评估 iSibWorks:针对残疾儿童兄弟姐妹的虚拟认知行为干预措施

Kylie D. Mallory , Hiba Al-Hakeem , Shazeen Alam , Sandy Brassel , Tamiko Isaacs , Sonya Basarke , Marie Hooper , Andrea Hickling , Shannon E. Scratch
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引用次数: 0

摘要

方法38名儿童参加了iSibWorks,并在干预前后一周完成了调查问卷(儿科生活质量[PedsQL™]、儿童社会支持量表[SSSC])。结果参加 iSibWorks 后,PedsQL™ 和 SSSC 分数没有明显差异。尽管如此,兄弟姐妹们对 iSibWorks 仍有积极的反馈,并讨论了以下问题:结论与 COVID-19 大流行相关的因素,如家庭压力、学校关闭、虚拟学习和社会疏远可能会影响研究结果。尽管在 QoL 和社会支持方面没有发生重大变化,但兄弟姐妹们认为 iSibWorks 非常有趣、有意义且引人入胜。创新残疾儿童的兄弟姐妹可能会面临社会心理挑战,而针对这一人群设计的虚拟干预措施却很少。
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Evaluating iSibWorks: A virtual cognitive-behavioural intervention for siblings of children with disabilities

Objectives

1) Examine if participation in iSibWorks, a group-based virtual intervention for siblings of children with disabilities, impacted siblings' perception of quality of life (QoL) and social support; and 2) Explore siblings' feedback on iSibWorks.

Methods

Thirty-eight children participated in iSibWorks and completed questionnaires (Pediatric Quality of Life [PedsQL™], Social Support Scale for Children [SSSC]) one week pre- and post-intervention. Conventional content analysis was used to explore siblings' open-ended responses on a post-participation feedback form.

Results

No significant differences in PedsQL™ and SSSC scores were observed after participating in iSibWorks. Despite this, siblings had positive feedback about iSibWorks and discussed: 1) Engaging in group learning and activities, 2) Meeting other siblings, and 3) Applying iSibWorks content to their daily life.

Conclusion

Factors related to the COVID-19 pandemic such as family stress, school closures, virtual learning, and social distancing likely impacted study results. Although there were no significant changes in QoL and social support, siblings found iSibWorks to be fun, meaningful, and engaging.

Innovation

Siblings of children with disabilities can experience psychosocial challenges and there are few virtual interventions designed for this population. iSibWorks was adapted to address this gap and increase access and support for siblings of children with disabilities.

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来源期刊
PEC innovation
PEC innovation Medicine and Dentistry (General)
CiteScore
0.80
自引率
0.00%
发文量
0
审稿时长
147 days
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