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Factors Influencing Family Members in Choosing the Preferred Place of Death for Hospitalized Dying Older Patients. 影响家庭成员为住院垂死老年患者选择首选死亡地点的因素。
Pub Date : 2025-02-01 Epub Date: 2022-07-07 DOI: 10.1177/00302228221113617
Shu-Yun Kao, Chieh-Yu Liu, Meei-Ling Gau, Hung-Ru Lin

This study aims to explore the factors that influence family members in choosing the preferred place of death for hospitalized dying older patients in Taiwan. This study enrolled 100 family members. The relevant factors influencing the families' choice of the preferred place of death for older patients were family members' previous discussions with the patients about their expected place of death; patients' education levels; family members' incomes; whether they were hiring a caregiver to take care of the patients at the hospital; their degree of social support; and their family functioning. The logistic regression analysis showed that family members who had discussed the preferred place of death with the patients, and those with better family functioning, were 1.41 and 2.72 times more likely, respectively, to chose for patients to return home to die than for the patients to die in a hospital.

本研究旨在探讨影响台湾住院临终老年患者家属选择首选死亡地点的因素。本研究共招募了 100 名家属。影响家属为老年患者选择首选死亡地点的相关因素包括:家属之前与患者讨论其预期死亡地点的情况;患者的教育水平;家属的收入;家属是否在医院雇佣护工照顾患者;家属的社会支持程度;以及家属的家庭功能。逻辑回归分析表明,与病人讨论过希望的死亡地点的家庭成员和家庭功能较好的家庭成员选择病人回家死亡的可能性分别是选择病人在医院死亡的可能性的 1.41 倍和 2.72 倍。
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引用次数: 0
Fear of Cancer Recurrence as Reminder About Death: Lived Experiences of Cancer Survivors' Spouses. 癌症复发的恐惧是对死亡的提醒:癌症幸存者配偶的生活经历。
Pub Date : 2025-02-01 Epub Date: 2022-08-22 DOI: 10.1177/00302228221123152
Eglė Urbutienė, Rūta Pukinskaitė

Fear of cancer recurrence is the most prevalent and burdensome emotional concern among cancer survivors' spouses after treatment. This qualitative study aimed to reveal death-related experiences of spouses of cancer survivors in remission, in the context of fear of cancer recurrence. Seven spouses (aged 35-56), four women and three men were explored. Data were obtained using an unstructured interview and analyzed by inductive thematic analysis. The spouses associate cancer relapse with death, risk of losing their spouse. The threat of death triggers not only the feelings of insecurity, uncertainty about the future and loss of control, but also appreciation of life, focus on positive aspects in relationships. Planning for the "worst" scenarios and avoidance helped spouses to reduce tension and enhance control. Interventions for spouses should focus on promotion of emotional expression of death related concerns underlying fear of relapse, also developing new coping strategies to accept and tolerate uncertainty.

对癌症复发的恐惧是癌症幸存者配偶在治疗后最普遍和最沉重的情感负担。这项定性研究旨在揭示缓解期癌症幸存者的配偶在恐惧癌症复发的背景下与死亡相关的经历。研究对象包括七名配偶(年龄在 35-56 岁之间),其中四名女性,三名男性。数据通过非结构化访谈获得,并通过归纳式主题分析法进行分析。配偶们将癌症复发与死亡、失去配偶的风险联系在一起。死亡的威胁不仅会引发不安全感、对未来的不确定性和失控感,还会激发对生命的珍惜,关注人际关系中积极的一面。对 "最坏 "情况的规划和回避有助于配偶缓解紧张情绪,增强控制力。对配偶的干预措施应侧重于促进对与死亡有关的、潜在的对复发的恐惧的情感表达,同时制定新的应对策略,以接受和容忍不确定性。
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引用次数: 0
Constructivist Correlates to Anniversary Reactions Across Bereavement and Sexual Violence. 与丧亲之痛和性暴力的周年反应相关的建构主义因素。
Pub Date : 2025-02-01 Epub Date: 2022-07-13 DOI: 10.1177/00302228221114986
Madeline J Bruce, Paul J Handal

