心中的数字未来:为什么必须以生活体验合作指导数字心理健康技术?

Kellie Gilbert, Ian Muchamore, Simon Katterl, Hayley Purdon, Andy Allen, Ingrid Ozols, Piers Gooding
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引用次数: 0

摘要

数字心理健康技术和服务已经出现。更多的技术和服务正在到来。这些技术和服务既带来了风险,也带来了机遇。在最好的情况下,它们可能会增强我们的社会系统和社区中最人性化、社区化和充满关爱的部分。在最坏的情况下,它们可能会强化以还原论的方式来处理痛苦和危机,加强监视和控制,以及从寻求护理的人们那里获取数据和财富。在本文中,我们认为,以生活经验为主导的治理和这些技术与服务的合作开发将带来最好的机遇,并降低最大的风险。本文提供了一篇评论,该评论由具有和不具有生活经验的作者撰写,探讨了数字心理健康技术和服务中的责任问题。本评论为有志于支持以生活经验为主导的数字心理健康技术合作治理的人士提供指导。本指南借鉴了跨学科研究、以生活经验为主导的研究和灰色文献,帮助读者理解为什么要开展合作,何时、何地、与谁合作,合作可以从哪些问题开始,以及合作者应如何开展合作。
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Digital futures in mind: Why lived experience collaboration must guide digital mental health technologies
Digital mental health technologies and services are here. More are coming. Such technologies and services present both risks and opportunities. At their best, they may enhance the most humane, communal and caring parts of our social systems and communities. At their worst, they may reinforce reductionist approaches to distress and crisis, increase surveillance and control, as well as extracting data and wealth from people seeking care. In this paper, we argue that lived experience‐led governance and collaborative development of these technologies and services will enhance the best opportunities and mitigate against the biggest risks. This paper provides a commentary emerging from work by authors with lived experience, and those without, that explored accountability in digital mental health technologies and services. The commentary offers guidance to anyone interested in supporting lived experience‐led, and collaborative governance of, digital mental health technologies. This guidance, drawing on interdisciplinary and lived experience‐led research and grey literature, assists readers in understanding why collaboration should take place, when, where and with whom, on what issues this could start, and how collaborators should approach this.
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