青少年参与:重新定义健康研究,让青少年真正参与其中。

IF 3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Health Expectations Pub Date : 2024-09-30 DOI:10.1111/hex.70016
Alina Yang
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引用次数: 0

摘要

我饶有兴趣地阅读了题为 "青少年参与健康研究指南快速回顾 "的评论文章[1]。作者强调了青少年有意义地参与研究的重要性,作为一名参与心血管疾病(CVD)研究的高中倡导者,我非常赞同这一原则。青少年是一个独特而又充满活力的群体,他们提供的独特视角对健康研究的相关性和影响力至关重要,尤其是在直接影响他们的问题上。然而,综述显示,现有指南往往无法为青少年的参与提供全面的框架。鉴于青少年有可能极大地影响研究成果,并提高经验性研究结果的适用性,这一差距令人担忧。目前的许多指南都是以狭隘的视角来制定的,忽视了青少年在不同文化、种族、社会经济和地理背景下的不同需求和经历。然而,由于研究通常反映的是研究人员自己的观点,我们可以通过增加来自不同背景的青少年的参与来简化我们的工作流程,从而提高研究项目的质量,以解决这些背景下青少年健康方面的差异问题。呼吁采用更系统的方法来制定指南既及时又势在必行:青少年不仅应该是研究的参与者,还应该是设计指南和影响他们的研究的积极贡献者。只有这样,我们才能制定出真正代表青少年经历的指南并取得成果。此外,通过社交媒体平台和其他能引起青少年共鸣的招募策略、保护他们个人信息的伦理考虑、让他们掌握为研究做出有意义贡献的技能的培训计划以及适当的权力动态,我们可以应对当前有抱负的青少年研究人员所面临的挑战[2]。让青少年参与研究可以帮助我们了解他们对公共卫生的看法以及健康行为的障碍,为我们制定更有效的预防和干预计划指明正确的方向,同时使他们有能力成为自身健康和福祉的倡导者。这将同时培养新一代的年轻研究人员,有可能加快公共卫生领域的进步,最终为全世界的青少年带来更好的结果。作者确认对本手稿的准备、撰写和修改负全部责任。
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Youth on Board: Redefining Health Research for True Adolescent Involvement

I read with great interest the review article entitled “A Rapid Review of Guidelines on the Involvement of Adolescents in Health Research” [1]. The authors highlight the importance of meaningful adolescent participation in research, a principle I strongly endorse as a high school advocate engaged in cardiovascular disease (CVD) research. Adolescents, as a distinct and dynamic population, offer unique perspectives that are essential for the relevance and impact of health research, particularly in matters directly affecting them. However, as the review reveals, existing guidelines often fall short of providing comprehensive frameworks for youth involvement. This gap is concerning, given the potential for adolescents to significantly shape research outcomes and enhance the applicability of empirical findings.

Many of the current guidelines are developed with a narrow focus, overlooking the diverse needs and experiences of adolescents across different cultural, ethnic, socioeconomic and geographic contexts. Nevertheless, because research most often reflects the views of researchers themselves, we can streamline our workflow by increasing the involvement of youth from diverse contexts, thereby increasing the quality of research projects aimed at addressing the disparities in adolescent health across these contexts.

The call for a more systematic approach to guideline development is both timely and imperative: adolescents should not only be participants in research but also active contributors to the design of guidelines and studies that affect them. Only this way can we create guidelines and produce results that are truly representative of the adolescent experience. Moreover, through social media platforms and other recruitment strategies that resonate with youth, ethical considerations that protect their personal information, training programmes that equip them with the skills to contribute meaningfully to research and proper power dynamics, we can combat the current challenges faced by aspiring adolescent researchers [2].

Improved guidelines that facilitate purposeful adolescent participation in health research can not only tap into a fresher perspective in the field but also have a positive impact on the quality of research and methodological approaches [3]. Involving youth in research can help us understand their perceptions of public health and barriers to healthy behaviours, pointing us in the right direction of developing more effective prevention and intervention programmes while empowering them to become advocates for their own health and well-being. This will simultaneously foster a new generation of young researchers, potentially accelerating advancements in the field of public health and ultimately leading to better outcomes for adolescents worldwide.

The author confirms sole responsibility for the preparation, writing and revision of this manuscript.

The author declares no conflicts of interest.

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来源期刊
Health Expectations
Health Expectations 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.20
自引率
9.40%
发文量
251
审稿时长
>12 weeks
期刊介绍: Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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