Anniversary reactions are an accepted part of bereavement, but recent research demonstrates that ARs can be seen across many traumatic events. The present study explores how constructivist theories could characterize ARs caused by the death of a loved one or sexual violence. N = 234 women answered questionnaires regarding their posttraumatic adjustment, meaning made of the trauma, trauma centrality, and social validation or invalidation of their trauma. Our data demonstrate that ARs are marked by statistically and clinically significant increases posttraumatic stress disorder symptoms. Participants in this study did not endorse significant posttraumatic growth during their AR. The women in the sexual violence group endorsed more social validation and invalidation as well as less meaning made of their trauma compared to the bereavement group. There were no group differences regarding trauma centrality. Results of this study provide empirical support for an understudied yet significant phenomenon and directions of future study.

周年反应是公认的丧亲之痛的一部分,但最近的研究表明,在许多创伤事件中都会出现周年反应。本研究探讨了建构主义理论如何描述由亲人死亡或性暴力引起的周年反应。N = 234 名女性回答了有关其创伤后调整、创伤意义、创伤中心性以及社会对其创伤的验证或失效的问卷。我们的数据表明,在统计和临床上,创伤后应激障碍症状明显增加。本研究的参与者并不认可她们在创伤后应激障碍期间有明显的创伤后成长。与丧亲之痛组相比,性暴力组的女性认可更多的社会验证和无效性,以及更少的创伤意义。在创伤中心性方面,各组之间没有差异。本研究的结果为一个研究不足但意义重大的现象提供了实证支持,也为今后的研究提供了方向。
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引用次数: 0
"Nobody Wants to Talk About It, Especially in This Building": A Qualitative Study of How People Living in Permanent Supportive Housing Approach End-Of-Life Care. "没有人愿意谈论这个问题,尤其是在这栋楼里":关于居住在永久性支持性住房中的人如何对待临终关怀的定性研究》。
Pub Date : 2025-02-01 Epub Date: 2022-07-10 DOI: 10.1177/00302228221114756
Emma K McCune, Megan R Visser, Joshua Bamberger

Permanent supportive housing (PSH) is long-term affordable housing with onsite social services. End-of-life care (EOLC) involves a discussion about the type of medical care an individual hopes to receive at the end of their life. This qualitative study examines the goals, desires, and expectations for EOLC for people living in PSH. Semi-structured interviews were conducted with 17 formerly homeless residents in four PSH facilities in San Francisco, California and analyzed using the framework method. The interviews reveal how an individual's experience with housing precarity and with the PSH setting shape their preferences and expectations for the end of life. While PSH residents value social support in their final days, social isolation in PSH serves as a barrier to receiving such support. Results from this work can inform policies and programs to support people living in PSH in achieving their desired death.

永久性支持性住房(Permanent supportive housing,PSH)是提供现场社会服务的长期经济适用住房。临终关怀(EOLC)涉及到对个人在生命最后阶段希望获得的医疗护理类型的讨论。本定性研究探讨了居住在 PSH 的人对临终关怀的目标、愿望和期望。研究人员在加利福尼亚州旧金山的四家 PSH 机构中对 17 名曾经无家可归的居民进行了半结构式访谈,并采用框架法对访谈内容进行了分析。访谈揭示了个人在住房不稳定和 PSH 环境中的经历如何影响他们对生命终结的偏好和期望。虽然 PSH 居民重视临终前的社会支持,但 PSH 中的社会隔离却成为他们获得此类支持的障碍。这项工作的结果可以为政策和计划提供参考,以支持居住在 PSH 的人们实现他们所期望的死亡。
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引用次数: 0
"Death is as Much Part of Life as Living": Attitudes and Experiences Preparing for Death from Older Adults with Sickle Cell Disease. "死亡和生活一样是生命的一部分":患有镰状细胞病的老年人对死亡的态度和经历。
Pub Date : 2025-02-01 Epub Date: 2022-07-20 DOI: 10.1177/00302228221116513
Charity I Oyedeji, John J Strouse, Rita Masese, Nathan Gray, Tolu O Oyesanya

