沙特阿拉伯嗜酸性粒细胞食管炎患儿的生活质量

IF 2.5 4区医学 Q2 HEALTH POLICY & SERVICES Journal of Pediatric Health Care Pub Date : 2024-09-01 DOI:10.1016/j.pedhc.2024.06.001

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引用次数: 0

摘要

简介嗜酸性粒细胞食管炎（EoE）是一种食管慢性炎症性疾病，会对儿童的生活质量（QOL）产生不利影响。我们旨在调查嗜酸性粒细胞食管炎对 2-18 岁儿童生活质量的影响，并找出影响其生活质量的因素：方法：在六家沙特儿科医院开展了一项多中心横断面研究。方法：在沙特六家儿科医院进行了一项多中心横断面研究，使用儿科生活质量 3.0 埃博拉模块测量埃博拉患儿的生活质量：结果：36 个家庭（36 名家长和 33 名儿童）参加了研究。报告最多的症状是呕吐（50%）、吞咽困难（44.4%）和食物嵌塞（36.1%）。小儿肠易激综合征生活质量家长代理报告的平均总分为（82.9 ± 10.3）分，而儿童自我报告的总分为（77.28 ± 13.6）分（P = .043）：讨论：反复去急诊室就诊与较低的生活质量有关，而有阳性家族咽喉炎病史与较好的生活质量有关。

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Quality of Life in Children With Eosinophilic Esophagitis in Saudi Arabia

Introduction

Eosinophilic esophagitis (EoE) is a chronic inflammatory disease of the esophagus that can adversely affect the quality of life (QOL) in children. We aim to investigate the burden of EoE on the QOL in children aged 2–18 years and identify factors that influence their QOL.

Method

A multicenter cross-sectional study was conducted in six Saudi pediatric hospitals. Pediatric Quality of Life 3.0 EoE Module was used to measure the QOL of children with EoE.

Results

Thirty-six families (36 parents and 33 children) were enrolled. The most reported symptoms were vomiting (50%), dysphagia (44.4%), and food impaction (36.1%). The mean total score of the parent-proxy report of the Pediatric Quality of Life EoE was 82.9 ± 10.3 versus the children's self-reported score of 77.28 ± 13.6 (p = .043).

Discussion

Recurrent emergency department visits were associated with a lower QOL, and a positive family history of EoE was associated with a better QOL.

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来源期刊

Journal of Pediatric Health Care NURSING-PEDIATRICS

CiteScore

3.40

自引率

10.70%

发文量

140

审稿时长

24 days

期刊介绍： The Journal of Pediatric Health Care, the official journal of the National Association of Pediatric Nurse Practitioners, provides scholarly clinical information and research regarding primary, acute and specialty health care for children of newborn age through young adulthood within a family-centered context. The Journal disseminates multidisciplinary perspectives on evidence-based practice and emerging policy, advocacy and educational issues that are of importance to all healthcare professionals caring for children and their families.