为哮喘患者开发有理论依据的初级保健资源:IMP2ART 试验的范例。

Atena Barat, Kalina Czyzykowska, Kirstie McClatchey, Tracy Jackson, Liz Steed, Jessica Sheringham, Viv Marsh, Elisabeth Ehrlich, Noelle Morgan, Vicky Hammersley, Steve Holmes, Brigitte Delaney, Stephanie J C Taylor, Hilary Pinnock
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引用次数: 0

摘要

目的:本文报告了IMP2ART(IMPlementing IMProved Asthma self-management as RouTine)计划的患者资源开发情况,该计划旨在鼓励患者参加哮喘复查(邀请函),鼓励患者询问哮喘行动计划(海报),并让患者掌握管理哮喘的知识(信息网站):背景:为改善英国初级医疗机构的哮喘自我管理,IMP2ART 计划开发了一种全系统方法(患者资源、专业教育和组织策略):根据行为改变理论,我们为初级保健全科诊所开发了一系列患者资源(信息网站、邀请患者进行哮喘复查的邀请函以及鼓励患者制定哮喘行动计划的海报)。我们向英国的哮喘患者(17 人)征求了对这些资源的定性反馈意见。此外,我们还对全英国哮喘研究注册(REACH)数据库的志愿者进行了在线调查,以确定他们从哪里获得哮喘信息、他们的信息需求是否得到满足以及哪些信息是有用的(n = 95):根据访谈和在线调查收集到的反馈意见,我们完善了 IMP2ART 计划的患者资源。改进内容包括强调哮喘的严重性、提高可信度以及纳入社会支持资源。我们还对资源的颜色和格式进行了必要的修改。此外,在 COVID-19 大流行后,我们对患者资源进行了更新。多阶段开发过程使我们能够完善和优化患者资源。目前,IMP2ART 策略正在英国范围内进行分组 RCT 测试(编号:ISRCTN15448074)。
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Developing theoretically underpinned primary care resources for patients with asthma: an exemplar from the IMP2ART trial.

Aim: This article reports on the development of patient resources for the IMPlementing IMProved Asthma self-management as RouTine (IMP2ART) programme that aimed to encourage patients to attend asthma reviews (invitation letters), encourage patients to enquire about asthma action plans (posters), and equip patients with the knowledge to manage their asthma (information website).

Background: To improve supported asthma self-management in UK primary care, the IMP2ART programme developed a whole-systems approach (patient resources, professional education, and organisational strategies).

Methods: Linked to behaviour change theory, we developed a range of patient resources for primary care general practices (an information website, invitation letters to invite patients for asthma reviews, and posters to encourage asthma action plan ownership). We elicited qualitative feedback on the resources from people living with asthma in the UK (n = 17). In addition, we conducted an online survey with volunteers in the UK-wide REgister for Asthma researCH (REACH) database to identify where they source asthma information, whether their information needs are met, and what information would be useful (n = 95).

Findings: Following feedback gathered from the interviews and the online survey, we refined our patient resources for the IMP2ART programme. Refinements included highlighting the seriousness of asthma, enhancing trustworthiness, and including social support resources. We also made necessary colour and formatting changes to the resources. In addition, the patient resources were updated following the COVID-19 pandemic. The multi-stage development process enabled us to refine and optimise the patient resources. The IMP2ART strategy is now being tested in a UK-wide cluster RCT (ref: ISRCTN15448074).

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