慢性疲劳综合征/肌痛性脑脊髓炎和纤维肌痛患者的远程咨询体验:一项定性研究。

IF 2.5 Q2 PRIMARY HEALTH CARE BJGP Open Pub Date : 2024-08-27 DOI:10.3399/BJGPO.2024.0079
Helen Leach, Abi Eccles, Carolyn A Chew-Graham, Helen Atherton
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引用次数: 0

摘要

背景:自 2020 年 3 月以来,初级医疗中的远程和数字咨询迅速扩展。目的:探讨慢性疲劳综合征/肌痛性脑脊髓炎(CFS/ME)和纤维肌痛患者在初级医疗远程咨询时的经历:对英格兰全科医生中的 CFS/ME 和纤维肌痛患者进行半结构化访谈 方法:对 13 名参与者进行了半结构化访谈。根据福柯理论框架对访谈内容进行了誊写和专题分析:结果:所有参与者都强调需要感到被临床医生信任。许多人表示,由于缺乏实际交流,电话和在线咨询存在困难。当与临床医生保持良好关系时,就会产生积极的结果。持续护理和认识到这些疾病的复杂性也被认为非常重要:这项研究让 CFS/ME 和纤维肌痛患者描述了他们在远程咨询时的经历。参与者强调他们需要被倾听的感觉,并认为他们从与临床医生的持续关系中受益匪浅,尽管这在远程咨询时很难实现。据报告,远程会诊有一些优势,尤其是当症状令人烦恼时。具有一系列咨询模式或首选临床医生的灵活访问系统可以改善医疗保健接触,特别是考虑到远程咨询在初级保健中的使用越来越多。
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Patient experiences of remote consulting with chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia: a qualitative study.

Background: Remote and digital consulting in primary care has rapidly expanded since March 2020. It is important to understand patient experiences, particularly for those living with complex long-term conditions, to identify how care can best be delivered, including within the remote space.

Aim: To explore the experiences of people living with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis [CFS/ME] and Fibromyalgia when consulting remotely in primary care.

Design & setting: Semi-structured interviews with patients living with CFS/ME and fibromyalgia in general practice in England METHOD: Semi-structured interviews were carried out with 13 participants. The interviews were transcribed and analysed thematically according to a Foucauldian theoretical framework.

Results: All participants highlighted needing to feel believed by clinicians. Many reported difficulties with telephone and online consulting due to the lack of physical communication. Positive outcomes were reported when there was a good relationship with a clinician. Continuity in care and recognising the complexity of these conditions were also considered important.

Conclusion: This study allowed people living with CFS/ME and Fibromyalgia to describe their experiences when consulting remotely. Participants highlighted needing to feel listened to and felt they benefited from an ongoing relationship with a clinician although this was difficult to achieve when consulting remotely. Some advantages of remoted consulting were reported, particularly when symptoms were troublesome. Flexible access systems with a range of consultation modalities or preferred clinician(s) availability could improve healthcare encounters, particularly given the increased use of remote consulting, in primary care.

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来源期刊
BJGP Open
BJGP Open Medicine-Family Practice
CiteScore
5.00
自引率
0.00%
发文量
181
审稿时长
22 weeks
期刊最新文献
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