Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.15
D. Dance
{"title":"Erna Brodber and Velma Pollard: Folklore and Culture in Jamaica by Violet Harrington Bryan (review)","authors":"D. Dance","doi":"10.5406/15351882.137.545.15","DOIUrl":"https://doi.org/10.5406/15351882.137.545.15","url":null,"abstract":"","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837791","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.03
Amy Shuman, Olivia Caldeira
Abstract:This is an essay about consent and the importance of using plain language. Consent means someone gives someone else permission to do something. When we do research, we ask for consent from the people we study. We explain what we are trying to understand in our research, and we ask people to agree to participate. Everyone has the right to decide whether or not to give consent. When we ask for consent, we need to explain things in ways that people understand so they can make their own decisions. Sometimes people with intellectual disabilities are not given the right to decide whether or not to give permission to participate. People with intellectual disabilities can understand if spoken to in plain language by teachers, doctors, lawyers, parents, and caregivers, as well as by everyone else. When things are explained in plain language, people with intellectual disabilities can understand and make their own decisions about whether or not to give consent to participate.
{"title":"Folklore, Disability, and Plain Language: The Problem of Consent","authors":"Amy Shuman, Olivia Caldeira","doi":"10.5406/15351882.137.545.03","DOIUrl":"https://doi.org/10.5406/15351882.137.545.03","url":null,"abstract":"Abstract:This is an essay about consent and the importance of using plain language. Consent means someone gives someone else permission to do something. When we do research, we ask for consent from the people we study. We explain what we are trying to understand in our research, and we ask people to agree to participate. Everyone has the right to decide whether or not to give consent. When we ask for consent, we need to explain things in ways that people understand so they can make their own decisions. Sometimes people with intellectual disabilities are not given the right to decide whether or not to give permission to participate. People with intellectual disabilities can understand if spoken to in plain language by teachers, doctors, lawyers, parents, and caregivers, as well as by everyone else. When things are explained in plain language, people with intellectual disabilities can understand and make their own decisions about whether or not to give consent to participate.","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.01
Anand Prahlad
Abstract:As an introduction to the special issue on folklore and disability, this essay offers a brief overview of how concerns about disability have historically been included in folklore studies in the United States. It discusses the field of disability studies and how folklore has been an important element of disability theory and writing. In making an argument for how a more serious engagement with disability studies theory and writing can enhance US folkloristics, the essay further suggests the development of a subfield of folklore devoted to disability and folklore.
{"title":"American Folklore Studies and Disability: An Introduction","authors":"Anand Prahlad","doi":"10.5406/15351882.137.545.01","DOIUrl":"https://doi.org/10.5406/15351882.137.545.01","url":null,"abstract":"Abstract:As an introduction to the special issue on folklore and disability, this essay offers a brief overview of how concerns about disability have historically been included in folklore studies in the United States. It discusses the field of disability studies and how folklore has been an important element of disability theory and writing. In making an argument for how a more serious engagement with disability studies theory and writing can enhance US folkloristics, the essay further suggests the development of a subfield of folklore devoted to disability and folklore.","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.20
Olga Nájera-Ramírez
{"title":"Choreographing Mexico: Festive Performance and Dancing Histories of a Nation by Manuel R. Cuellar (review)","authors":"Olga Nájera-Ramírez","doi":"10.5406/15351882.137.545.20","DOIUrl":"https://doi.org/10.5406/15351882.137.545.20","url":null,"abstract":"","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.04
Andrea Kitta
Abstract:This essay critically examines the intersection of COVID-19, Long COVID, ableism, and health care disparities in the United States, emphasizing the transformative impact of COVID-19 as a mass disabling event with a disproportionate impact on marginalized communities. I also bring an autoethnographic lens to my experience of COVID-19 and Long COVID, underscoring the importance of recognizing the diverse and often untellable experiences of individuals with disabilities and challenging the prevailing ableist perspectives embedded in society. I raise ethical considerations of storytelling in the context of Long COVID and urge researchers to embrace empathy and a more inclusive approach that challenges traditional notions of objectivity and distancing within academic research. I call for a collaborative approach between disability studies and folklore studies, encouraging scholars to interrogate and explore the traditions shaped by experiences of disability.
