照顾罹患血癌的父母:兄弟姐妹之间的沟通挑战与心理社会结果

Kevin B. Wright, Carma L. Bylund, D. Bagautdinova, Chelsea N Hampton, G. Campbell-Salome, E. Weiss, M. Sae-Hau, Carla L. Fisher
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引用次数: 0

摘要

这项探索性调查研究采用定量和定性分析方法,旨在(a)确定父母患有血癌的成年子女照顾者在与兄弟姐妹沟通时遇到的挑战,以及(b)研究这些挑战与照顾者的负担、社会支持、家庭开放性和临床沟通质量之间的关系。共有 95 名有兄弟姐妹的照顾者参与了在线调查。我们对开放式回答进行了定性内容分析,以了解他们所面临的挑战,并对有效量表的回答进行了统计分析,以研究这些挑战与心理社会/沟通结果之间的关联。照顾者在与兄弟姐妹沟通时遇到了九项挑战(缺乏共识和义务冲突)。照顾者的家庭开放度、社会支持和照顾者负担因几个挑战而不同。兄弟姐妹的数量与较差的结果(负担)有关。成年子女照顾者面临着与兄弟姐妹相关的挑战,这些挑战可能会阻碍他们的沟通和福祉。
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Caring for a Parent With a Blood Cancer: Sibling Communication Challenges and Psychosocial Outcomes
This exploratory survey study used quantitative and qualitative analyses to (a) identify challenges communicating with siblings that adult child caregivers of a parent with a blood cancer encounter and (b) examine how these challenges are related to caregivers’ burden, social support, family openness, and clinical communication quality. A total of 95 caregivers with siblings participated in an online survey. We conducted a qualitative content analysis on an open-ended response to understand their challenges and statistical analyses on responses to validated scales to examine associations between the challenges and psychosocial/communication outcomes. Caregivers encountered nine challenges communicating with siblings (lack of agreement and competing obligations). Caregivers’ family openness, social support, and caregiver burden differed based on several challenges. The number of siblings was linked to poorer outcomes (burden). Adult child caregivers face sibling-related challenges, which may inhibit their communication and well-being.
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