会议报告:患者和护理人员对儿科系统性红斑狼疮移动医疗应用程序的建议

IF 3.7 2区 医学 Q1 RHEUMATOLOGY Lupus Science & Medicine Pub Date : 2024-07-01 DOI:10.1136/lupus-2024-001305
Katrina Guardino, Malaya Gaerlan, Caitlan S Pinotti, Kimberly R Burnett, Deborah Kofoed, Laura Eve Schanberg, Lisa B Hightow-Weidman, Rachel L Randell
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引用次数: 0

摘要

儿科系统性红斑狼疮(pSLE)的管理和研究可以通过移动医疗应用程序(App)得到加强;然而,目前还没有专为 pSLE 设计的应用程序。一个由患者、家长/监护人和其他利益相关者组成的开发和设计委员会召开了会议,为开发和设计一款专门针对狼疮的应用程序提供信息。本会议报告总结了该小组的讨论内容和建议,这些内容和建议有助于为系统性红斑狼疮社区开发出一款实用、理想的应用程序或移动医疗工具。
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Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus
Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group’s discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.
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来源期刊
Lupus Science & Medicine
Lupus Science & Medicine RHEUMATOLOGY-
CiteScore
5.30
自引率
7.70%
发文量
88
审稿时长
15 weeks
期刊介绍: Lupus Science & Medicine is a global, peer reviewed, open access online journal that provides a central point for publication of basic, clinical, translational, and epidemiological studies of all aspects of lupus and related diseases. It is the first lupus-specific open access journal in the world and was developed in response to the need for a barrier-free forum for publication of groundbreaking studies in lupus. The journal publishes research on lupus from fields including, but not limited to: rheumatology, dermatology, nephrology, immunology, pediatrics, cardiology, hepatology, pulmonology, obstetrics and gynecology, and psychiatry.
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