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Intergenerational narratives of toxicity: understanding heterogeneity and care in a polluted steeltown (Taranto, Italy). 毒性的代际叙述:理解污染钢铁城的异质性和护理(意大利塔兰托)。
IF 1.8 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2025-01-01 Epub Date: 2025-08-25 DOI: 10.1057/s41292-025-00364-3
Raffaele Ippolito, Carmen Sale, Maaret Jokela-Pansini

This article examines environmental narratives amidst chronic industrial pollution across three generations in Taranto, Italy. Drawing on ethnographic research with residents positioned in different historical periods, we show how each generation's understanding of toxicity is intimately tied to shifting economic conditions, political interventions, and embodied experiences in Taranto's polluted landscape. The first generation, closely tied to state-led industrial development, recalls their experience of pride and modernity. The second generation is faced with growing scientific evidence on industrial pollution and institutional scrutiny: they make sense of toxicity by questioning the promise of prosperity that the industrial development and resulting modernity offered. The youngest generation, who grew amid persistent environmental degradation, creates a narrative of pollution as a given dimension of everyday life and one that calls forth community cohesion. By highlighting these intergenerational narratives and their ongoing renegotiations, we shed light on how wellbeing and care are assembled, reworked, and contested over time. In doing so, this paper contributes to more heterogeneous understandings of environmental justice and the ways communities live through, and make sense of, industrial harm.

本文考察了意大利塔兰托三代人长期工业污染中的环境叙事。通过对不同历史时期居民的民族志研究,我们展示了每一代人对毒性的理解是如何与不断变化的经济条件、政治干预和塔兰托污染景观的具体经历密切相关的。第一代与国家主导的工业发展密切相关,回忆起他们的骄傲和现代化经历。第二代人面临着越来越多的关于工业污染和制度审查的科学证据:他们通过质疑工业发展和由此带来的现代化所带来的繁荣前景来理解毒性。在持续的环境恶化中成长起来的最年轻一代,创造了一种关于污染的叙事,将其视为日常生活的一个特定维度,并唤起了社区凝聚力。通过强调这些代际叙述及其正在进行的重新谈判,我们揭示了福祉和护理是如何随着时间的推移而组装、重新设计和争论的。在这样做的过程中,本文有助于对环境正义和社区生活方式的不同理解,并理解工业危害。
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引用次数: 0
'Nonetheless biosocial': experiences and embodied knowledge of birth cohort participants in the UK and Brazil. “尽管如此,生物社会”:英国和巴西出生队列参与者的经验和具体知识。
IF 1.3 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2025-01-01 Epub Date: 2024-12-11 DOI: 10.1057/s41292-024-00344-z
Rosie Mathers, Sahra Gibbon, Taylor Riley, Tatiane Muniz

The relative expansion of biosocial research within the life sciences has generated substantial interest from social sciences, with epigenetic science and scientists the primary target of critical commentary. This has led to a narrow perspective on what the biosocial is and how it is being (re)constituted within scientific research, highlighting a need to engage diverse publics in this unfolding terrain of knowledge making. Whilst birth cohorts are often a central resource and primary context for emerging fields of biosocial and epigenetic research, how cohort participants perceive and understand 'biosocial' interactions in the context of their lifelong and intergenerational participation is less well known. Drawing on pilot study research with birth cohort participants in the UK and Brazil, we comparatively examine how, in the absence of explicit references to a biosocial exemplar of epigenetics, biosocial dynamics are nonetheless understood by participants in relation to (i) embodied experiences, (ii) intergenerational participation, and (iii) understandings of the knowledge the studies aim to produce. Attending to different understandings of biological and social dynamics in diverse publics helps diversify and broaden the conceptual and methodological tools used to engage in and understand what the biosocial is and how it is coming into being.

生命科学中生物社会研究的相对扩展引起了社会科学的极大兴趣,表观遗传科学和科学家是批评评论的主要目标。这导致了对什么是生物社会以及它如何在科学研究中被(重新)构成的狭隘观点,突出了在这个不断发展的知识制造领域吸引不同公众的必要性。虽然出生队列通常是生物社会和表观遗传研究新兴领域的中心资源和主要背景,但队列参与者如何在其一生和代际参与的背景下感知和理解“生物社会”相互作用却鲜为人知。借鉴英国和巴西出生队列参与者的试点研究,我们比较研究了在没有明确参考表观遗传学的生物社会范例的情况下,参与者如何在以下方面理解生物社会动力学:(i)具体化经验,(ii)代际参与,以及(iii)对研究旨在产生的知识的理解。在不同的公众中参与对生物和社会动态的不同理解有助于多样化和拓宽用于参与和理解生物社会是什么以及它是如何形成的概念和方法工具。
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引用次数: 0
Styles of thought in healthcare governance: A situational analysis of English PrEP discourse 2016-2020. 医疗保健治理中的思维方式:2016-2020年英语PrEP话语的情境分析
IF 1.8 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2025-01-01 Epub Date: 2025-04-13 DOI: 10.1057/s41292-025-00351-8
Adam Christianson