The life-limiting and unpredictable nature of sickle cell disease (SCD) is well-established, yet there is limited literature on end-of-life planning. The purpose of this study was to describe perspectives about preparing for death for older adults with SCD. We enrolled 19 older adults with SCD (age ≥ 50 years) into this qualitative descriptive study. Theme 1 was "anticipation of early death," with sub-themes: (a) informed of early death and (b) making plans for death. Theme 2 was "near death experiences." Theme 3 was "differences in level of comfort with death" with subthemes: (a) death as a part of life and (b) differences in level of comfort discussing death. Theme 4 was "influence of spirituality" with subthemes: (a) God controls the timing of death and (b) belief in the afterlife. These results will inform interventions to improve the quality of patient-provider communication to provide goal-concordant end-of-life care for adults with SCD.

镰状细胞病 (SCD) 的致死性和不可预测性已得到公认,但有关临终规划的文献却很有限。本研究旨在描述患有 SCD 的老年人对死亡准备的看法。我们招募了 19 名患有 SCD 的老年人(年龄≥ 50 岁)参与这项定性描述性研究。主题 1 是 "对早逝的预期",包括子主题:(a) 获知早逝;(b) 制定死亡计划。主题 2 是 "濒死经历"。主题 3 是 "对死亡的舒适程度差异",其次主题是:(a)死亡是生命的一部分和(b)讨论死亡时的舒适程度差异。主题 4 是 "灵性的影响",其次要主题是:(a)上帝控制死亡的时间;(b)对来世的信仰。这些结果将为干预措施提供信息,以提高患者与医护人员沟通的质量,从而为患有 SCD 的成年人提供目标一致的临终关怀。
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引用次数: 0
Nursing Students' Spiritual/Religious Coping Strategies Dealing With First Experience of Witnessing Death During Clinical Practices. 护理专业学生在临床实践中首次目睹死亡时的精神/宗教应对策略。
Pub Date : 2025-02-01 Epub Date: 2023-04-28 DOI: 10.1177/00302228231174803
Aslı Kurtgöz, Zeliha Koç

This study aims at determining spiritual/religious coping strategies of nursing students dealing with the first experience of witnessing death during clinical practices. One of the qualitative research approaches, a descriptive phenomenological study was designed. The study was carried out with 14 nursing students studying at a state university in Turkey. The students' first experiences of witnessing death were examined by the personal in-depth interviewing method. Data were analyzed using the thematic analysis method. The following five main themes were identified by the analysis: Perception of death; Witnessing death for the first time; Coping with death experience; Needs and recommendations; Impact of spirituality and religion. The obtained findings were presented according to the COREQ criteria. The findings showed that witnessing death for the first time is a difficult experience that affects students in various ways and students prayed and performed their prayers frequently to cope with the death experience.

本研究旨在确定护理专业学生在临床实践中首次目睹死亡时的精神/宗教应对策略。本研究设计了一种定性研究方法,即描述性现象学研究。研究对象是 14 名就读于土耳其一所国立大学的护理专业学生。研究采用个人深度访谈法,考察了学生目睹死亡的初次经历。采用主题分析法对数据进行了分析。分析确定了以下五个主题:对死亡的感知;首次目睹死亡;应对死亡经历;需求和建议;精神和宗教的影响。研究结果按照 COREQ 标准进行了阐述。研究结果表明,第一次目睹死亡是一种艰难的经历,会对学生产生不同程度的影响,学生们经常进行祈祷,以应对死亡经历。
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引用次数: 0
Uses and Gratifications of Music in Bereavement: A Qualitative Inquiry. 丧亲之痛中音乐的用途和益处:定性调查。
Pub Date : 2025-02-01 Epub Date: 2022-09-02 DOI: 10.1177/00302228221121490
Kelly Jr Merrill, Erica Catron, Emily Hamlin, Jamie Calhoun, Sally O Hastings

