后天性脑损伤患者照顾者的负担:家庭角色和性别的影响。

IF 1.7 4区 医学 Q3 CLINICAL NEUROLOGY NeuroRehabilitation Pub Date : 2024-01-01 DOI:10.3233/NRE-240056
Francesco Corallo, Maria Grazia Maggio, Lilla Bonanno, Rosaria De Luca, Davide Cardile, Irene Cappadona, Antonino Todaro, Rocco Salvatore Calabrò
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引用次数: 0

摘要

背景:获得性脑损伤(ABI)是一种神经系统疾病,可在创伤和非创伤事件后发生。除了患者面临的身体、情感和认知方面的挑战外,这些损伤还会给患者及其家人的生活带来变化:本研究旨在通过考察家庭角色、性别和年龄等可能对家庭动态产生重大影响的因素,了解损伤性脑损伤的发生如何扰乱和重塑家庭功能:方法:我们招募了 86 名 ABI 患者的照顾者。两位经验丰富的心理学家使用奥尔索家庭适应性和凝聚力评定量表(FACES IV)检查了家庭功能:各组间的相关性仅在灵活性方面存在显著差异(p = 0.05)。具体而言,男性照顾者的灵活性更高,尤其是儿子。尽管发生了 ABI 事件,但定义家庭功能的大多数结构(如沟通)保持不变:这项研究让我们深入了解了家庭如何面对 ABI 带来的挑战,以及照顾者在这个系统中扮演的角色。
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Burden in caregivers of patients with acquired brain injury: Influence of family role and gender.

Background: Acquired brain injuries (ABI) represent neurological disorders that can arise after traumatic and non-traumatic events. In addition to the physical, emotional and cognitive challenges that patients face, these injuries can bring changes in the life of the patient and his or her family.

Objective: This study aims to understand how the occurrence of an ABI condition can disrupt and reshape family functioning by examining certain dimensions such as role in the family, gender and age, which may have a major influence on family dynamics.

Methods: We enrolled 86 caregivers of patients with ABI. Two experienced psychologists examined family functioning with Olso's Family Adaptability and Cohesion Rating Scale (FACES IV).

Results: The correlation between groups by generics showed a significant difference only for flexibility (p = 0.05). Specifically, flexibility was greater in male caregivers, particularly in sons. Most of the constructs defining family functioning, such as communication, remained unchanged despite the ABI event.

Conclusion: This study provides an in-depth understanding of how families face the challenges posed by the ABI and the role caregivers play within the system.

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来源期刊
NeuroRehabilitation
NeuroRehabilitation CLINICAL NEUROLOGY-REHABILITATION
CiteScore
3.20
自引率
0.00%
发文量
178
审稿时长
6-12 weeks
期刊介绍: NeuroRehabilitation, an international, interdisciplinary, peer-reviewed journal, publishes manuscripts focused on scientifically based, practical information relevant to all aspects of neurologic rehabilitation. We publish unsolicited papers detailing original work/research that covers the full life span and range of neurological disabilities including stroke, spinal cord injury, traumatic brain injury, neuromuscular disease and other neurological disorders. We also publish thematically organized issues that focus on specific clinical disorders, types of therapy and age groups. Proposals for thematic issues and suggestions for issue editors are welcomed.
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