运动神经元病症状管理和疾病进展监测方面的进展。

International review of neurobiology Pub Date : 2024-01-01 Epub Date: 2024-05-22 DOI:10.1016/bs.irn.2024.04.004
Esther Hobson, Christopher McDermott
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引用次数: 0

摘要

对运动神经元疾病进行支持性治疗的目的是提高患者的存活率、促进良好的生活质量、增强患者的独立性和自主性,同时为未来的病情发展和生命的终结做好准备。多学科专科护理旨在解决与运动神经元疾病相关的多方面、相互影响的生物心理社会问题,从而使患者在生存和生活质量方面获益。本章将探讨治疗方案的原则、结构和细节,并为实践和未来研究提出建议。
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Advances in symptom management and in monitoring disease progression in motor neuron disease.

The aim of supportive management of motor neuron disease is to improve survival, promote good quality of life and patient independence and autonomy whilst preparing for future progression and the end of life. Multidisciplinary specialist care aims to address the multifaceted and interacting biopsychosocial problems associated with motor neuron disease that leads to proven benefits in both survival and quality of life. This chapter will explore principles, structure and details of treatment options, and make recommendations for practice and for future research.

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