痴呆症患者照顾者的生活质量和人际关系。性别视角。

Heidi Bjørge, Kari Kvaal, Ingun Ulstein
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引用次数: 0

摘要

在家居住的痴呆症患者需要依靠家人才能留在家中。这影响了家庭照顾者的生活质量(QoL)。然而,人们对男性和女性照顾者的生活质量有何不同却知之甚少。我们的研究旨在调查照顾者生活质量(QoL)的性别差异、情感关系是否会影响 QoL 以及他们的 QoL 随着时间的推移会发生怎样的变化。研究采用横断面和纵向设计,共调查了 208 名照顾者(158 名女性照顾者和 50 名男性照顾者)及其患有痴呆症的家庭成员。通过回归分析和 t 检验来确定护理者和接受护理者的哪些特征会影响男性和女性的 QoL,以及护理者的 QoL 在一年后是否有所提高。男性和女性照顾者的抑郁都会影响他们的 QoL。对于女性而言,她们自身的社会困扰影响了她们的 QoL,而对于男性而言,他们对护理对象过度情绪化的体验影响了他们的 QoL。从基线到一年的随访,他们的 QoL 有所下降,而他们的痛苦和对护理对象情绪态度的体验则保持稳定。研究发现,性别差异非常明显,这表明在批准照顾者的需求和规划对照顾者的干预措施时,必须考虑到性别因素。
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Quality of Life and Relationships in Caregivers of People With Dementia. A Gender Perspective.

Home-dwelling people with dementia rely on their family members to be able to stay at home. This affects the family caregivers' quality of life (QoL). However, less is known about how male and female caregivers differ in their QoL. Our study aimed to investigate gender differences in caregivers' quality of life (QoL), whether emotional relationships influence QoL, and how their QoL changes over time. The study applied a cross-sectional and a longitudinal design to examine a total of 208 caregivers, 158 female and 50 male caregivers, and their family member with dementia. Regression analysis and t-tests were performed to identify what characteristics about caregivers and care receivers influence male and female QoL, and whether caregivers' QoL developed after one year. Both male and female caregivers' depression influenced their QoL. For females, their own social distress influenced their QoL, and for males, their experience of their care receivers' overemotional attitude influenced their QoL. From baseline to one-year follow-up their QoL decreased while their distress and experience of care receivers' emotional attitudes was stable. Significant gender-specific differences were found, indicating that gender must be considered when approving caregivers' needs and planning interventions for caregivers.

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