategy to improve their family resilience. Further research is needed to understand the complex interplay of factors influencing these outcomes.</p>","PeriodicalId":49241,"journal":{"name":"American Journal of Audiology","volume":" ","pages":"705-717"},"PeriodicalIF":1.4000,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Family Resilience in Primary Caregivers of Children Who Are Deaf and Hard of Hearing.\",\"authors\":\"Halide Cetin Kara, Talha Cogen, Fatma Telci\",\"doi\":\"10.1044/2024_AJA-23-00173\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>This study aimed to investigate family resilience-defined as the capacity of a family to harness its collective strengths and resources to recover from and adapt to significant adversities or crises effectively-in primary caregivers of children who are deaf and hard of hearing (cDHH) and its association with quality of life, life satisfaction, perceived social support, and loneliness.</p><p><strong>Method: </strong>The study involved 108 primary caregivers of cDHH and 139 primary caregivers of children with normal hearing. Participants underwent psychometric evaluations including the Family Resilience Scale, World Health Organization Quality of Life Assessment-Brief Form, Satisfaction with Life Scale, UCLA Loneliness Scale, and Multidimensional Scale of Perceived Social Support.</p><p><strong>Results: </strong>Significant differences were found in almost every scale and its subdimension between the two groups (<i>p</i> < .05). Correlation analysis revealed significant correlations between all scale total scores for both groups (<i>p</i> < .05, .153 < | <i>r</i> | < .737). Quality of life was found to be a significant predictor of family resilience, <i>F</i>(1, 139) = 41.824, <i>R</i><sup>2</sup> <i>=</i> .279, <i>B</i> = 0.495, <i>t</i> = 6.467, <i>p</i> < .001.</p><p><strong>Conclusions: </strong>Our study highlights the significant impact of having cDHH on caregivers' family resilience, quality of life, life satisfaction, feelings of loneliness, and perceived social support. The results underscore the importance of enhancing caregivers' quality of life as a potential strategy to improve their family resilience. Further research is needed to understand the complex interplay of factors influencing these outcomes.</p>\",\"PeriodicalId\":49241,\"journal\":{\"name\":\"American Journal of Audiology\",\"volume\":\" \",\"pages\":\"705-717\"},\"PeriodicalIF\":1.4000,\"publicationDate\":\"2024-09-03\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"American Journal of Audiology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1044/2024_AJA-23-00173\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/5/15 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q3\",\"JCRName\":\"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"American Journal of Audiology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1044/2024_AJA-23-00173","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/5/15 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY","Score":null,"Total":0}
引用次数: 0
摘要
目的:本研究旨在调查聋儿和重听儿童(cDHH)主要照顾者的家庭复原力(即一个家庭利用其集体力量和资源从重大逆境或危机中恢复并有效适应的能力)及其与生活质量、生活满意度、感知到的社会支持和孤独感的关系:这项研究涉及 108 名 cDHH 儿童的主要照顾者和 139 名听力正常儿童的主要照顾者。参与者接受了心理测量评估,包括家庭复原力量表、世界卫生组织生活质量评估简表、生活满意度量表、加州大学洛杉矶分校孤独感量表和感知社会支持多维量表:结果:两组人在几乎每个量表及其子量表上都存在显著差异(P < .05)。相关分析表明,两组所有量表总分之间均存在明显相关性(p < .05, .153 < | r | < .737)。研究发现,生活质量是家庭复原力的重要预测因素,F(1, 139) = 41.824, R2 = .279, B = 0.495, t = 6.467, p < .001.结论:我们的研究强调了患有 cDHH 对照顾者的家庭复原力、生活质量、生活满意度、孤独感和感知到的社会支持的重大影响。研究结果强调了提高照顾者生活质量的重要性,这是提高其家庭复原力的潜在策略。要了解影响这些结果的各种因素之间复杂的相互作用,还需要进一步的研究。
Family Resilience in Primary Caregivers of Children Who Are Deaf and Hard of Hearing.
Purpose: This study aimed to investigate family resilience-defined as the capacity of a family to harness its collective strengths and resources to recover from and adapt to significant adversities or crises effectively-in primary caregivers of children who are deaf and hard of hearing (cDHH) and its association with quality of life, life satisfaction, perceived social support, and loneliness.
Method: The study involved 108 primary caregivers of cDHH and 139 primary caregivers of children with normal hearing. Participants underwent psychometric evaluations including the Family Resilience Scale, World Health Organization Quality of Life Assessment-Brief Form, Satisfaction with Life Scale, UCLA Loneliness Scale, and Multidimensional Scale of Perceived Social Support.
Results: Significant differences were found in almost every scale and its subdimension between the two groups (p < .05). Correlation analysis revealed significant correlations between all scale total scores for both groups (p < .05, .153 < | r | < .737). Quality of life was found to be a significant predictor of family resilience, F(1, 139) = 41.824, R2= .279, B = 0.495, t = 6.467, p < .001.
Conclusions: Our study highlights the significant impact of having cDHH on caregivers' family resilience, quality of life, life satisfaction, feelings of loneliness, and perceived social support. The results underscore the importance of enhancing caregivers' quality of life as a potential strategy to improve their family resilience. Further research is needed to understand the complex interplay of factors influencing these outcomes.
期刊介绍:
Mission: AJA publishes peer-reviewed research and other scholarly articles pertaining to clinical audiology methods and issues, and serves as an outlet for discussion of related professional and educational issues and ideas. The journal is an international outlet for research on clinical research pertaining to screening, diagnosis, management and outcomes of hearing and balance disorders as well as the etiologies and characteristics of these disorders. The clinical orientation of the journal allows for the publication of reports on audiology as implemented nationally and internationally, including novel clinical procedures, approaches, and cases. AJA seeks to advance evidence-based practice by disseminating the results of new studies as well as providing a forum for critical reviews and meta-analyses of previously published work.
Scope: The broad field of clinical audiology, including audiologic/aural rehabilitation; balance and balance disorders; cultural and linguistic diversity; detection, diagnosis, prevention, habilitation, rehabilitation, and monitoring of hearing loss; hearing aids, cochlear implants, and hearing-assistive technology; hearing disorders; lifespan perspectives on auditory function; speech perception; and tinnitus.