Attending to competing styles of thought in healthcare controversies may be helpful to critical health scholarship. This article reexamines the debate over the introduction of a new HIV prevention technology in England as a tension between epidemiological and molecular style of thoughts. I argue English HIV services were organised according to an epidemiological style of thought. The introduction of biomedical pre-exposure prophylaxis (PrEP) to the health system brought this rationality into question in ways the English health system was ill-prepared to manage. A situational analysis of English PrEP discourse in the lead up and following NHS-England's 'U-turn' on PrEP illustrates a split along epidemiologically and biomedically informed styles of thought. These networks have their dedicated administrators, experts, activists and ways of thinking about their target population and preferred organisation of HIV services. Though they often collaborate, these two groups have distinct moral and political agendas that relate to their style of thinking. This analysis further nuances existing critical interpretations of the PrEP controversy in England. Beyond England, this debate suggests a potential departure from the conventional biopolitical subject and rationality of advanced liberalism.

在医疗保健争议中关注竞争的思想风格可能有助于关键的健康学术。这篇文章重新审视了在英国引入一种新的艾滋病预防技术的争论,作为流行病学和分子风格思想之间的紧张关系。我认为英国的艾滋病服务是根据流行病学的思维方式组织起来的。在卫生系统中引入生物医学暴露前预防(PrEP),以英国卫生系统准备不足的方式对这种合理性提出了质疑。在英国国家医疗服务体系(NHS-England)对PrEP的“u型转变”之前和之后,对英语PrEP话语的情景分析表明,在流行病学和生物医学上知情的思维方式上存在分歧。这些网络有专门的管理者、专家、活动家,以及考虑目标人群和首选艾滋病毒服务组织的方式。虽然他们经常合作,但这两个群体有不同的道德和政治议程,这与他们的思维方式有关。这一分析进一步细微差别现有的关键解释PrEP在英国的争议。在英国之外,这场辩论表明,人们可能会偏离传统的生命政治主题和先进自由主义的合理性。
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引用次数: 0
Extra-institutional science: DIY biologists' democratization of scientific practices and spaces. 机构外科学:DIY生物学家对科学实践和空间的民主化。
IF 1.8 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2025-01-01 Epub Date: 2025-01-28 DOI: 10.1057/s41292-024-00347-w
Anna Verena Eireiner

DIY biology, or Do-It-Yourself biology, refers to a movement where individuals and communities establish laboratories outside traditional academic and industrial settings-such as in garages, kitchens, or community spaces. DIY biologists experiment with gene-editing technologies like CRISPR, cultivate glow-in-the-dark plants, and engineering colorful fungi. This practice challenges established norms in research, advocating for decentralized and community-driven approaches to scientific inquiry and innovation. DIY biologists are often trained scientists who choose to conduct their research in community or home laboratories. The DIY biology movement highlights that science's boundaries are flexible and sometimes ambiguous (Gieryn in Am Sociol Rev 48:781-795, 1983). By operating outside traditional research institutions, DIY biologists challenge established authority, hierarchies, funding structures, and proprietary regimes. They create a distinct identity beyond the increasingly neoliberalized institutional spheres of modern knowledge production, showcasing alternative ways to pursue science. I theorize DIY biology as 'extra-institutional science' due to its emergence outside conventional laboratories of industry and academia. This research draws on empirical data from interviews with DIY biologists and the 2021 DIY Biology Community Survey.

