Elizabeth A Kaplan-Kahn, Rachel M Benecke, Whitney Guthrie, Benjamin E Yerys, Laura Graham Holmes, Judith S Miller
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引用次数: 0
摘要
研究目的自闭症群体将生活质量(QoL)视为临床和研究的重点。研究人员有责任确保用于测量 QoL 的工具能够可靠、准确地测量自闭症参与者的 QoL:我们的研究评估了 "患者报告结果测量信息系统"(PROMIS)中情绪困扰量表(抑郁、焦虑、愤怒、心理压力)和主观幸福感量表(生活满意度、积极情感、意义与目的)在自闭症青少年(14-17 岁)群体(人数=140,每个量表的人数=132-140)和普通人群(人数=1224,每个量表的人数=406-411)中的测量不变性。这些量表被纳入PROMIS自闭症电池-生命周期中,该电池使用PROMIS量表测量与自闭症患者最相关的QoL领域:使用置换检验进行的多组确认性因子分析显示,抑郁和积极情感量表在不同组间表现出标度不变性,表明可以对自闭症青少年和普通青少年的得分进行有意义的比较。愤怒量表和心理压力量表在组间表现出公差不变性,表明这些量表在两组中测量的是相同的潜在特质,但不支持组间比较:我们就如何以心理测量学支持的方式使用这些量表来捕捉与了解自闭症青少年 QoL 相关的建构提供了指导。
Measurement invariance of the PROMIS emotional distress and subjective well-being domains among autistic and General Population adolescents.
Purpose: Quality of life (QoL) is identified as a clinical and research priority by the autistic community. Researchers have the responsibility to ensure that instruments used to measure QoL do so reliably and accurately among autistic participants.
Methods: Our study evaluated measurement invariance of Emotional Distress (Depression, Anxiety, Anger, Psychological Stress) and Subjective Well-Being (Life Satisfaction, Positive Affect, and Meaning & Purpose) scales of the Patient-Reported Outcomes Measurement Information System (PROMIS) among groups of autistic (N=140, n per scale=132-140) and general population (N=1,224, n per scale=406-411) teenagers (14-17 years). These scales were included in the PROMIS Autism Battery-Lifespan, which uses PROMIS scales to measure QoL domains most relevant for autistic people.
Results: Multi-group confirmatory factor analyses using permutation tests demonstrated that Depression and Positive Affect scales exhibited scalar invariance between groups, indicating that scores can be meaningfully compared across autistic and general population teens. Anger and Psychological Stress scales demonstrated metric invariance between groups, indicating that these scales measure the same latent trait in both groups, but group comparisons are not supported.
Conclusion: We provide guidance as to how these scales can be used in psychometrically supported ways to capture constructs relevant for understanding QoL among autistic teens.
期刊介绍:
Quality of Life Research is an international, multidisciplinary journal devoted to the rapid communication of original research, theoretical articles and methodological reports related to the field of quality of life, in all the health sciences. The journal also offers editorials, literature, book and software reviews, correspondence and abstracts of conferences.
Quality of life has become a prominent issue in biometry, philosophy, social science, clinical medicine, health services and outcomes research. The journal''s scope reflects the wide application of quality of life assessment and research in the biological and social sciences. All original work is subject to peer review for originality, scientific quality and relevance to a broad readership.
This is an official journal of the International Society of Quality of Life Research.