银屑病患者报告的疗效、依从性和满意度。

IF 3.8 Q1 DERMATOLOGY Actas dermo-sifiliograficas Pub Date : 2025-02-01 DOI:10.1016/j.ad.2024.05.021
J. Perales Pascual , H. Navarro Aznárez , A. López Pérez , T. Gracia-Cazaña , Y. Gilaberte Calzada , Mª R. Abad Sazatornil
{"title":"银屑病患者报告的疗效、依从性和满意度。","authors":"J. Perales Pascual ,&nbsp;H. Navarro Aznárez ,&nbsp;A. López Pérez ,&nbsp;T. Gracia-Cazaña ,&nbsp;Y. Gilaberte Calzada ,&nbsp;Mª R. Abad Sazatornil","doi":"10.1016/j.ad.2024.05.021","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><div>Patient-reported outcomes (PROs) are outcomes evaluated by patients based on their perception of their disease and treatment.</div></div><div><h3>Objectives</h3><div>Determine antipsoriatic treatment-related adherence, quality of life (QoL) and satisfaction.</div></div><div><h3>Materials and Methods</h3><div>We conducted an observational cross-sectional, prospective, and single-center study in which PROs surveys were conducted on adherence (Morisky-Green [MG] test), treatment satisfaction (Spanish Questionnaire of Treatment Satisfaction in Psoriasis [CESTEP]) and QoL (Skindex-29 and DLQI). Additional variables include: PASI, BSA. Statistical analysis: Jamovi®2.3.26.</div></div><div><h3>Results</h3><div>A total of 100 surveys were conducted. Based on the MG questionnaire, we found that 75% (75/100) of patients were adherent vs 94% (94/100) from the dispensation records. Regarding CESTEP, a mean score of 7.4<!--> <!-->±<!--> <!-->7.7 (close to maximum satisfaction 0) was obtained, while DLQI yielded a score of 2.6<!--> <!-->±<!--> <!-->4.6 (indicating a small effect on QoL), and SKINDEX-29 a score of 14.6<!--> <!-->±<!--> <!-->15.4 (68% indicating mild (&lt; 5) or very mild (6-17) impact according to Nijsten et al.).</div><div>Based on CESTEP a p.Rho Spearman value of 0.338 (p<!--> <!-->=<!--> <!-->0.004) was obtained in relation to PASI when the study was conducted with a BSA of 0.255 (p<!--> <!-->=<!--> <!-->0.050), DLQI results of 0.508 (p &lt;<!--> <!-->0.001) and Skindex-29 results of 0.397(p &lt;<!--> <!-->0.001). At the time of the study, the correlation matrix between DLQI result and PASI was 0.365 (p<!--> <!-->=<!--> <!-->0.002) with a BSA of 0.347 (p<!--> <!-->=<!--> <!-->0.007). Skindex-29 results with PASI were 0.380 (p<!--> <!-->=<!--> <!-->0.001) and with BSA, 0.295 (p<!--> <!-->=<!--> <!-->0.022).</div></div><div><h3>Conclusions</h3><div>Patients on therapy exhibit a good QoL, high adherence and satisfaction with their treatment. A significant correlation was seen among satisfaction, QoL, and PASI-BSA at the time of the study.</div></div>","PeriodicalId":7173,"journal":{"name":"Actas dermo-sifiliograficas","volume":"116 2","pages":"Pages 141-146"},"PeriodicalIF":3.8000,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Resultados comunicados por el paciente, adherencia y satisfacción en pacientes con psoriasis\",\"authors\":\"J. Perales Pascual ,&nbsp;H. Navarro Aznárez ,&nbsp;A. López Pérez ,&nbsp;T. Gracia-Cazaña ,&nbsp;Y. Gilaberte Calzada ,&nbsp;Mª R. Abad Sazatornil\",\"doi\":\"10.1016/j.ad.2024.05.021\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Background</h3><div>Patient-reported outcomes (PROs) are outcomes evaluated by patients based on their perception of their disease and treatment.</div></div><div><h3>Objectives</h3><div>Determine antipsoriatic treatment-related adherence, quality of life (QoL) and satisfaction.</div></div><div><h3>Materials and Methods</h3><div>We conducted an observational cross-sectional, prospective, and single-center study in which PROs surveys were conducted on adherence (Morisky-Green [MG] test), treatment satisfaction (Spanish Questionnaire of Treatment Satisfaction in Psoriasis [CESTEP]) and QoL (Skindex-29 and DLQI). Additional variables include: PASI, BSA. Statistical analysis: Jamovi®2.3.26.</div></div><div><h3>Results</h3><div>A total of 100 surveys were conducted. Based on the MG questionnaire, we found that 75% (75/100) of patients were adherent vs 94% (94/100) from the dispensation records. Regarding CESTEP, a mean score of 7.4<!--> <!-->±<!--> <!-->7.7 (close to maximum satisfaction 0) was obtained, while DLQI yielded a score of 2.6<!--> <!-->±<!--> <!-->4.6 (indicating a small effect on QoL), and SKINDEX-29 a score of 14.6<!--> <!-->±<!--> <!-->15.4 (68% indicating mild (&lt; 5) or very mild (6-17) impact according to Nijsten et al.).</div><div>Based on CESTEP a p.Rho Spearman value of 0.338 (p<!--> <!-->=<!--> <!-->0.004) was obtained in relation to PASI when the study was conducted with a BSA of 0.255 (p<!--> <!-->=<!--> <!-->0.050), DLQI results of 0.508 (p &lt;<!--> <!-->0.001) and Skindex-29 results of 0.397(p &lt;<!--> <!-->0.001). At the time of the study, the correlation matrix between DLQI result and PASI was 0.365 (p<!--> <!-->=<!--> <!-->0.002) with a BSA of 0.347 (p<!--> <!-->=<!--> <!-->0.007). Skindex-29 results with PASI were 0.380 (p<!--> <!-->=<!--> <!-->0.001) and with BSA, 0.295 (p<!--> <!-->=<!--> <!-->0.022).</div></div><div><h3>Conclusions</h3><div>Patients on therapy exhibit a good QoL, high adherence and satisfaction with their treatment. A significant correlation was seen among satisfaction, QoL, and PASI-BSA at the time of the study.</div></div>\",\"PeriodicalId\":7173,\"journal\":{\"name\":\"Actas dermo-sifiliograficas\",\"volume\":\"116 2\",\"pages\":\"Pages 141-146\"},\"PeriodicalIF\":3.8000,\"publicationDate\":\"2025-02-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Actas dermo-sifiliograficas\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0001731024004915\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"DERMATOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Actas dermo-sifiliograficas","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0001731024004915","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"DERMATOLOGY","Score":null,"Total":0}
引用次数: 0

