{"title":"医护人员在老年人姑息关怀中使用电子健康的经验:挑战、妥协和尊严的代价。","authors":"Rada Sandic Spaho, Lisbeth Uhrenfeldt, Theofanis Fotis, Jorunn Bjerkan, Ingjerd Gåre Kymre","doi":"10.1080/17482631.2024.2374733","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>To explore whether and how eHealth solutions support the dignity of healthcare professionals and patients in palliative care contexts.</p><p><strong>Method: </strong>This qualitative study used phenomenographic analysis involving four focus group interviews, with healthcare professionals who provide palliative care to older people.</p><p><strong>Results: </strong>Analysis revealed four categories of views on working with eHealth in hierarchical order: <i>Safeguarding the patient by documenting-eHealth is a</i> <i>grain of support, Treated as less worthy by authorities-double standards, Distrust in the eHealth solution-when the \"solution\" presents a</i> <i>danger;</i> and <i>Patient first-personal contact with patients endows more dignity than eHealth</i>. The ability to have up-to-date patient information was considered crucial when caring for vulnerable, dying patients. eHealth solutions were perceived as essential technological support, but also as unreliable, even dangerous, lacking patient information, with critical information potentially missing or overlooked. This caused distrust in eHealth, introduced unease at work, and challenged healthcare professionals' identities, leading to embodied discomfort and feeling of a lack of dignity.</p><p><strong>Conclusion: </strong>The healthcare professionals perceived work with eHealth solutions as challenging their sense of dignity, and therefore affecting their ability to provide dignified care for the patients. However, healthcare professionals managed to provide dignified palliative care by focusing on patient first.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2374733"},"PeriodicalIF":2.1000,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11249141/pdf/","citationCount":"0","resultStr":"{\"title\":\"Healthcare professionals' experiences of eHealth in palliative care for older people: challenges, compromises and the price of dignity.\",\"authors\":\"Rada Sandic Spaho, Lisbeth Uhrenfeldt, Theofanis Fotis, Jorunn Bjerkan, Ingjerd Gåre Kymre\",\"doi\":\"10.1080/17482631.2024.2374733\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>To explore whether and how eHealth solutions support the dignity of healthcare professionals and patients in palliative care contexts.</p><p><strong>Method: </strong>This qualitative study used phenomenographic analysis involving four focus group interviews, with healthcare professionals who provide palliative care to older people.</p><p><strong>Results: </strong>Analysis revealed four categories of views on working with eHealth in hierarchical order: <i>Safeguarding the patient by documenting-eHealth is a</i> <i>grain of support, Treated as less worthy by authorities-double standards, Distrust in the eHealth solution-when the \\\"solution\\\" presents a</i> <i>danger;</i> and <i>Patient first-personal contact with patients endows more dignity than eHealth</i>. The ability to have up-to-date patient information was considered crucial when caring for vulnerable, dying patients. eHealth solutions were perceived as essential technological support, but also as unreliable, even dangerous, lacking patient information, with critical information potentially missing or overlooked. This caused distrust in eHealth, introduced unease at work, and challenged healthcare professionals' identities, leading to embodied discomfort and feeling of a lack of dignity.</p><p><strong>Conclusion: </strong>The healthcare professionals perceived work with eHealth solutions as challenging their sense of dignity, and therefore affecting their ability to provide dignified care for the patients. However, healthcare professionals managed to provide dignified palliative care by focusing on patient first.</p>\",\"PeriodicalId\":51468,\"journal\":{\"name\":\"International Journal of Qualitative Studies on Health and Well-Being\",\"volume\":\"19 1\",\"pages\":\"2374733\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2024-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11249141/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International Journal of Qualitative Studies on Health and Well-Being\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/17482631.2024.2374733\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/7/11 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Qualitative Studies on Health and Well-Being","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17482631.2024.2374733","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/7/11 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
Healthcare professionals' experiences of eHealth in palliative care for older people: challenges, compromises and the price of dignity.
Purpose: To explore whether and how eHealth solutions support the dignity of healthcare professionals and patients in palliative care contexts.
Method: This qualitative study used phenomenographic analysis involving four focus group interviews, with healthcare professionals who provide palliative care to older people.
Results: Analysis revealed four categories of views on working with eHealth in hierarchical order: Safeguarding the patient by documenting-eHealth is agrain of support, Treated as less worthy by authorities-double standards, Distrust in the eHealth solution-when the "solution" presents adanger; and Patient first-personal contact with patients endows more dignity than eHealth. The ability to have up-to-date patient information was considered crucial when caring for vulnerable, dying patients. eHealth solutions were perceived as essential technological support, but also as unreliable, even dangerous, lacking patient information, with critical information potentially missing or overlooked. This caused distrust in eHealth, introduced unease at work, and challenged healthcare professionals' identities, leading to embodied discomfort and feeling of a lack of dignity.
Conclusion: The healthcare professionals perceived work with eHealth solutions as challenging their sense of dignity, and therefore affecting their ability to provide dignified care for the patients. However, healthcare professionals managed to provide dignified palliative care by focusing on patient first.
期刊介绍:
International Journal of Qualitative Studies on Health and Well-being acknowledges the international and interdisciplinary nature of health-related issues. It intends to provide a meeting-point for studies using rigorous qualitative methodology of significance for issues related to human health and well-being. The aim of the International Journal of Qualitative Studies on Health and Well-being is to support and to shape the emerging field of qualitative studies and to encourage a better understanding of all aspects of human health and well-being.