DIY生物学,或自己动手生物学,指的是个人和社区在传统的学术和工业环境之外建立实验室的运动,比如在车库、厨房或社区空间。DIY生物学家用CRISPR等基因编辑技术进行实验,培育夜光植物,设计彩色真菌。这种做法挑战了既定的研究规范,提倡采用分散和社区驱动的方法进行科学探究和创新。DIY生物学家通常是训练有素的科学家,他们选择在社区或家庭实验室进行研究。DIY生物学运动强调科学的界限是灵活的,有时是模糊的(Gieryn in Am Sociol Rev 48:781-795, 1983)。通过在传统研究机构之外开展工作,DIY生物学家挑战了既定的权威、等级、资助结构和专有制度。他们在现代知识生产日益新自由主义化的制度领域之外创造了一种独特的身份,展示了追求科学的其他方式。我将DIY生物学理论化为“机构外科学”,因为它出现在工业和学术界的传统实验室之外。本研究借鉴了对DIY生物学家的访谈和2021年DIY生物社区调查的经验数据。
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引用次数: 0
When sociality fails to produce solidarity: environmental NGOs and the politics of public engagement in contemporary China. 当社会性无法产生团结:当代中国的环保非政府组织与公众参与政治。
IF 1.8 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2025-01-01 Epub Date: 2025-06-05 DOI: 10.1057/s41292-025-00358-1
Loretta Ieng Tak Lou, Anna Lisa Lora-Wainwright

This article examines the potentials and limitations of the concept of "chemosociality" (Shapiro and Kirksey, Cultural Anthropology 32:481-493, 2017) through a case study of Emerald, an environmental NGO addressing pollution in China's chemical industry. Based on fieldwork and online research conducted since 2016, the article explores how chemosociality provides a lens to move beyond binary views of a homogeneous frontline community battling against toxic industries. However, it argues that chemosociality alone is insufficient to account for the unevenness of community engagement in environmental advocacy. Drawing on Bradley's concept of biosolidarity (Bradley, Anthropology & Medicine 28:543-557, 2021), the article introduces chemosolidarity and ecosolidarity to highlight Emerald's efforts to foster public participation. While Emerald's attempts to cultivate chemosolidarity were unsuccessful, they nurtured ecosolidarity, grounded in a shared appreciation of nature. This example underscores the need to differentiate between sociality and solidarity and to pay attention to affective rather than effective participation to gain a more nuanced understanding of environmental justice and the complexities of toxicity and environmental advocacy.

本文通过一个研究中国化学工业污染的环保非政府组织翡翠的案例,考察了“化学社会性”概念的潜力和局限性(夏皮罗和柯克西,文化人类学,32:41 1-493,2017)。基于自2016年以来进行的实地调查和在线研究,本文探讨了化学社会性如何提供一个镜头,以超越同质前线社区与有毒工业作斗争的二元观点。然而,它认为,化学社会性本身不足以解释社区参与环境倡导的不平衡。借鉴布拉德利的生物团结概念(布拉德利,人类学与医学28:543-557,2021),文章介绍了化学团结和生态团结,以突出祖母绿为促进公众参与所做的努力。虽然祖母绿培养化学团结的尝试没有成功,但他们培养了基于对自然的共同欣赏的生态团结。这个例子强调需要区分社会性和团结性,注意情感参与而不是有效参与,以便更细致地了解环境正义以及毒性和环境宣传的复杂性。
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引用次数: 0
‘Our biology is listening’: biomarkers as molecular vestiges of early life and the production of positive childhood experiences in behavioral epigenetics 我们的生物学在倾听":作为早期生活分子遗迹的生物标志物与行为表观遗传学中积极童年经历的产生
IF 1.6 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2024-08-31 DOI: 10.1057/s41292-024-00337-y
Robbin Jeffries Hein, Martine Lappé, Fionna Francis Fahey

The sciences of environmental epigenetics and the Developmental Origins of Health and Disease have become central in efforts to understand how early life experiences impact health across the life course. This paper draws on interviews with epigenetic scientists and laboratory observations in the United States and Canada to show how scientists conceptualize epigenetic biomarkers as molecular vestiges of early life and the consequences this has for postgenomic approaches to health, risk, and intervention. We argue that this process demarcates early life as the optimal time to study and intervene in health and positions biomarkers as conceptual and methodological tools that scientists mobilize to reimagine early life environments. These environments include Positive Childhood Experiences (PCEs), which reflect an emergent and increasingly prominent epistemic object in behavioral epigenetics. Though distinct from widespread research on Early Life Adversity, we show how PCEs continue to essentialize experience in gendered and individualized ways. Further, this paper suggests that focusing on biomarkers as molecular vestiges of early life allows scientists to create stability despite ongoing epistemological and biological unknowns in epigenetics and DOHaD. Our findings contribute new perspectives to social studies of epigenetics, biomarkers, and the production of novel epistemic objects in postgenomic knowledge practices.