摘要:这篇文章批判性地研究了美国 COVID-19、Long COVID、能力主义和医疗保健差异之间的交集，强调了 COVID-19 作为大规模致残事件的变革性影响，对边缘化社区的影响尤为严重。我还以自传体的视角讲述了我在 COVID-19 和 Long COVID 的经历，强调了认识到残疾人士的不同经历（往往是无法讲述的经历）以及挑战社会中普遍存在的能力主义观点的重要性。我提出了在长COVID背景下讲故事的伦理考虑，并敦促研究人员接受同理心和更具包容性的方法，以挑战学术研究中传统的客观性和疏远观念。我呼吁在残疾研究和民俗研究之间采取合作的方式，鼓励学者们质疑和探索由残疾经历所塑造的传统。
{"title":"“You may now become who you thought was disposable”: COVID-19 Politics and Ableism","authors":"Andrea Kitta","doi":"10.5406/15351882.137.545.04","DOIUrl":"https://doi.org/10.5406/15351882.137.545.04","url":null,"abstract":"Abstract:This essay critically examines the intersection of COVID-19, Long COVID, ableism, and health care disparities in the United States, emphasizing the transformative impact of COVID-19 as a mass disabling event with a disproportionate impact on marginalized communities. I also bring an autoethnographic lens to my experience of COVID-19 and Long COVID, underscoring the importance of recognizing the diverse and often untellable experiences of individuals with disabilities and challenging the prevailing ableist perspectives embedded in society. I raise ethical considerations of storytelling in the context of Long COVID and urge researchers to embrace empathy and a more inclusive approach that challenges traditional notions of objectivity and distancing within academic research. I call for a collaborative approach between disability studies and folklore studies, encouraging scholars to interrogate and explore the traditions shaped by experiences of disability.","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.12
Michael Luster
{"title":"Claude D. Stephenson (1952–2023)","authors":"Michael Luster","doi":"10.5406/15351882.137.545.12","DOIUrl":"https://doi.org/10.5406/15351882.137.545.12","url":null,"abstract":"","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.09
Traci Cox
Abstract:The US Centers for Disease Control and Prevention reports that one in four people in the United States currently lives with a disability. Such a prominent folk group—sixty-one million people—deserves more serious scholarly attention and engagement by folklorists. This autoethnographic essay explores the long-lasting and damaging personal, educational, and cultural impacts of misdiagnosed and misunderstood neurodivergence. The author invites readers to consider the key role folklorists can, and should, play in investigating the relationship between disability, folk medicine, and healing. The modern-day health care system—as well as schools’ diversity, inclusion, and equity programming—would greatly benefit from an academic interrogation of where suffering and omission occur on behalf of (in)visibly disabled folks, both historically and today.
{"title":"Rewilding My Brain: Folklore, Disability, and the Non-human World","authors":"Traci Cox","doi":"10.5406/15351882.137.545.09","DOIUrl":"https://doi.org/10.5406/15351882.137.545.09","url":null,"abstract":"Abstract:The US Centers for Disease Control and Prevention reports that one in four people in the United States currently lives with a disability. Such a prominent folk group—sixty-one million people—deserves more serious scholarly attention and engagement by folklorists. This autoethnographic essay explores the long-lasting and damaging personal, educational, and cultural impacts of misdiagnosed and misunderstood neurodivergence. The author invites readers to consider the key role folklorists can, and should, play in investigating the relationship between disability, folk medicine, and healing. The modern-day health care system—as well as schools’ diversity, inclusion, and equity programming—would greatly benefit from an academic interrogation of where suffering and omission occur on behalf of (in)visibly disabled folks, both historically and today.","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837790","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.02
Allison Stanich
Abstract:In the field of folklore, there has been little attention paid to neurodivergence in relation to community despite the fact that a folkloric lens could productively be applied to aspects of neurodivergent culture(s) and neurodivergent communities. One such concept is “masking,” a conscious or subconscious act of suppressing neurodivergent traits in order to avoid stigma. Focusing on autism, this article discusses (1) masking as a performance of neurotypical identity, (2) how this type of performance can lead to autistic burnout and prevent autistic people from being authentically autistic, and (3) how social media has opened up spaces for discussions about masking, support, solidarity, and community as autistic content creators share their experiences of masking in a neurotypical world.