This study investigates the role of music during bereavement. Music plays a role in peoples' bereavement experiences and gets associated with numerous memories. Despite widespread recognition of the importance of music, little research has considered what bereaved individuals "gain" through their musical selections. This study takes a uses and gratifications approach to analyze interview data about how bereaved individuals incorporate music in their grief journey. Interviews were conducted with 28 participants. Two coders analyzed the data to identify common themes regarding uses of music during bereavement. Data show 5 reasons the bereaved offer for using music: creating connections, co-presence, positive and negative mood management, and projection. The findings demonstrate everyday ways that individuals process their grief in a way that has been largely ignored in the bereavement literature and offer insight into the ways that music can be strategically used by laypeople to process grief.

本研究调查了音乐在丧亲之痛中的作用。音乐在人们的丧亲经历中扮演着重要角色,并与许多记忆联系在一起。尽管人们普遍认识到音乐的重要性,但很少有研究考虑丧亲者通过音乐选择 "获得 "了什么。本研究采用 "使用与满足 "的方法来分析关于丧亲者如何将音乐融入其悲伤历程的访谈数据。本研究对 28 名参与者进行了访谈。两名编码员对数据进行了分析,以确定在丧亲期间使用音乐的共同主题。数据显示了丧亲者使用音乐的 5 个原因:建立联系、共同存在、积极和消极情绪管理以及投射。研究结果表明了丧亲人士处理悲伤的日常方式,而这种方式在丧亲文献中大多被忽视,研究结果还为非专业人士如何有策略地使用音乐来处理悲伤提供了启示。
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引用次数: 0
Fear of Cancer Progression and Death Anxiety in Survivors of Advanced Colorectal Cancer: A Qualitative Study Exploring Coping Strategies and Quality of Life. 晚期结直肠癌幸存者对癌症进展的恐惧和死亡焦虑:探索应对策略和生活质量的定性研究。
Pub Date : 2025-02-01 Epub Date: 2022-09-20 DOI: 10.1177/00302228221121493
Chloe Yi Shing Lim, Rebekah C Laidsaar-Powell, Jane M Young, Michael Solomon, Daniel Steffens, Prunella Blinman, Scott O'Loughlin, Yuehan Zhang, Phyllis Butow

This study aimed to examine coping strategies used by advanced colorectal cancer (CRC-A) survivors to manage death anxiety and fear of cancer progression, and links between these strategies and quality of life (QoL), distress, and death acceptance. Qualitative semi-structured interviews of 38 CRC-A survivors (22 female) were analysed via framework analysis. QoL and distress were assessed through the FACT-C and Distress Thermometer. Eleven themes were identified and mapped to active avoidance (keeping busy and distracted), passive avoidance (hoping for a cure), active confrontation (managing negative emotions; reaching out to others; focusing on the present; staying resilient), meaning-making (redefining one's identity; contributing to society; gaining perspective; remaining spiritual), and acceptance (accepting one's situation). Active confrontation (specifically utilising informal support networks) and meaning-making appeared beneficial coping strategies; more research is needed to develop and evaluate interventions which increase CRC-A survivors' use of these strategies to manage and cope with their death anxiety.

本研究旨在探讨晚期结直肠癌(CRC-A)幸存者在处理死亡焦虑和对癌症进展的恐惧时所采用的应对策略,以及这些策略与生活质量(QoL)、痛苦和死亡接受度之间的联系。通过框架分析法对 38 名 CRC-A 幸存者(22 名女性)的半结构式定性访谈进行了分析。通过 FACT-C 和痛苦温度计对 QoL 和痛苦进行了评估。确定了 11 个主题,并将其映射为主动回避(保持忙碌和分心)、被动回避(希望治愈)、积极面对(管理负面情绪;与他人接触;关注当下;保持复原力)、创造意义(重新定义自己的身份;为社会做贡献;获得视角;保持精神)和接受(接受自己的处境)。积极面对(特别是利用非正式的支持网络)和创造意义似乎是有益的应对策略;需要进行更多的研究来开发和评估干预措施,以增加 CRC-A 幸存者使用这些策略来管理和应对其死亡焦虑。
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引用次数: 0
Development and Validation of the Self-Rating Suicide Risk Screening Questionnaire. 自杀风险自评筛查问卷的开发与验证。
Pub Date : 2025-02-01 Epub Date: 2022-08-13 DOI: 10.1177/00302228221119029
Hwa Jung Lee, Dong Hun Lee, Hong Jin Jeon, Deok Hee Lee, Vidal Yook, Ji Yeol Jeon