环境表观遗传学和健康与疾病的发育起源科学已成为了解早期生活经历如何影响整个生命过程健康的核心。本文通过对美国和加拿大的表观遗传学科学家的访谈和实验室观察,展示了科学家如何将表观遗传学生物标志物概念化为早期生命的分子遗迹,以及这对健康、风险和干预的后基因组学方法产生的影响。我们认为,这一过程将生命早期划分为研究和干预健康的最佳时期,并将生物标志物定位为科学家用来重新想象生命早期环境的概念和方法工具。这些环境包括积极童年经历(PCEs),它反映了行为表观遗传学中一个新兴的、日益突出的认识论对象。虽然有别于对早期生活逆境的广泛研究,但我们展示了 PCEs 如何继续以性别化和个性化的方式将经验本质化。此外,本文还提出,尽管表观遗传学和 DOHaD 在认识论和生物学方面仍存在未知数,但将生物标志物作为早期生活的分子遗迹,可以让科学家们创造出稳定性。我们的发现为有关表观遗传学、生物标记物以及后基因组知识实践中新型表观对象的产生的社会研究提供了新的视角。
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引用次数: 0
Anticipating and suspending: the chronopolitics of cryopreservation 预期与暂停:低温保存的时间政治学
IF 1.6 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2024-07-11 DOI: 10.1057/s41292-024-00332-3
Thomas Lemke

The article brings together two disparate and so far largely disconnected bodies of research: the critical analysis of cryopreservation technologies and the debate on modes of anticipation. It starts with a short review of the state of the research on the concept of cryopolitics. In the next part I will suggest two revisions. I will problematize the idea of latent life and the focus on potentialities that have been central to the research on cryopolitics so far, proposing to shift the analytic frame to suspended life on the one hand and to modes of anticipation on the other. I argue that cryopreservation practices are part of contemporary technologies of anticipation. They are linked to a politics of suspension by mobilizing a liminal biological state in which frozen organisms or biological material are neither fully alive nor ultimately dead. This seeks to avert and/or enable distinctive futures by extending temporal horizons and keeping vital processes in limbo.

这篇文章汇集了迄今为止基本上互不关联的两项研究:对低温保存技术的批判性分析和关于预期模式的辩论。文章首先简要回顾了有关低温政治学概念的研究现状。在下一部分中,我将提出两项修订建议。我将对迄今为止一直是低温政治学研究核心的潜伏生命理念和对潜在性的关注提出质疑,建议将分析框架一方面转向悬浮生命,另一方面转向预期模式。我认为,低温保存实践是当代预期技术的一部分。它们与悬浮政治相关联,调动了一种边缘生物状态,在这种状态下,冷冻生物体或生物材料既不是完全活着,也不是最终死亡。这种做法旨在通过延长时间范围和保持生命过程处于停滞状态来避免和/或实现独特的未来。
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引用次数: 0
The politics of suspension suspended: the curious case of a cryopreserved cell product 悬浮政治:冷冻保存细胞产品的奇特案例
IF 1.6 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2024-07-09 DOI: 10.1057/s41292-024-00328-z
Ruzana Liburkina

Following recent discussions around suspended life, this paper focuses on an endeavor that sought to arrest biological material in time and space and render it available on demand. It depicts the attempt to establish a collection of cryopreserved donated cells. The study offers rare insights into how this initiative was at odds with familiar politics significant in its field, those of innovation and preparedness, and therefore was suspended itself. In identifying parallels with accounts of unsuccessful biobanks, the paper makes a case for the analytical value of considering ill-fated projects of suspension along with those that prosper and attract public attention. The case of a novel cryo-collection, in particular, demonstrates how the idea and practice of suspension only gathers political momentum when it serves other well-established rationales. As such, it prompts two important conclusions. First, the power to arrest life as it comes with cryotechnologies is much more likely to unravel in entrenched constellations than to carry transformative or disruptive potential. Second, however, the paper also exemplifies that projects of suspension are not necessarily doomed to serve hegemonic ways of governing life. It advocates for preventing such mismatches from falling into oblivion.

继最近围绕悬浮生命的讨论之后,本文重点介绍了一种试图在时间和空间上固定生物材料并使其按需提供的努力。它描述了建立冷冻保存捐赠细胞库的尝试。这项研究提供了罕见的见解,揭示了这一举措是如何与人们熟悉的、在其领域具有重要意义的政治--创新和准备--相抵触,并因此被中止的。通过找出与不成功的生物库相似之处,本文论证了将命运多舛的中止项目与成功并吸引公众关注的项目一并考虑的分析价值。特别是新型低温采集的案例表明,只有当暂停的想法和做法符合其他既定理由时,它才会获得政治动力。因此,它提出了两个重要结论。首先,冷冻技术带来的剥夺生命的力量更有可能在根深蒂固的关系中瓦解,而不是带来变革或破坏性的潜力。其次,本文还举例说明,悬浮项目并不一定注定要服务于管理生命的霸权方式。本文主张防止这种错配被遗忘。
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引用次数: 0
What is the cure for absolute infertility? Biomedicalisation and routinisation of surrogacy and uterus transplantation in Nordic medical journals 如何治疗绝对不孕症?北欧医学期刊中代孕和子宫移植的生物医学化和常规化
IF 1.6 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2024-07-09 DOI: 10.1057/s41292-024-00333-2
Lise Eriksson

