{"title":"利用人体材料的价值:生物制度分析","authors":"Hadrien Macq, Céline Parotte, Pierre Delvenne","doi":"10.1057/s41292-024-00327-0","DOIUrl":null,"url":null,"abstract":"<p>Human tissues and cells are now recognized as an important source of health and wealth. As such, public authorities have assumed responsibility for regulating their procurement, storage and use. Looking at the interactions between law and life through the lens of ‘bioconstitutionalism’, we specifically ask how human bodily material (HBM) is regulated and explore the resulting changing relationships between citizens, public authorities and researchers in Belgium, a country where the pharmaceutical industry weighs heavily in terms of employment and economic growth. We examine the regulation of HBM and show how the Belgian bioconstitutional order increasingly promotes research by facilitating the availability and use of HBM in the hope that this will fuel the engine of innovation, employment, and economic growth. We argue that this represents a turnaround from traditional conceptions of biological citizenship, as the state’s demand that its citizens donate their HBM for research is reinforced. We emphasize that what it means to be “altruistic” is being reshaped within a new moral economy of donation, without a clear recognition of this reshaping: while citizens are crucial contributors to the development of the bioeconomy, they are excluded from participating in the governance of how this bioeconomy develops. </p>","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":null,"pages":null},"PeriodicalIF":1.3000,"publicationDate":"2024-05-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Harnessing the value of human bodily material: a bioconstitutional analysis\",\"authors\":\"Hadrien Macq, Céline Parotte, Pierre Delvenne\",\"doi\":\"10.1057/s41292-024-00327-0\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>Human tissues and cells are now recognized as an important source of health and wealth. As such, public authorities have assumed responsibility for regulating their procurement, storage and use. Looking at the interactions between law and life through the lens of ‘bioconstitutionalism’, we specifically ask how human bodily material (HBM) is regulated and explore the resulting changing relationships between citizens, public authorities and researchers in Belgium, a country where the pharmaceutical industry weighs heavily in terms of employment and economic growth. We examine the regulation of HBM and show how the Belgian bioconstitutional order increasingly promotes research by facilitating the availability and use of HBM in the hope that this will fuel the engine of innovation, employment, and economic growth. We argue that this represents a turnaround from traditional conceptions of biological citizenship, as the state’s demand that its citizens donate their HBM for research is reinforced. We emphasize that what it means to be “altruistic” is being reshaped within a new moral economy of donation, without a clear recognition of this reshaping: while citizens are crucial contributors to the development of the bioeconomy, they are excluded from participating in the governance of how this bioeconomy develops. </p>\",\"PeriodicalId\":46976,\"journal\":{\"name\":\"Biosocieties\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.3000,\"publicationDate\":\"2024-05-18\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Biosocieties\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1057/s41292-024-00327-0\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"SOCIAL SCIENCES, BIOMEDICAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Biosocieties","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1057/s41292-024-00327-0","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"SOCIAL SCIENCES, BIOMEDICAL","Score":null,"Total":0}
Harnessing the value of human bodily material: a bioconstitutional analysis
Human tissues and cells are now recognized as an important source of health and wealth. As such, public authorities have assumed responsibility for regulating their procurement, storage and use. Looking at the interactions between law and life through the lens of ‘bioconstitutionalism’, we specifically ask how human bodily material (HBM) is regulated and explore the resulting changing relationships between citizens, public authorities and researchers in Belgium, a country where the pharmaceutical industry weighs heavily in terms of employment and economic growth. We examine the regulation of HBM and show how the Belgian bioconstitutional order increasingly promotes research by facilitating the availability and use of HBM in the hope that this will fuel the engine of innovation, employment, and economic growth. We argue that this represents a turnaround from traditional conceptions of biological citizenship, as the state’s demand that its citizens donate their HBM for research is reinforced. We emphasize that what it means to be “altruistic” is being reshaped within a new moral economy of donation, without a clear recognition of this reshaping: while citizens are crucial contributors to the development of the bioeconomy, they are excluded from participating in the governance of how this bioeconomy develops.
期刊介绍:
BioSocieties is committed to the scholarly exploration of the crucial social, ethical and policy implications of developments in the life sciences and biomedicine. These developments are increasing our ability to control our own biology; enabling us to create novel life forms; changing our ideas of ‘normality’ and ‘abnormality’; transforming our understanding of personal identity, family relations, ancestry and ‘race’; altering our social and personal expectations and responsibilities; reshaping global economic opportunities and inequalities; creating new global security challenges; and generating new social, ethical, legal and regulatory dilemmas. To address these dilemmas requires us to break out from narrow disciplinary boundaries within the social sciences and humanities, and between these disciplines and the natural sciences, and to develop new ways of thinking about the relations between biology and sociality and between the life sciences and society.
BioSocieties provides a crucial forum where the most rigorous social research and critical analysis of these issues can intersect with the work of leading scientists, social researchers, clinicians, regulators and other stakeholders. BioSocieties defines the key intellectual issues at the science-society interface, and offers pathways to the resolution of the critical local, national and global socio-political challenges that arise from scientific and biomedical advances.
As the first journal of its kind, BioSocieties publishes scholarship across the social science disciplines, and represents a lively and balanced array of perspectives on controversial issues. In its inaugural year BioSocieties demonstrated the constructive potential of interdisciplinary dialogue and debate across the social and natural sciences. We are becoming the journal of choice not only for social scientists, but also for life scientists interested in the larger social, ethical and policy implications of their work. The journal is international in scope, spanning research and developments in all corners of the globe.
BioSocieties is published quarterly, with occasional themed issues that highlight some of the critical questions and problematics of modern biotechnologies. Articles, response pieces, review essays, and self-standing editorial pieces by social and life scientists form a regular part of the journal.