欧洲卫生信息门户网站:一站式卫生信息服务。

IF 3.7 3区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH European Journal of Public Health Pub Date : 2024-07-01 DOI:10.1093/eurpub/ckad172
Hanna Tolonen, Miriam Saso, Brigid Unim, Luigi Palmieri, Nienke Schutte, Mariana Peyroteo, Luís Velez Lapão, Claudia Habl, Petronille Bogaert
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引用次数: 0

摘要

背景:需要及时提供高质量的人口健康信息,以支持循证决策,规划和评估预防、护理和治疗活动,以及开展研究以产生新的知识。FAIR(可查找、可访问、可互操作和可重复使用)原则是支持健康研究的关键要素之一,通过重复使用现有数据,使健康研究更具成本效益。目前,许多国家的健康数据分散,难以查找和获取:方法:欧盟公共卫生计划共同资助的两项联合行动--"信息促进行动(InfAct)"和 "人口健康信息研究基础设施(PHIRI)"建立了欧洲健康信息门户网站,这是一项基于网络的服务,旨在促进现有健康信息的可查找性、可访问性、互操作性和再利用:欧洲健康信息门户网站(www.healthinformationportal.eu)已经建立,其中包括国家节点、数据来源、出版物、各国和整个欧洲的健康信息项目、研究网络和研究基础设施、健康信息交流和使用的伦理和法律问题、人口健康所有领域的能力建设活动以及 COVID-19 专节:欧洲卫生信息门户网站是欧盟成员国各种人口卫生信息的中心,是研究人员、政策制定者和其他利益相关者的信息来源。确保门户网站的可持续性非常重要,特别是考虑到欧洲健康数据空间(EHDS)条例提案及其对健康数据二次使用的要求。
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European Health Information Portal: a one-stop shop for health information.

Background: Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access.

Methods: Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information.

Results: The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section.

Conclusions: The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.

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来源期刊
European Journal of Public Health
European Journal of Public Health 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.60
自引率
2.30%
发文量
2039
审稿时长
3-8 weeks
期刊介绍: The European Journal of Public Health (EJPH) is a multidisciplinary journal aimed at attracting contributions from epidemiology, health services research, health economics, social sciences, management sciences, ethics and law, environmental health sciences, and other disciplines of relevance to public health. The journal provides a forum for discussion and debate of current international public health issues, with a focus on the European Region. Bi-monthly issues contain peer-reviewed original articles, editorials, commentaries, book reviews, news, letters to the editor, announcements of events, and various other features.
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