This article investigates 20 years of discursive struggles in Nordic medical journals around the process of legitimating and routinising gestational surrogacy and uterus transplantation in Finland and Sweden. The comparative analysis through critical discourse analysis suggests that influential health care professionals have contributed to different levels of legal and cultural adaptation of the methods, prioritising non-commercial gestational surrogacy in Finland and uterus transplantation in Sweden. The article identifies central discursive turning points in the medical journal discussions by interpreting them against the background of medical and policy developments in Finland and Sweden during the analysed twenty-year period. Legitimation and routinisation of surrogacy and uterus transplantation were developed through biomedicalisation by representing them as infertility treatments and emphasising the relational dynamics between donors and recipients—a connection that in the Nordic context is often based on kinship or close relationships. The diagnosis of absolute uterine factor infertility was central to representing women as on the boundary between fertile and infertile, as they may have functioning ovaries. Through the biomedicalised rhetoric of equal opportunities for biogenetic motherhood, the diagnosed women’s ambiguous reproductive status was used to legitimise the two methods as cures for absolute infertility, thereby reinforcing hegemonic family and kinship norms.

本文研究了20年来北欧医学期刊围绕芬兰和瑞典妊娠代孕和子宫移植的合法化和常规化进程所展开的话语斗争。通过批判性话语分析进行的比较分析表明,有影响力的医疗保健专业人士在不同程度上促进了这些方法在法律和文化上的适应性,在芬兰优先考虑非商业性妊娠代孕,在瑞典优先考虑子宫移植。文章根据所分析的二十年间芬兰和瑞典的医疗和政策发展背景,对医学期刊讨论中的核心话语转折点进行了解读。代孕和子宫移植的合法化和常规化是通过生物医学化发展起来的,将其表现为不孕不育治疗方法,并强调捐赠者和接受者之间的关系动态--在北欧,这种关系通常建立在亲属或亲密关系的基础上。绝对子宫因素不孕症的诊断是代表妇女处于可育与不育界限的核心,因为她们可能有功能正常的卵巢。通过生物医学化的 "生儿育女机会均等 "的说辞,被诊断妇女模糊的生殖状况被用来使这两种方法合法化,作为绝对不孕症的治疗方法,从而强化了霸权的家庭和亲属关系规范。
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引用次数: 0
From brain “scar” to “bat shit crazy”: negotiating the madness of sexual violence discourse 从脑部 "疤痕 "到 "蝙蝠屎一样的疯狂":就性暴力话语的疯狂进行谈判
IF 1.6 4区 医学 Q4 SOCIAL SCIENCES, BIOMEDICAL Pub Date : 2024-07-09 DOI: 10.1057/s41292-024-00334-1
Emma Yapp

This article analyses how people who identify with psychiatric diagnoses in England and Wales make sense of and talk about their experiences of sexual violence. I examine how interview participants engaged with the hegemonic trauma discourse, as well as the consequences of this for meaning-making, affective pain, and the feminist imperative to ‘speak out’. The hegemonic trauma discourse is characterised by leaving a psychological ‘scar’; is premised on a sudden interruption to a ‘good life’; and is considered pathologically unspeakable without intervention. This discourse was both validating and affectively painful for participants, and interventions targeting dissociation were helpful for assuaging distress. However, it was additionally normative and exclusionary, and did not fulfil the political promise of ‘speaking out’, as all participants faced myriad socio-political denial.

本文分析了在英格兰和威尔士被诊断为精神病的人是如何理解和谈论他们的性暴力经历的。我研究了访谈参与者是如何参与霸权创伤话语的,以及这种话语对意义建构、情感痛苦和女权主义者 "说出来 "的必要性所产生的后果。霸权创伤话语的特点是留下心理 "伤疤";以 "美好生活 "的突然中断为前提;并被认为在没有干预的情况下是不可言说的。对参与者来说,这种话语既是有效的,也是痛苦的,针对解离的干预措施有助于缓解痛苦。然而,它还具有规范性和排斥性,并没有实现 "说出真相 "的政治承诺,因为所有参与者都面临着无数的社会政治否定。
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引用次数: 0
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