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引用次数: 1
摘要
摘要:这篇文章批判性地研究了美国 COVID-19、Long COVID、能力主义和医疗保健差异之间的交集,强调了 COVID-19 作为大规模致残事件的变革性影响,对边缘化社区的影响尤为严重。我还以自传体的视角讲述了我在 COVID-19 和 Long COVID 的经历,强调了认识到残疾人士的不同经历(往往是无法讲述的经历)以及挑战社会中普遍存在的能力主义观点的重要性。我提出了在长COVID背景下讲故事的伦理考虑,并敦促研究人员接受同理心和更具包容性的方法,以挑战学术研究中传统的客观性和疏远观念。我呼吁在残疾研究和民俗研究之间采取合作的方式,鼓励学者们质疑和探索由残疾经历所塑造的传统。
“You may now become who you thought was disposable”: COVID-19 Politics and Ableism
Abstract:This essay critically examines the intersection of COVID-19, Long COVID, ableism, and health care disparities in the United States, emphasizing the transformative impact of COVID-19 as a mass disabling event with a disproportionate impact on marginalized communities. I also bring an autoethnographic lens to my experience of COVID-19 and Long COVID, underscoring the importance of recognizing the diverse and often untellable experiences of individuals with disabilities and challenging the prevailing ableist perspectives embedded in society. I raise ethical considerations of storytelling in the context of Long COVID and urge researchers to embrace empathy and a more inclusive approach that challenges traditional notions of objectivity and distancing within academic research. I call for a collaborative approach between disability studies and folklore studies, encouraging scholars to interrogate and explore the traditions shaped by experiences of disability.