Since suicide is one of the major health problems worldwide, the goal of the present study is to develop a psychometrically sound suicide risk screening tool named Suicide Screening Questionnaire- Self-Rating (SSQ-SR) to quantify the risk of suicidal behavior. The development process includes item generation, item revision and refinement, and validation. A total sample of 2,238 adults in South Korea was used for analysis. The results of factor analysis showed that the SSQ-SR, containing 25 items, supported a three-factor model: "Situational factors," "Negative self-perceptions and mental health factors," and "Suicidal thoughts and behaviors." Also, SSQ-SR showed satisfying internal consistency, concurrent validity and discriminant validity. Lastly, the results of ROC analysis showed a cut-off point of 33.5 for the low-risk group and 36.5 for the high-risk group. Considering these results, the current results demonstrate the SSQ-SR is a valid scale and therefore can contribute to future suicide-related studies and prevention.

自杀是世界范围内的主要健康问题之一,因此本研究旨在开发一种心理测量学上可靠的自杀风险筛查工具,名为自杀筛查问卷-自我评分(SSQ-SR),用于量化自杀行为的风险。开发过程包括项目生成、项目修订和完善以及验证。分析使用了 2 238 个韩国成年人样本。因子分析结果显示,SSQ-SR 包含 25 个项目,支持三因子模型:"情境因素"、"消极自我认知和心理健康因素 "以及 "自杀想法和行为"。此外,SSQ-SR 还显示出令人满意的内部一致性、并发效度和判别效度。最后,ROC 分析结果显示,低风险组的临界点为 33.5,高风险组的临界点为 36.5。考虑到这些结果,目前的研究结果表明 SSQ-SR 是一个有效的量表,因此可以为未来的自杀相关研究和预防工作做出贡献。
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引用次数: 0
Examination of Pandemic Awareness, Death Anxiety, and Spiritual Well-Being in Elderly Individuals. 研究老年人的大流行病意识、死亡焦虑和精神健康。
Pub Date : 2025-02-01 Epub Date: 2022-08-13 DOI: 10.1177/00302228221120122
Özlem Özer, Okan Özkan, Bilge Büyükşirin

This study aimed to examine the relationships between the variables of pandemic awareness, death anxiety, and spiritual well-being and reveal whether the participants' perceptions of pandemic awareness, death anxiety, and spiritual well-being differed according to various sociodemographic characteristics. The study population is comprised of individuals aged 65 years and over in Edirne, Turkey. The data obtained from 449 people in the study were analyzed using various statistical methods. According to the results of the regression analysis performed in the study, the increase in the participants' pandemic awareness was found to reduce their death anxiety and increase their spiritual well-being statistically. Moreover, the increase in the participants' death anxiety statistically reduced their spiritual well-being.

本研究旨在探讨大流行病意识、死亡焦虑和精神幸福这些变量之间的关系,并揭示参与者对大流行病意识、死亡焦虑和精神幸福的看法是否因各种社会人口特征而有所不同。研究对象包括土耳其埃迪尔内 65 岁及以上的老年人。研究采用多种统计方法对从 449 名研究对象中获得的数据进行了分析。根据研究中进行的回归分析结果,从统计学角度看,参与者对大流行病认识的提高会降低他们的死亡焦虑,增加他们的精神幸福感。此外,据统计,参与者死亡焦虑的增加会降低他们的精神幸福感。
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引用次数: 0
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