癌症患儿家长在诊断过程中的经历:定性研究。

Omega Pub Date : 2024-08-09 DOI:10.1177/00302228241272694
Pınar Bekar, Münevver Erkul, Emine Efe
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引用次数: 0

摘要

本研究旨在描述癌症患儿父母在诊断过程中的经历。研究采用了描述性定性研究设计和内容分析法。11 位家长参与了研究。研究提出了三个主题,每个主题都有相关的子主题:遭遇癌症诊断、受诊断影响的人的生活变化以及应对策略。子女被诊断出癌症后,父母会感到内疚、遗憾、无助、崩溃、不断想到死亡以及生活的改变,一些兄弟姐妹也表现出消极的反应。有些孩子觉得自己的自由受到限制,有些则拒绝接受治疗。家长们通过转移注意力、祈祷、接受家人、亲戚或医护人员的支持以及保持对孩子康复的希望来应对。研究得出结论,被诊断患有癌症的儿童的父母需要得到支持,以管理和适应诊断过程,并在这一艰难历程中有效地满足他们的需求。
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Experiences of Parents of Children with Cancer in the Diagnosis Process: A Qualitative Study.

This study aimed to describe the experiences of parents of children with cancer in the diagnosis process. A descriptive qualitative research design and content analysis method were used. Eleven parents participated in the study. Three main themes emerged, each with related sub-themes: encountering a cancer diagnosis, changes in the lives of those affected by the diagnosis, and coping strategies. Upon their children's diagnosis, parents reported feelings of guilt, regret, helplessness, devastation, constant thoughts of death, and changes in their lives, with some siblings displaying negative reactions. Some children felt their freedom was restricted, and some refused treatment. Parents coped by distracting their attention, praying, receiving support from their family, relatives or health professionals, and maintaining hope for their children's recovery. The study concludes that parents of children diagnosed with cancer require support to manage and adapt to the diagnosis process and meet their needs effectively throughout this difficult journey.

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