{"title":"All the World’s a (Neurotypical) Stage: Neurodivergent Folklore, Autistic Masking, and Virtual Spaces for Discussing Autistic Identity","authors":"Allison Stanich","doi":"10.5406/15351882.137.545.02","DOIUrl":"https://doi.org/10.5406/15351882.137.545.02","url":null,"abstract":"Abstract:In the field of folklore, there has been little attention paid to neurodivergence in relation to community despite the fact that a folkloric lens could productively be applied to aspects of neurodivergent culture(s) and neurodivergent communities. One such concept is “masking,” a conscious or subconscious act of suppressing neurodivergent traits in order to avoid stigma. Focusing on autism, this article discusses (1) masking as a performance of neurotypical identity, (2) how this type of performance can lead to autistic burnout and prevent autistic people from being authentically autistic, and (3) how social media has opened up spaces for discussions about masking, support, solidarity, and community as autistic content creators share their experiences of masking in a neurotypical world.","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.11
Todd Richardson
{"title":"Gwendolyn Meister (1947–2023)","authors":"Todd Richardson","doi":"10.5406/15351882.137.545.11","DOIUrl":"https://doi.org/10.5406/15351882.137.545.11","url":null,"abstract":"","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-04DOI: 10.5406/15351882.137.545.08
Phyllis M. May-Machunda
Abstract:In this essay, I advance and elaborate upon three points and their relevance to folklore studies based on my experiences and fieldwork as a parent of a child with disabilities. First, I note the absence of narratives of many families of children with disabilities and foreground a concept of possible shared identity and embodied communication between parents and non- or partially verbal children. Second, I highlight autoethnographic and ethnographic stories that are created at the nexus of disability and caregiving that offer insight into narratives of caregivers of children with disabilities. Caregivers’ stories are mostly missing in folklore studies. These narratives can stand by themselves or be intertwined with the narratives of the children whom caregivers care for. Finally, I suggest ways that a theoretical frame of intersectionality can illuminate and provide nuance for better understanding the systemic complexities of the narratives of children’s and their caregivers’ experiences of disability.
{"title":"Living in the Nexus of Disability and Caregiving: An African American Parental Caregiver’s Critical Observations as a Folklorist","authors":"Phyllis M. May-Machunda","doi":"10.5406/15351882.137.545.08","DOIUrl":"https://doi.org/10.5406/15351882.137.545.08","url":null,"abstract":"Abstract:In this essay, I advance and elaborate upon three points and their relevance to folklore studies based on my experiences and fieldwork as a parent of a child with disabilities. First, I note the absence of narratives of many families of children with disabilities and foreground a concept of possible shared identity and embodied communication between parents and non- or partially verbal children. Second, I highlight autoethnographic and ethnographic stories that are created at the nexus of disability and caregiving that offer insight into narratives of caregivers of children with disabilities. Caregivers’ stories are mostly missing in folklore studies. These narratives can stand by themselves or be intertwined with the narratives of the children whom caregivers care for. Finally, I suggest ways that a theoretical frame of intersectionality can illuminate and provide nuance for better understanding the systemic complexities of the narratives of children’s and their caregivers’ experiences of disability.","PeriodicalId":46681,"journal":{"name":"JOURNAL OF AMERICAN FOLKLORE","volume":null,"pages":null},"PeriodicalIF":0.5,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141837793","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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