摘要

背景和目的:患者报告的结果(PROs)是患者根据自己对疾病和治疗的感知进行评估的结果。PROs的目的是确定与抗银屑病治疗相关的依从性、生活质量(QoL)和满意度:我们进行了一项观察性横断面、前瞻性和单中心研究,对患者的依从性(莫里斯基-格林[MG]测试)、治疗满意度(西班牙银屑病治疗满意度问卷[CESTEP])和生活质量(Skindex-29 和 DLQI)进行了 PROs 调查。其他变量包括统计分析:统计分析:Jamovi®2.3.26:共进行了 100 次调查。根据 MG 问卷,我们发现 75% (75/100)的患者坚持用药,而根据配药记录,坚持用药的患者比例为 94%(94/100)。关于 CESTEP,平均得分为 7.4 ± 7.7(接近最高满意度 0),而 DLQI 得分为 2.6 ± 4.6(表明对 QoL 的影响较小),SKINDEX-29 得分为 14.6 ± 15.4(根据 Nijsten 等人的研究,68% 表明影响较轻(< 5)或很轻(6-17)))。根据 CESTEP,在进行 BSA 为 0.255(p = 0.050)、DLQI 为 0.508(p < 0.001)和 Skindex-29 为 0.397(p < 0.001)的研究时,PASI 的 p.Rho Spearman 值为 0.338(p = 0.004)。在研究期间,DLQI 结果与 PASI 之间的相关矩阵为 0.365(p = 0.002),BSA 为 0.347(p = 0.007)。Skindex-29结果与PASI的相关系数为0.380(p = 0.001),与BSA的相关系数为0.295(p = 0.022):结论:接受治疗的患者表现出良好的生活质量、较高的依从性和对治疗的满意度。结论:接受治疗的患者表现出良好的生活质量、较高的依从性和对治疗的满意度。在研究期间,满意度、生活质量和 PASI-BSA 之间存在明显的相关性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
Resultados comunicados por el paciente, adherencia y satisfacción en pacientes con psoriasis

Background

Patient-reported outcomes (PROs) are outcomes evaluated by patients based on their perception of their disease and treatment.

Objectives

Determine antipsoriatic treatment-related adherence, quality of life (QoL) and satisfaction.

Materials and Methods

We conducted an observational cross-sectional, prospective, and single-center study in which PROs surveys were conducted on adherence (Morisky-Green [MG] test), treatment satisfaction (Spanish Questionnaire of Treatment Satisfaction in Psoriasis [CESTEP]) and QoL (Skindex-29 and DLQI). Additional variables include: PASI, BSA. Statistical analysis: Jamovi®2.3.26.

Results

A total of 100 surveys were conducted. Based on the MG questionnaire, we found that 75% (75/100) of patients were adherent vs 94% (94/100) from the dispensation records. Regarding CESTEP, a mean score of 7.4 ± 7.7 (close to maximum satisfaction 0) was obtained, while DLQI yielded a score of 2.6 ± 4.6 (indicating a small effect on QoL), and SKINDEX-29 a score of 14.6 ± 15.4 (68% indicating mild (< 5) or very mild (6-17) impact according to Nijsten et al.).
Based on CESTEP a p.Rho Spearman value of 0.338 (p = 0.004) was obtained in relation to PASI when the study was conducted with a BSA of 0.255 (p = 0.050), DLQI results of 0.508 (p < 0.001) and Skindex-29 results of 0.397(p < 0.001). At the time of the study, the correlation matrix between DLQI result and PASI was 0.365 (p = 0.002) with a BSA of 0.347 (p = 0.007). Skindex-29 results with PASI were 0.380 (p = 0.001) and with BSA, 0.295 (p = 0.022).

Conclusions

Patients on therapy exhibit a good QoL, high adherence and satisfaction with their treatment. A significant correlation was seen among satisfaction, QoL, and PASI-BSA at the time of the study.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
1.90
自引率
9.40%
发文量
473
审稿时长
56 weeks
期刊介绍: Actas Dermo-Sifiliográficas, publicación Oficial de la Academia Española de Dermatología y Venereología, es una revista de prestigio consolidado. Creada en 1909, es la revista mensual más antigua editada en España.En 2006 entró en Medline, y hoy resulta imprescindible para estar al día sobre la dermatología española y mundial.
期刊最新文献
Acral melanoma in the Caucasian population: a comprehensive cohort study on epidemiological, clinicopathological, and prognostic features. Erythema Elevatum Diutinum Habones, pápulas, adenopatías y sintomatología sistémica en mujer de mediana edad Conocimientos y hábitos sobre fotoprotección en estudiantes de Medicina españoles e italianos Invasive Fusariosis With Nasal Septum Involvement: Case Report of a 7-Year-Old Boy
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1