韩国移民家庭的痴呆症护理决策、护理情况和正式服务的使用:社会文化模式的定性应用

Yu-Da Jang, Hans Oh, Juyoung Park, Min-Kyoung Rhee, N. Park, Soondool Chung, Miyong T. Kim
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摘要

鉴于文化和地域在痴呆症护理中的重要作用,我们对痴呆症患者的韩裔美国家庭护理者进行了一项定性研究。在痴呆症照护者使用服务的社会文化模式的指导下,我们探索了文化和地域背景下的照护决策、照护情况和正式服务使用类别。通过对居住在大洛杉矶地区的 16 名韩裔痴呆症照护者进行深入访谈,我们使用恒定比较法对数据进行了分析。通过三个概念类别,我们得出了八个主题:(1) 个人动机;(2) 家庭环境;(3) 对正式护理的态度;(4) 压力;(5) 回报;(6) 语言和地理区域;(7) 知识和意识;(8) 社会支持和文化羞辱。我们的研究结果不仅表明了在护理决策、护理情况和正规服务使用方面的不同经历,而且还表明了它们之间的相互联系。研究结果支持了文化和地域在痴呆症护理中的影响作用,包括了每个领域中的积极和消极因素,并为计划和服务提供了影响,以应对已确定的需求和障碍。
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Dementia Care Decisions, Caregiving Situations, and Formal Service Use in Korean Immigrant Families: A Qualitative Application of a Sociocultural Model
Given the significant role of culture and place in dementia caregiving, we conducted a qualitative study with Korean American family caregivers of persons with dementia. Guided by the sociocultural model of dementia caregivers’ service use, we explored the categories of care decisions, caregiving situations, and formal service use within the context of culture and place. Data from in-depth interviews with 16 Korean American dementia caregivers living in the greater Los Angeles area were analyzed using the constant comparison method. Across the three conceptual categories, we derived eight themes: (1) personal motivation; (2) family context; (3) attitude toward formal care; (4) strains; (5) rewards; (6) language and geographic region; (7) knowledge and awareness; and (8) social support and cultural stigma. Our findings demonstrate not only varied experiences in care decisions, caregiving situations, and formal service use but also their interconnectedness. Supporting the influential role of culture and place in dementia caregiving, the findings include positive and negative elements within each domain and provide implications for programs and services to respond to identified needs and barriers.
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